Breast Cancer Care Forum

Hi all, apologies this will be a bad spelling post as judt on my phone... First glad you are doing okay nicky, Carol glad daughter is better and lily congrats how exciting. Hate typing on phone but left my laptop at work... Sorry I've been missing in action, when I last posted was tired and said going to Edinburgh but it was to the airport for a trip to s'illot in majorca for the family that me and brother treated us all to for mam and dad.... I'll fill you in when back on line but huge mix up with rooms despite my arguments and wasting 1.5 days of our 4 day break ended up in grotting rooms, I can back exhausted and chest infection, dad came down ill ended up with 2 ambulances for him and him in awful state sugar was over 35 temp over 40, chest infection, then said pneumonia and when I told them about hotel tested him and he's got legionaires disease so been in hospital for 6 days, home now and on mend but it's been a rough time and I've been shattered so not logged on, will update you all tomoz when gor proper access but wanted to just check in with you all xxxx ... View more

Hi Carol, what a worry eh, hope you are bearing up but like you say they've done lots of checks on your chest so hopefully all okay, let us know. Steroids are a pain but hopefully they will help with pain.  Heatwave sounds lovely, it's been a mixed bag here between torrential rain and glorious sun, who can tell what tomorrow brings.    I've been really busy, had my parents golden wedding so had meals out and a wee party, I was cleaning up the garden at 1am lol not like me, then followed by dad's 70th and he's still working lol. We also had distance family that have never met come up to see where their grandparent, great great grandparents lived and died, all new to me so I was on the research, graveyard searched and looking st all my uncles family history, it was lovely and another meet up planned.  Work bonkers as ever, but I've a week off, we are setting od in in a couple of hours to Edinburgh for 4 nights in the heat with my parents, brother and sis in law and niece and nephew. Its mam and dad's anniversary present along with a 100 page photo book which took me all through the night to do lol... Wish us lu k it's very hot.    So lily you must have finished work now, what's the plans for summer? You hooked on any TV, I hate to admit it but I'm hooked on love island lol... I've also gained almost all my weigh back on so need a kick when I get back.    Nicky, how's the treatment going? Do you feel up to much? Hoping you get some good days to have a walk or a wee trip and the hair is still hanging in xxx   Better go and get ready for my holibobs.  Oh forgot to say, logged on Facebook and angies partner had put a picture on of her saying how much he missed her, it was a lovely photo xx   ... View more

Hi all, sorry ive been so busy I've not been on, it's been a very hectic few weeks but I'm fine just fat lol. Will log on when my eyelids are working tomorrow xxx ... View more

Grrrhhh last post gone missing so I'll do a catch up tomoz, love to all xx ... View more

Hi, it's totally normal the rads can play havoc with your muscles and there will be scar tissue too but it will settle down. Fab news on finishing your treatment xx ... View more

Hi all, well grrhhhh lost my V long post last week so here's a condensed version. Nicky, glad you've made a decision, must be hard to decide but glad you've had a nice long weekend and wee mini break beforehand, hope it's manageable xxx   Lily hope Rome. Is lovely, I've been missing my Italian fix and Rome is defo on my list for a visit.    Carol gp looked fab xx hope your weather isn't too bad x   Well wedding went without a hitch and it was lovely day I even survived in my dress all day, with lots of dancing and giggling and avoidance if photographer where I could, was shattered day after but will chilled here, last day on hols been here 19 days. Day we tried to land was torrential storms so circled airport from 50miles away, after 45mins told us storms so bad would need to wait another 30mins plus and not enough fuel so headed down to miami. Touch and go there between stay over but in end we sat on plane for another hour waiting doe another few storms to pass, got there eventually. Rained day 1 then not a drop since but boy exceptionally hot. 35 to 39 degrees everyday and 80 percent humidity which isn't good for my poor dad who doesn't like sun lol.... We've survived just had to do very lite and slowly and had a few nice treats for them for their golden a niverssry which is in a couple weeks 👫😊.  ... View more

Hi all, well nicky you still inspire me with your positivity and I'm glad there's some options although dealing with a different chemo will be a challenge. It's a shame he didn't give you his views they are the experts after all but I'm sure doc lily will be on the case already to offer some inspiration. Having a few short weekends away sounds lovely, hope one of them involves a plane. Wedding sounds lovely lily.    Well I think I'll sleep for first week of my hols in the cloudy florida stormy weather. I've judt got home and still a list a mile long, work tomorrow, then wedding pre meal and drinks, then work Friday and picked up from work straight to wedding hotel for sleepover with bride, then wedding and my speech 💒😩😩😩, party and dancing after all this organising and then wake up, hand lugga pack and off to Manchester Airport for sleep over before early flight. Been working 12 hr days and then some so well ready for it.... 😂😂👌👌.  ... View more

Hi all, I've signed up now to get a notification when we post which helps me as a prompt to sign in as busy and forgot, not that any of you are easy to forget... Nicky glad you've got your appointment sorted and fingers crossed you get your report before you go. Hope you can squeeze in some fun things before agreeing next course of action. Your attitude does inspire me and most likely everyone around you xx   Lily, has the wedding past and how did it go? Carol, ouch you mentioned the dentist word which means I've now got my legs crossed and probably Lily too....    Well, wedding in 2 weeks finished the hen nights including 4 nights in tenerife. Now the bride to be is off with hubbir to be to Portugal for 4 nights whilst I work on all table plan, settings etc. Etc. Been non stop with preperarions and then go on holiday day after wedding so going to be a busy 2 weeks from today!!!   Well been for my annual check up and was a bit worried few weeks ago with painful lump in neck but must have been run down as disappeared and pain went week before and cold came on... So everyone's happy and I am but mixed emotions. Hospital signed me off to not go back 🙄, he said never day never but he would now class me as in cured bracket due to fact thst it was so aggressive at time and fast growing would have expected it to return faster... Now you know me and we all no cancer has no rymth or reason sometime so took with a pinch of salt and happy to be discharged but wierd losing thst bit of an annual scare /comfort blanket xxx   Cath you next time someone posts... Harsh diet for 2 weeks as dressmaker said dress fits fine but it's sooooo tight I can barely breathe when sit down. Her response was who needs to sit down 😩😩😩 ... View more

Hi nicky, really sorry about the news, really hope once this weekend is over they can push your appointment forward rather than wait weeks which would be awful. Like lily says if tiny maybe more treatable but awful when you were dealing so well with current regime xxxx let us know when you know more xxx lily if your wedding was this weekend what a glorious one for it, let us know how it went xxx ... View more

Hi all, will have a proper catch up tomorrow, my last post seems to have disappeared, trying again on phone so let's see. Anyhow will give you any gossip I have tomorrow which is virtually nothing less you want to listen to me moan about blinking blinking dress for wedding. Nicky, how worrying when you had the news it was stable, let us know as soon as you know, be thinking of. You xxxx Lisa. Love to lily and Carole too xx ... View more

Hi all, I've been quiet sorry just very busy but hey aren't we all and keep forgetting to log on so trying it on my phone tonight.  Nicky your holiday sounds lovely I want to know more lol... It takes me a couple weeks to get back to normal so take it easy xxx    Lily poor you bugs are awful this time of year I've passed my cold around and the cough is back seems. To pop back every few months with force grhhh. Well wedding outfits sound fab... I've a bridesmaid dress fitting this weekend and feel sick at the thought as discovered it's got a low back which causes me a few problems with falsies probably flying down the aisle lol. New addition eh I loose count on where you are up to.    Nothing much to report here... Myself and brother have booked for. Us all. To take my parents away at the end of July for 4 nights to S'illot in Spain for their golden wedding, probably have to spill the beans soon though as she's trying to plan things eekk... Its for their golden anniversary at dad's 70th. So much on this year off to tenerife in 2 weeks for 4 nights for hen night yikes..  Well I'm off to batten down the hatches the weather is extreme here tonight...  ... View more

Hi all, thought ide better text before I fall to sleep. Carole baby snaps and dog snaps are gorge.   not been snowed in here but cold and had an experience on black ice... hate icy roads but all fine.   whens the appointment lily 😞   nicky, wow now I'm jeleous, blue seas and warm sun how lovely and well deserved.    Not much to report here, no diet just food, my friends got me sorting her hen night and making all wedding invitations so shattered and still loads to go then onto ideas for mam and dad's golden wedding and 70th birthdays elks busy year. Well I've my annual check up but in April as pushed back last year for hols, my dad seen the doctor I see and who done my first operation at work and he hasn't seen me last two years as stand in, asked how he was and said he remembers it's my 10 year mark and prob won't be seeing me again. One that freaked me a little, two how lovely and omg how does he remember that, although I was probably the patient from hell, although he does stop for a chat in Morrisons whenever I see him, usually after I've visited the wine aisle 🙈🙈.   take care catch up more this week, no apologies for typing, just no time to fix lol. Ps hate new look too lol ... View more

Hi all, and congrats all, I've been mega busy but will pop in tomorrow for a good catch up xxxx ... View more

Hi all, hope everyone has had a nice weekend xx   ive been hit with sinusnpain and a saw dust throat and large glands, worst of it is I'm sooo tired, never been so tired so glad it was a quick 2 day working week, back to full on tomorrow and Lily it might be your first day back 😕.  I've not much planned this year as have some money issues so need to stop enjoying myself until I get sorted, that's single house owner life for you lol. End March 4 nights for friends hen party in Tenerife, can't say no as I'm maid of honour but I did manange to get it for under £200 and it's Easter hols so good hunting , then Florida in May Day after friends wedding. Then big save up for parents golden wedding and 70th birthdays ....   Carole, how come you are on low carb diet? I struggle without carbs i get headaches whenever I try xx   Lily, glad you've told family and feel free to express your fears here, it's hard when been op free for so long and a choice thing (in a way).   Nicky, your New Year's Eve sound perfect, how lovely. Well fingers crossed for results and look forward to hearing your holiday plans 👍👍.   well watched dancing on ice so off for a cuppa before bed, no wine for me, gained 10lb in 3 weeks as been away and Xmas and went to town, so liver and guts getting a wee rest and hopefully can reverse any damage or this bridesmaid dress is going to be let out, seen as I ordered a size smaller in my madjesty 😤😤 ... View more

Hi all, happy new year. Here's to a positive and healthy 2019. Back off to the sofa to nibble and drink wine before detox and diet on Friday 😀. Hope you've all been spoilt rotten, I know I have xx ... View more

Hi all, I'm so sorry I've not been around just been so busy with work and tired 24/7 house a bomb site and there's only me.   Lily, how are you doing? Please don't bottle it up. Not sure exactly what op you mean but I know when I had to have my ovaries out I blinking sobbed just agreeing to it. Also because not had to have operation for a long time even more upsetting. Hope you manage to have a nice Xmas and remember parents always give the harder time to the one they know can take it more and do more xxx   carole, hope you are feeling better too, how's the weather looking for Xmas over there?   nicky, omg so wished I hadn't logged on tonight, now I have my nightmare song in my head for bed... it's a small small world la la la la la..... I still subject myself to it. I've never been to the Paris one or at Xmas so would love to see if and I bet you had a magical time seeing little faces light up.   well, I'm off to bed and final wrapping and deliveries tomorrow and housework, then Xmas eve with kids for pizza and Mary popping and our local old fashioned cinema rather than the large multiplex in next town, supporting local xxx   night all x ... View more

 Hi all, just a quick post as up early tomorrow. nicky glad the funeral went like it did, sounds like a lovely turnout and you family and your mum doing him proud. carole, ouch sounds painful, hope you get sorted at docs, weight gain is so hard, I'm still trying but coming off very slowly as weekends get in the way oh lily poor you after everything with your mum sounds like a horrendous wait and what pain for her, she's defo a trouper and take advantage when she's in hospital, however, I know those hospital visiting hour trips takeover your life.   ps. Nicky Disneyland Paris, never been 👍👍 ... View more

Hi all, manic time of year for us all hence it being quiet on here. First of all Nicky, how are you coping, really hope you've had a funeral and celebrated your dads life xx   carole what an awful journey, hope the feet go down soon and the wee dogs are okay. How was your mum and family ? X   lily, how awful what a bad time you've had and that's why you can't shift your cough I always get it this time of year, avoided it with just a short burst but my poor Mam has been coughing for over 2 weeks and I've come out in a cold sore.   well work seems to get busier the next few weeks but trying to spend a bit more time posting on here as I've not been posting enough recently xxxx   off for early night xx ... View more

Hi all, I'm around just recovering from Tenerife and brought a sore throats back, well we all did so that plus work means I've been shattered. Glad you've been shopping Nicky, and wow that's a long time to wait as it's a big hurdle xx lily I've joined the lurgy gang x Carole how's things?   will do a proper catch up tomorrow, jungle ...are you watching Lily?! ... View more