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rhapsodyangel
Member
since
01-05-2012
2085
Posts
1
Hugs
11-08-2013
06:56
Oh Eliza... that's it - that's me well and truely crying... what a special message to rediscover... xxx
Love you Casey xxx
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11-08-2013
06:08
Jane, I've been so proud and privileged to be your friend these last few years...
You were always the Storm Rider who went first onto new places, just so sad you have taken this final journey already...
Fly high my friend and shine brightly xxx
Love you always Theresa xxx
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01-07-2013
10:29
I am sad to have to let you all know that AndieT died recently, She was diagnosed with IBC back in 2008 shortly after me and was an incredible support and good friend to all of us on the IBC subforum... I was lucky enough to finally meet her back in 2011 and she was just as lovely in real life as she had always been on here...
Sadly she was diagnosed with mutliple met sites in early May this year and things progressed very rapidly as her liver quickly failed... It will be her funeral tomorrow...
RIP my friend, fly high and shine brightly xxx
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01-07-2013
10:11
Hi - I was diagnosed with IBC back in 2008 and used to live on here back in the day... but rarely come on here now... Trish I was also a family history patient who used to have to go for annual mammograms before I got IBC and my BRCA 1 & 2 tests came back negative... I was told by the team at Newcastle Centre for life that they think there are probably several more BRCA's to discover...
I know several other IBC patients who are triple negative but alot of us are now friends on Facebook...
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27-06-2013
08:03
I thought that I should put an update on here incase any of you have been keeping an eye on the thread concerned about AndieT... xxx
Sadly she passed away peacefully last week in a hospice with her husband holding her hand.
Andie was one of the first other IBC patients I made friends with on here back in 2008, and she was always such a support to our small group, I am going to miss her very much and am so pleased that we did get to meet up once in London... xxx
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09-06-2013
07:11
Just wanted to send you love on here as well... xxx Have they said anything about trying to drain some of the fluid to try and make you more comfortable? I'm so devastated that you are having to go through this... Sending you all so much love xxx Theresa x
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21-07-2012
11:53
Hi everyone - havn't been on here for quite a while (have sadly just had to make a post about a friend who has recently died) but thought I would just pop on here and say hello xxx
I still see some of you on facebook and hope that everyone is doing well x I'm now just over 4 years since diagnosis, going through a bit of a scare at the moment as my sternum has been hurting so had a nuclear bone scan which has shown up a hotspot which I am having mri'd on Tuesday to confirm what it is... Will get the results on Wed afternoon off my onc (she won't have the full report but should have seen the scan on the system by then).
Take care everyone x
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21-07-2012
11:45
I'm sorry to have to let you all know that Paula died last weekend - She was only 42 and leaves behind her husband and 14 year old son. Some of you might remember her from the lung secondaries and brain secondaries threads. It will be her funeral on Monday morning at 10.30am.
I first met Paula almost four years ago - I was in hospital having just had my first mastectomy and she was diagnosed that day with her lung secondaries. I will always remember Paula for her smiley face - she was always so positive and upbeat...
Sleep well Paula - you were very very special xxx
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19-02-2012
05:21
Hello - it's me the one who only seems to turn up now when there is sad news...
Those of you who were posting here in Feb/April 2010 might remember Wendy (wubbly) she was initially told she had IBC although they changed their minds after looking at her mx results... (Jan B, Haxted, Peacock, Andie and Woody spring to mind as people posting then...) Sadly she died yesterday and a memorial thread has been started here... http://share.breastcancercare.org.uk/forum/wubbly-wendy-t36006.html
I know She had a big effect on us all here, and I was lucky enough to get to know her in real life as well as we lived nearby... She was even more amazing in real life and became one of the best friends I will ever know...
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19-02-2012
05:13
Like the other North East girls this is the thread I never wanted to post in... I first "spoke" to Wendy on here the day she was diagnosed and we realised we lived close to each other a few days later...
It really is impossible to explain just how wonderful she was, but the amazing thing was within just a couple of minutes of meeting her you would realise just how wonderful she was and that you had met a friend for life... I know she will always hold a very special place in all our hearts and feel so sorry for her family and life long friends who have lost this special, funny, kind woman...
I can't believe I will never see her again, have her wonderful messages of support... This is so wrong - we were meant to be old ladies eating cakes and scones and laughing at her tales of her grandchildren...
Sleep well Wendy and I hope your sparkly dreams are full of happiness and love xxx
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18-02-2012
11:57
Hi - I've been wrestling with whether to post here or not since yesterday... Wendy is a real life friend of mine (god is that an understatement...) anyway I'm sorry to tell you that things are not looking good... Her husband has been in contact with us all and she is getting much weaker each day... I was meant to be going to see her today with Daisyleaf (monica) off here but really I think she now just needs to be with David and the rest of her family.
I know how close the bonds get on here and how much we worry when people stop posting so just wanted to let you know what is happening... Wendy did manage to do one post to us over on fb last night - so I'm not sure if she will also be trying to post here again...
Sorry for the bad news - and just love to you from all the North East Breast Buddies for being there for our Wubb these last few months... xxx
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31-12-2011
10:58
Hi - I'm so very sorry that you have had to join the club... I used to practically live on here - but in the last 15 months or so have only posted twice... Anyway - I am also an IBC patient and just wanted you to know there is an IBC subforum on here... http://share.breastcancercare.org.uk/forum/inflammatory-breast-cancer-ibc--f103.html if you look on the left hand side half way down the page is a section "talking to other people in a similar situation" and the IBC section is in there...
As you say IBC is incredibly rare... when I was diagnosed in May 2008 I was the first IBC patient in 4 years at my hospital so it is really easy for GPs to go their entire career and never see or even hear of a patient with it...
This is a really scary time and sending you much love... I remember how I felt - you will probably find the next week or so is incredibly busy - I ended up having a nuclear bone scan, chest xray, ct scan and heart scan (the heart scan was incase we found out I would need a drug called herceptin) but honestly everyone says that things do get a little better once you have the full picture and treatment starts...
Do have a look at the IBC subforum... it has always tended to go in patches of busy and quiet times as there are so few of us - but the girls there are lovely and will try and support you as best they can...
Finally a bit of hope... I also had lymph node involvement at the start but luckily had an excellent response to chemo and am still here three and a half years later... Take care and best wishes xxx
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04-04-2011
06:42
Just popped on to make sure you all see this link... http://www.breastcancercare.org.uk/forum/viewtopic.php?f=108&t=30618&p=519568#p519568 Sadly Sharon died yesterday on her 37th birthday... Its been a tough month with Jackie also dying on March 3rd... Sending love to you all...
Theresa x
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04-04-2011
06:39
Sharon you gone much too soon... So sorry that I never did get to meet you in the end... Sleep well xxx
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18-03-2011
02:52
Just popped on as I had heard that Dawn would be posting this today... Jackie was the first person to contact me on here when I was first diagnosed in May 2008 with IBC and she was such a wealth of information and help to myself and Carol that first summer... I will always remember her with great affection for her kindness, support and being such a mine of information and help...
God bless Jackie and rest in peace... xxx
Just also to mention tomorrow will be the first anniversary of Pash's death - thinking of both her and Jackie's families and friends and sending them love xxx
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19-09-2010
09:01
Hi everyone...:D
I've decided not to post on here anymore but didn't want anyone worrying that I had vanished because of the IBC etc... Sending you all loads of love and hope that you all have years and years of good health and happiness...
Theresa x
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19-09-2010
08:59
Hi all - just to let you know I won't be posting on here anymore... just fed up with warnings off the moderators... am in contact with you all anyway... and love you all to pieces... xxx
Theresa x
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19-09-2010
07:52
Morning everyone...:D
Emma that sounds brilliant - no wonder you sobbed... xxx
Wendy - did you manage to ask your onc all your questions on Friday? Hope that Lawrie is soon better... xxx
Not sure who is on facebook - my name is Theresa and it is a piccie of me with straight hair at the moment...
Theresa x
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18-09-2010
07:32
Hi everyone...:D
Sending loads of love to Rosie... xxxx
Just got back from the Newcastle younger women's forum and had a great time...:D
Theresa x
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