Breast Cancer Care Forum

Ta Dah,   i am am now on my second night in hospital with double pneumonia !!! So there’s the infection for you . I certainly do know how to get an infection!! ... View more

 Hi Angie , Yes I have an appointment in early June , but as soon as I am over this , I will try again . My GP is convinced this infection is s complication of Rsds ! How are you getting on with Letrozole ?  ... View more

Hi Angie , Not good at all . My bloods came back clearly showing an infection , but they don't where the infection is !! I have been shivering and convulsing !!!  sweating , not eating. Every part of me aches , I feel terrible . The Dr has put me on an antibiotic which has given me terrible upset tummy  (Clarithromycin). I think that the shivers have now gone and I am really hoping that I will start feeling better after todays doses .   How are you ??  ... View more

Thank You for that Monicanatura  ... View more

Thank you , will give it a try . This morning I found some Aloe Vera after sun gel , that feels go and I can tolerate the smell😊 ... View more

Hi Ajay, What does it smell like ? ... View more

Thanks Aneeebel ,   All done, which seemed like forever . It was the Easter break which made things worse. it just lengthened the whole process 😔 Feeling sore and desperate to find a moisturiser more suitable as the E45 smell makes me heave 🤢. Hoping that all goes well for you and your treatment . I learnt a little tactic to make the sessions go a little quicker......... think of a singer or group and try to remember as many of their songs as you can . You will end up singing your favourite in your head 🤣 It helps the time to pass so much quicker ❤️ ... View more

Hi Angie , Yay , finished at last and celebrated with a bottle of Prosecco 🎉🥂🍾 So pleased that you have finished too 😁. But felt terrible today , Slept for  2 hours, nausea and shooting nerve pains. Feeling much better tonight after the sleep and painkillers .  I have now discovered that it the E45 cream that makes me feel nauseous, it’s the smell of it! After applying this afternoon, I realised that the smell I thought was in the RT tunnel is actually coming from me !!!    It actually makes me retch .....🤢😷 Can anyone recommend a more pleasantly smelling alternative please x ... View more

Hi,  I remembered you were finishing early this week , how are you ? i should be finished on Friday fingers crossed and I really can’t wait. It feels like I have been going in and out of that damn tunnel for months. I have had a couple of hiccups with the appointments being rearranged due to breakdowns including number 14 tomorrow , so I am anxious that this really is the last week. Saw my oncologist last week for review and he says that everything is going great 👍  In the last couple of days I have been experiencing horrible shooting pains which have woken me up at night , so I am now going to bed with paracetamol which seems to help .  Also I can not believe how tired I am , I can easily sleep for 2 hours in the day on top of a full nights sleep 😲 .  Fingers crossed for us all that this is the end of this long and arduous road.  Hugs to you all Barbara ... View more

Good Evening all you April ladies . For all you ladies who finish treatment on the 26th , you are doing great 👍  Tomorrow you will be 2/3rds of the way through . Keep smiling we are nearly there 😘 ... View more

Hi Kimberley, well that’s a surprise , you having treatment on Bank holiday !  I don’t know if I’m jealous or not . You will be finished before me . I hope you had a lovely birthday 🍰 have a great holiday , if we don’t speak before. Good luck with the rest of your treatment ( I think I am envious). i will keep you updated .  Barbara x ... View more

Hi Kimberley, no I haven’t seen him since 🤣🤣🤣 but let’s just say he had it coming !! I still keep giggling. I am finding that my energy levels are changing on a day to day basis . This week , Monday Ok , Tuesday , tired and miserable, Wed , buzzing , today ok but at 6pm absolutely shattered . So pleased tomorrow is Friday . The nausea is subsiding until I get tired then it hits with a horrible metallic taste . Just snacking now as I really don’t fancy a meal.  Hoping to work again tomorrow but only 7.30 - 11am as all appointments are now midday or very early afternoon .  Hoping you have a lovely Easter break and enjoy the 2 short weeks xx ... View more

Hi, How is it going ? Day 4 done, tired and very little appetite still . I am just snacking and not eating a full meal . Nausea is subsiding 😃  Still working this week , all week I hope 🤞  I travel with loads of files which I load in and out of the car everyday , just in case I don’t make it in 😂 My brain is definitely affected , I verbally abused my idiot neighbour yesterday morning in the car , for completely blocking my view , then as I pulled away I realised that both rear windows were fully opened and he heard every word ! 😬😳🤣.  Let me know how you are getting on , I am starting to feel tender tonight 😖 Barbara x ... View more

Ha ha , you could be my sister from another mister ! I too yawn all day at work 😂😂😂. I leave about a hour early so that I’m not falling asleep whilst driving . I can leave earlier if I feel I need to , they are great about it and encourage me to rest .  I intend to work from home 2 weeks into treatment as I know I can function better at home than at work . I can always have a power nap when I need to 🤣. Don’t you think that work helps you to cope better . Tiring I know but so worth it !  Water intake is increasing , as are toilet visits!  ... View more

Thank you , could be coincidentally and the Letrozole could be the culprit . I will mention it on Monday ( session 3 ) . Meanwhile I will up my water intake to see if it helps 😊 ... View more

Hi Bracken I understand your concern as I initially refused both chemo and Letrozole much to my Oncologists dismay .  My tumour was Oestrogen positive and had spread to lymph nodes. I was fortunate enough to have my tumour re anaylsed as part of a trial and was advised that I would not benefit from Chemo but would have my chances of recurrence reduced more by having hormone therapy ( Letrozole) . Having that 2nd opinion changed my mind and I have agreed to Letrozole and Radiotherapy, but on my terms !! Having done my research it seems that if you can maintain the same manufacturer of Letrozole , you can help keep the side effects down , so I have done the leg work , found a pharmacist who will order my brand continually . This is an independent pharmacy as the big chains are not able to order any brand , just those on their list 😖. I have been taking it for 4 weeks and the side effects are limited to nausea and tiredness .  I am not a person who will just agree with the medication / treatment prescribed and will question the decisions made .  My Oncologist has re assessed my risk with the current medication and treatment which raised my survival rate from 55-76% over 15 years . Chemo only was 62%.  I just hope that this gives you a little bit of help  with your research . Feel free to ask if you have any questions 😊 ... View more

Hi Angie  just read your post which made me laugh about your easy boob access 😂😂  I was offered a blue jacket thing which was so complicated with Velcro and ties .  After the explanation I said what’s the alternative and was advised it was a a modesty sheet to which my reply was “ I’ll go commando , there’s not many people in this hospital who haven’t seen my 1 and a half boobs “ It may my doc and nurse laugh 😂  ... View more

Hi Angie and all April starters.  Started on Thursday so I have had 2 sessions , today felt really sick and started to vomit . Not a great deal in my stomach as I have totally lost my appetite. Has anyone else experienced this ? I asked about anything I need to do at my first session and was told to moisture 3 times a day with E45 or Simple.  No mention of fluid intake or anything else , no mentions of deodorants !  I have started Letroxole , on week 4 . That’s a whole new thread , not side effects , but availability. Would love to hear how you are getting on 😘 ... View more

Hi Anika,  how is everything going ? Have you had surgery ?  Results for me were 2 weeks from surgery at check up stage x ... View more