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ellajo
Member
since
12-10-2018
9
Posts
3
Hugs
30-12-2018
08:16
Thank you lovely ladies for all your replies. You have no idea how much it has helped realising that I am not alone with these feelings. Sending you all big hugs xxxxx
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29-12-2018
08:53
2 Hugs
Hi Maybe some of you can help me with my conflicting thoughts now that my treatment has "finished". I had lumpectomy and radiotherapy and just recovered from the side effects of radiotherapy. Firstly can I say that although friends and relatives rallied round fantastically initially I am shocked that this support has now disappeared apart from a couple of lovely ladies, who have been through cancer too. My supposed BF said "we will be positive and proactive" and then disappeared apart from one email 6 weeks after the operation to say how was I and sorry she had not been to see me but had been busy. After replying to her I have not heard from her for 2 months. Another couple of relatives who came to first appointments with me when hubby could not get time off work seem to have disappeared too. I guess they all struggle to cope with my diagnosis, but I hardly talk about it at all as I realise that people just want you to say you are fine now, which we all know we are not at this stage. My youngest son, who I am very close to, seems not to be able to talk about it at all. My eldest son was very concerned and supportive but now he and wife seem just concerned with when I can visit to babysit again (a 3 hour journey and then staying for a few days each time whilst they travel abroad for work) and although hubby has been fantastic I know he just wants to move on and seems mostly concerned with when we can book a holiday. Am I being selfish/unrealistic to have hoped for things to be different? I am visiting support groups to try to get support from them and am on a waiting list for counselling. I see my oncologist next week. Any tips on how I can move on? Many thanks
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27-11-2018
08:17
Hi, I have been prescribed some Mepiplex pads to put under breast but has anyone used any gels or creams on the blistered areas? Or should I just keep it dry? I will ask the radiotherapy nurse but just wondered what your experiences were. Thanks
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24-11-2018
07:54
Hi everyone, I had session 13 of 15 yesterday and also a review with the radiotherapy specialist nurse. I had been feeling quite hopeful that my skin was not going to be affected too badly but she warned that the worst is to come. Apparently about 2/3 after finishing the rads will be worst time and she expects blisters etc will appear under boob so she has advised me to get some pads from the GP and also some 1% hydrocortisone cream for itchiness. Best to be forewarned I suppose. She is going to phone me to see how I am getting on in a couple of weeks. I am also getting some stabbing pains but very short lived at the moment. Nurse has advised that these could happen more for a while and breast will feel very heavy. Paracetamol advised and plenty of rest and fluids of course. I have been getting some dizziness for the last day or two but nurse says this is more likely due to not drinking enough fluid rather than the radiotherapy. They are all very kind but I cannot wait to get to Wednesday so that there are no more long trips to the hospital. I am going there again today though as the breast care nurses run a monthly support group and it sounds quite jolly so I am looking forward to that. I am also being referred for counselling as the whirlwind of appointments and treatment over the last six months has meant that I don't believe that I have really had time to accept what is happening to me yet - nurses have said it is not unusual to feel at your worst mentally/emotionally at the point treatment finishes so we will see. Sending big hugs to you all 💕💕
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10-11-2018
10:36
Hope you are all doing ok. I have had 3 sessions so I am counting down and 12 to go for me. Feel ok so far but got quite emotional on day 2. My appointments are all about 4pm or later so spend so much time in traffic jams for rush hour on way home. I won't ask them to change the appointments though, someone has to do the later times. They have already been very good and changed one appointment for me so that I can attend stepfather's funeral. I am doing the breath holding technique which is quite daunting but managing ok so far. I have started coughing a lot today though, not sure if that is a side effect or whether I am catching hubby's chest infection. I have been told to use Aveeno to moisturise but someone else suggested Bio Oil as well. Sending love and hugs to all of you 💕💕
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03-11-2018
03:46
Hi emac, I had to go back for a second CT scan doing the breath holding too. It is a bit daunting knowing I will have to do that for each session. My treatment starts on Wednesday 7th - just want to get going with it now and get it over with. Hope all goes well for you, and everyone else on here
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27-10-2018
11:35
1 Hug
Hello all, just popping in to say hello to everyone else starting or undergoing radiotherapy treatment in November. My sessions start 7 November and I am quite apprehensive but I'm sure it will be ok. 45 minute journey each way but hoping it will not be too bad. All will be over by Christmas anyway 😊
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18-10-2018
07:15
Hi all, I had my planning CT scan, tattoos and talk with the radiographer yesterday. I am having 15 sessions starting on 7 November. 40 minute drive to the hospital. Having got the WLE lumpectomy over with and just about recovered from that it is now on to the next part of treatment. Thinking about all you other ladies going through this just now
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12-10-2018
06:55
I saw the oncologist and the specialist radiotherapy nurse on Wednesday. Although the breast cancer nurse advised me to us acqueous cream on the scars I was told on Wednesday not to use this nd also that they don’t recommend E45. Advised me to use Aveeno or Simple products. I’ve bought some Aveeno for radiotherapy which should start in about 4 weeks. Although I have been told by others that radiotherapy is a breeze I am dreading it as oncologist has advised I may burn quite badly and skin split and blister (I am ver fair and burn easily in the sun).
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