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Andi
Member
since
02-02-2018
108
Posts
15
Hugs
2 weeks ago
Thanks Tessa I have problems swallowing tablets and read it was available in liquid form although a more expensive option and not readily available. I understand Tamoxifen is available as 10mg so thought maybe I could take 2 if they are smaller. I'm seeing my GP tomorrow to ask about options. I could take it if I chopped it up I guess. Thanks for the info
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2 weeks ago
Hi Does anyone take liquid Tamoxifen rather than tablet form? Any thoughts on this? Thanks
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10-01-2019
03:42
Hi Cathy I had a very dry mouth and sore tongue initially when I first took Letrozole but this seems to have subsided although I do often wake in the night very dry. I believe it is in the list of possible side effects perhaps you can speak to your GP for help to relieve the symptoms.
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10-01-2019
10:50
Hi Ladies Just a follow on from my 1st post in early December. Following my hospital consultation I've now been advised that it is perfectly acceptable to change to Tamoxifen Could I ask for a concensus of opinion on favourite brands as I'm guessing the same issues will present as it does with Letrozole. I've heard that Wockhardt is a good one? Could you let me have your comments please? Also I'm currently in the "wash out " period off Letrozole which I'm told is 4 - 6 weeks. Feeling quite vulnerable not taking any hormone blockers but have been reassured this is perfectly fine. How long have other ladies had for the wash out period when changing meds? Thanks in advance for your contributions Andi x
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05-12-2018
01:08
Thanks for your comments Ali. The decision is tough and the more I research, the more I am uncertain. I am nearly 63 so a good decade older than you. I've spoken to my bcn today and she is fully supportive of a change to Tamoxifen as I am classed as low risk. She is arranging an appointment with my oncologist for the New Year and has suggested stopping Letrozole from next week to allow the drug to be washed out of my system. Everything feels like a scary option. I'm quite excited about a pain free Christmas, but also worried about not taking it for 4 weeks! We had a long discussion about risk factors and quality of life. Good luck with your decision, has anyone mentioned a change to Tamoxifen or is that not an option for you?
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04-12-2018
07:18
Thanks for providing the link Kathy. It provides interesting reading. I'm speaking with my bcn tomorrow for advice.
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02-12-2018
08:36
Hi All Just looking for info from anyone who is post menopausal but has swapped from Letrozole to Tamoxifen. I have severe joint pains and vaginal dryness which is not helped by Replens, Sylk or any of the other products I have tried. I have been taking Letrozole for 8 months and the side effects are gradually getting worse. My onc is happy for me to swap to Tamoxifen as I have also now been diagnosed with early stage osteoporosis . He has left it with me to make the decision but I'm worried that I may not get as much protection from Tamoxifen. Helena I know you are taking Tamoxifen, do you have any comments? Or any other members who are able to contribute. Am I worrying unnecessarily? I spoke to my bcn recently who said the %difference was minimal. Many Thanks
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01-09-2018
08:25
Thanks everyone for your comments. I intend to speak to my GP to ask if I can have a fixed brand and also try maybe Accord or Dr R as they seem to be the most favoured. Mcnulcc to answer your question I have not experienced any stomach issues while taking Letrozole. In fairness I can just about manage the hot flushes and joint pains but the vaginal dryness is just a pain. Intimacy is out of the question right now. I've been using Replens and Sylk with some relief but not enough to return to a normal sex life. I'm a young 62 and really don't want to abandon this side of my relationship. I am therefore going to try other brands in an attempt to reduce the side effects before considering a change to Tamoxifen Thanks again everyone
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31-08-2018
06:38
Hi Everyone Just looking for a concensus of opinion on the best brands of Letrozole. I have been using Cipla for 5 months and now experiencing ankle pain, hot flushes and worst of all vaginal dryness. My oncologist has suggested a switch to Tamoxifen in the future if the side effects persist but has asked me to continue on Letrozole for the next few months. I'm seeing my GP next week to discuss a change of brand to see if this may relieve the symptoms. Any thoughts on the best brands for reducing side effects? Also, can anyone enlighten me why some brands create worse side effects than others? A friend was told by her GP that that they were all the same and changing brands was pointless. Thoughts and contributions would be most welcome ? xx
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01-07-2018
02:04
1 Hug
Hi All Looking for comments/advice on this please. I have been taking Letrozole for almost 4 months and the side effects are manageable apart from the vaginal dryness. I'm using Replens on prescription which has had a marginal improvement. Has anyone experienced this and it has abated over time? There is much discussion about some initial side effects resolving over time but I'm unsure if this is one of them? I'm quite sore most of the time and intimacy is proving difficult. Has anyone any experience of this unpleasant side effect calming down over time? Or can anyone offer advice on how to provide a solution? I'm happy to try herbal or natural remedies as well. I'm going to visit my GP next week but in the meantime if anyone can join in with comments I would be very grateful. Thanks everyone x
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21-06-2018
10:55
Hi Dealdoh I have just returned from 3 weeks in America. My rads had been completed 4 weeks when I flew out. The holiday had been booked over a year and prior to my diagnosis. I haven't experienced any problems either with flying or my skin. Just need to be vigilant and protect the skin. I used InsuranceWith and it was around £145 for 3 weeks. However I do have other medical conditions which bumped up the quote. I also waited until active treatment ended before obtaining quotes. Hope this helps
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05-06-2018
11:16
10 months is a long time to wait and holidays are so important. May be worth trying other companies? I finally went with InsuranceWith and paid £145 for 3 weeks in USA . I am only 4 weeks since treatment finished and USA is known to be expensive for medical insurance so I'm hoping this will be less in the future and for trips to Europe. Although expensive this was the best quote from several companies I tried.
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31-05-2018
09:18
Hi Bellas mum I asked the same question myself on the forum a couple of months ago. Like you I was given a Letrozole prescription by my oncologist but with no clear instructions when to start. My radiotherapy appts did not start for several weeks after. The consensus was that the instructions on this can vary. I telephoned the oncology department and was told to start immediately and this was 5 weeks before rads. I had very little side effects from Letrozole in the first few weeks so really don't worry too much about the radiotherapy. In fairness my side effects from the meds so far are all manageable and I'm trying to stay positive long term in the hope that they settle down. Hope this helps xx
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20-05-2018
04:41
Thank You. Once it's sorted I will report back. There may be some useful advice for other members. £100 for 3 weeks USA seems to be the average so far. Will also see what they have to say about the counselling. I think it is important discuss every possible factor with the insurance company as I know a claim would be rejected for any none declaration
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20-05-2018
04:20
Thanks Jill I prefer to talk in person but the phone lines are always so busy. Once I have an idea of the screening questions online I will give them a call at Insurance With. Online questions do not cover all aspects and it's often easier to ask for advice verbally . Have a good afternoon
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20-05-2018
03:33
Thank you for the info ladies. I have had a look at some of the comparison sites and seem to be getting a quote for around £100 for single trip. May need to consider annual travel insurance! I think medical insurance to the USA inflates the cost. Another point. I am receiving counselling following my bc diagnosis and there is also a question around anxiety stress etc. Does anyone consider that this also needs to be declared? Thanks again x
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