Hi everyone. Just to update you about the palbociclib debate : Nick Clegg (Lib Dem, Sheffield Hallam) and Paul Blonfield (Labour, Sheffield Central ) are hoping for a cross-party Parliamentary debate on the availability of palbociclib on the NHS on April 11th. Please please if you are able could you contact your MP so that they could count on their support. It would be so great if we could make this happen so that this very effective drug could be available to all it could help, not just private patients or those able to take part in the trials. Claire has been referred to Mr. Johnson who is the expert on this drug at the Royal Marsden so there is some hope - but how great if you didn't have to jump through all those hoops. Thoughts with all of you.
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My daughter Claire Molyneux was diagnosed with secondary breast cancer two years ago. She is only just fifty and has two teenage children. She was told by her consultant that pablociclib has been proved to be effective in prolonging the effectiveness of other treatments and is being prescribed privately. Its availability on the NHS was being reviewed by NICE last week but despite a huge petition started by Claire it was rejected. Claire has now enlisted the help of her MP, NIck Clegg, who now hopes to lead a parliamentary debate on this. Could you please please ask your local MP to contact Nick Clegg and give him their support. Could you please also share with me any thoughts or experiences you have with regard to palbociclib. My thoughts are with all people in a similar position to Claire and their families.
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