Breast Cancer Care Forum

Ok silver...that’s pretty strange as my hospice outreach team have said they would be able to help if need be..the onc prescribed something, but I need to try it.the team came out to my home to assess me and offered to look at my drugs...they have doctors employed by the hospice, who. I can chat privately / independently if I’m concerned about an aspect of treatment and they offer Reikhi and other therapies at the hospice if you’d like them. The team visit during a 24 hour service. ... View more

Thank you Silver,,,     i too am in pain,  tummy and arms etc....I found the hospice outreach team helpful..,think they re better t pain control, so will be askiing them    MOijan ... View more

Yes very good luck with the mri....I now have them thre monthly...and the head radiologist once told me they can tell if the cancer is active....as if it is they see water around the cell in the mri....fingers crossedxx ... View more

Hi ladies, how is the hair now? Sorry this is a bit late, but I never wash mine and haven’t lost it despite the sore head XX ... View more

Zana,,,so sorry.y   thatconfuses metoo..as pet scans use a radioactive sugar solution  which shows up the cancer   theysoak up the sugar..aas they love sugar..if a met doesn’t show up..I’m surprised.   also,, did you ask for a prognosis ?   that interest me too as they should only issue one IF you ask. They aslllo hhavve no way of knowing exactly anywayxxx     ... View more

Thank you silversx ... View more

Silver, does gabapentin work?  Have never tried it...but will if it works, someone mentioned she found  an antispasmodic helpful,can’t recall which..you could ask.   i am in constant pain, but my back and gut mostly at present.   M ... View more

I get sciatica, which feels just like that     my chiro told me to sleep with pillow between knees at night and I try and avoid hard chairs as they always. Set it off, for me as do bucket car seats   best wishes Moijan ... View more

Yes, I’m fuming about that last point..,loads of love....Mx ... View more

Hi there Zena..how lovely to hear from youxxx ’of course you are very welcome here...this the happy chat thread.   i am now on carbo, have lost my muscle strength, ache both arms, and neck...stomach aches, eye sensitivity,   Did you get all or some of those.?   i think they are treating me as triple neg...but am hoping this works.   I recall how ill you were on Paclitaxel......l hope you are better?   please keep in touch and pm me if you like...I’d love a chatxx] much love and hugs, Moijanxxxx ... View more

Stillhere have pmd you ... View more

I agree with you Siver, most have abssoluetly no idea unless c has touched them.ihave heard the buses. Comment over. Again for 18 years now...what I have said back, was,, well at least you haven’t been given the heads up that there is a ? About the rest of your life, that is the hard stuff...we tend to live our lives as we wish, until c comes in, then that innocence is gone.   my very best friend, when she heard from me that the options for my treatment.  seem less now as I’ve had many...she said, oh, firsts x died and then y...now everybody is going! I love her dearly, but was annoyed...said loudly, well..you seem to be doing ok. And she realised and reverted to the bus comment.she was sad that friends are leaving her..,I quite understood..   hopefully you havent lympoedema as people in small droves used to. Sidle up to me and say what have you done to your arm? Quite rude, you could see them coming over in shops or on trains and. ask, or do you mind if I ask you a q? I said once no questions today sorry..and got..well I was only going to ask you...,,,,   in in the end I said..shark bite!  People ARE rude,   ‘’hugs Moijan ... View more

Was using on taxol._theymust have helped a bit,, have the feet but have t used   carbo.   Diff kind of pain, worse, but  will. Have to seeEACH MITTIS AROUND 100 TO BUY AND YOUU NEEED A COOL BOX TO TRANSPOT AS HOSPTS OFTEN DONT HAVW. FREEZERRS   I. UNDERSTAND CHRISTIE USES ALL THE TIME   MOIJANSORRY RE CAps b,lasted nuisance  ... View more

Did kill my liver mets, but sadly they grew again..we are all differentxx   m ... View more

Hi girls, I have been using the cold mitts and the juries out but will let you know,   ‘’another lady suggested that l glutamine can help and I’m trying that..but check with your onc.   m ... View more

I did forget to say. Manicures can also put us at risk._ _As they push down on the cuticle hence bugs can get in at the nailbed...again all advice from my nurses   the LSN. have lists of therapists whocan offer,manual  lymphatic drainage which you’d have to pay for   best of luck   Moijan ... View more

Siver   i have lymphoedema. My hosp has a department which 1/confirms wether it is lymphoedema, 2/. Measures it regularly on a special machine, 3/shows you how to self manage, so you don’t get infections. 4/prescribes compression garments.   practically, what I’ve learned is, not to lift  with that arm.wash it am and pm moisturise as bugs can get in through dry skin if minute cracks. Appear, have my own towels and soap just for me. Protect hand when gardening.   mine has worsened over the years and cellulitis is now more frequent even with all those in place.   i hope this helps and maybe ( hopefully) it’s not permanent.   Moijan         https://www.lymphoedema.org/ Lymphoedema Support Network - LSN Home Welcome to the Lymphoedema Support Network website. If you have developed lymphoedema, you are not alone; recent research suggests that lymphoedema affects at least 240,000 men, women and children in the UK. Although lymphoedema is a long term condition, with the right information, support and treatment there is much that can be done to improve both swelling and other symptoms.  The LSN is a registered charity run by people who live with lymphoedema and is the largest information provider about the condition in the UK. This website forms part of our work and contains information for patients about the condition and the experience of living with lymphoedema as well as information for health care professionals looking to support patients with lymphoedema. Should you not find what you are looking for here then please do not hesitate to contact us. ... View more

Ff thank you    vinorelbine was easy but didn’t work for mexx   loads of love,   moijan ... View more

Thank you Sarah... iwas avoi ding a port for years, then decided to plump for one...ff and others all told me how it helped...had one put In. In About feb.....never looked back..once in no more soaking arms in sinks etc!   not every hosp here uses them tho so a+E trips are still veins and trauma. they often will put in a central line or a picc...last would limit my activities a bit so opted for port...all under skin so can swim if allowed, but I don’t    have a think and ask to see a couplexxx   Moijanxx ... View more