12-03-2012 11:40 AM
Tors - Not great timing is it!
I was about to turn 46 when diagnosed and pre-menopausal. I'd had a hysterectomy so no periods but had had blood test prior to diagnosis for other health reasons to check hormone levels.
Post chemo I was definitely menopausal for a whole 18 months. My surgeon was convinced that was it and that I should be switched from tamoxifen to an aromotase inhibitor. My Mum didn't have menopause until late fifties so I had a sneaking suspicion that my ovaries might kick back in. My Onc also didn't see it as clear cut and so they agreed I could have bloods checked every 6 months.
Sure enough 18 months later showed that my ovaries had once again kicked in - oestrogen levels had risen and FSH etc not indicating menopause at all anymore.
Here I am now at 48 and still not in menopause and still on tamoxifen. My oestrogen levels aren't that high though now so probably more like peri menopausal which I think can go on for years before actual menopause.
My tumour was 8/8 ER+ and 8/8 PR+ and I did query the need for zoladex or oophrectomy and told that tamoxifen was sufficient.
12-03-2012 10:32 AM
Ha, that's so typical! Mine returned unexpectedly the morning I was going into my children's school to make 80 pancakes!
My oncologist said he doesn't want me to have zoladex injections now as I am just 2 years out from initial dx, plus only vaguely oestrogen positive at 4/8, so the risks would outweigh the benefits. I think it would have been more of a discussion and grey area if I'd have been more oestrogen positive or they had come back more quickly after my treatment.
12-03-2012 10:25 AM
I have a tip for getting periods to return - book a romantic weekend away!! My Periods stopped in July, mid chemo, no hint of one since. Got up last month to go on my first break away since diagnosis last April to discover my period had started- lasted 3 days , the duration of my romantic break then stopped - wonderful!!
I am also only vaguely hormone positive, 4/8 I think, and was expecting oncologist to suggest the zolidex but he was happy to leave them because I'm only a bit hormone positive and he didnt think it was worth the possible side effects of the zolidex. I was quite happy with that as didnt fancy taking anything else, already on the tamoxifen.
27-02-2012 07:34 PM
Oh this is useful. i don't post on here much now but stumbled in as 3 days ago I awoke to find I had a period and thought it really odd, given my situation.
I'm 47 and not had a period since first chemo in April 2010, so almost 2 years ago. I was pre-meno at dx, had 8 FEC-T (4+4) and a year of Herceptin infusions.
Am ER neg so no treatment implications.
Kinda odd, given my age. Plus have had several blood tests to check FSH etc, all showing I was producing less oestrogen than a man.
22-02-2012 08:26 AM
I know I'm a little late (excuse the pun!) in joining this thread - but just wanted to let some of the ladies know that there is hope.
I was 30 at dx (no fmaily but was/is def in my plans)- and periods stopped after 1st chemo treatment, they didn't return at all throughout chemo and 17 herceptin, or indeed months after I finished treatment. By 18 month post dx I was assuming the worst and preparing myself for no children.
Due to the side effects I was getting on tamoxifen, my onc agreed to let me have a break - and YAY - my periods returned after 8 weeks! I now remember what a pain periods are - but what a relief to know that BC did not take that away from me along with everything else!
21-02-2012 07:52 PM
To recap....my periods stopped mid chemo, during summer 2010, and i am coming up now to 2years post dx, I had assumed they had gone forever and my oncologist had said they were probably not going to return now. But today, 18 months after my periods stopped, I awoke to my first post chemo period!
I am pretty surprised. I'm not sure how I feel. Part of me is well chuffed as I hated thinking of myself as post menopausal at 38, and it's a plus towards fertility of course. The other bit of me is wondering what it means treatment wise, as I am 'vaguely' ER +ve at 4/8, and I don't fancy zoladex or ovaries being removed.
And I also had to make a mad dash to Tesco this morning as I was totally unprepared, and today has made me remember exactly why periods are such a pain!
Just thought I'd update the thread for people using it as a resource.
Anybody else who would like to share their experiences please do so as I think it's really useful to have a lot of experiences on a specific matter grouped together in one easy access place for ladies who follow after us.
21-12-2011 09:01 PM
Im stage 4- age 32 at dx. Had periods throughout fec + tax but missed a few cycles after my 2nd tax but came on just 3months after! Also regular through out a course of 6 carboplatin + now I'm bak on chemo again, they are still going strong! So after 14 chemos, no sign of chemically induced menopause 4me. Think I've got the most resiliant menstrual cycle on the planet. Lucky me...
21-12-2011 08:52 PM
Im 42, I've just had my 3rd FEC today and im still menstruating like clockwork every 28 days, in fact I came on just yesterday, bang on 28 days from the 1st day of my last one.
My periods are usually heavy as I have a copper IUD fitted and last month was no different except I had horrendous period pains (I rarely have pains) and my back was terribly painful and I had to take ibruprofen.
This month Im having a few twinges so far and Ive noted lots of little clots which is a bit different.
Just goes to show how different we all are really. I wouldnt mind my periods stopping. Im fully intending to speak to my onc about ovarian removal later down the line as im ER +.
21-12-2011 10:54 AM
I had 3 fec and 3 tax finishing in Oct 2010. I was 38 at dx.
Last period was August 2010 and they have just returned- so that is about 16 months. Did have a little bit of spotting a couple of months ago but it didnt turn into anything. Anyway this seems more like a normal period so far.
I did notice that my flushes had died off so maybe things were starting up again. Anyway am not er+ so will have to chat to onc re the future, but want my ovaries out anyway for genetic reasons.
What a delightful christmas pressie for myself... not
24-11-2011 07:09 PM
You're welcome Claire.
Mandy, your experience sounds really similar to mine, though I am on tamoxifen and had assumed that was causing it. I can feel really premenstrual at one stage then really menopausal at another. I've just started tracking it all to see if there's a discernible pattern. I expected my periods back as I was clockwork before and am pretty surprised they are still AWOL.
24-11-2011 12:09 PM
I was diagnosed jUNE 2nd 2009 aged 36,started chemo 25th June.I had 4 x FEC and then 4 x Taxotere and i still havent started my periods.My periods before were regular as clockwork. i get the symptoms every now and then of period pains and sudden low mood but no period. When i dont have period pains i have menopause symptoms of hot flushes and night sweats!
Not sure if they will ever start again but i live in hope as i have no children ;-(
Oh and i am triple negative so no hormone treatment.
09-11-2011 11:27 AM
I finished my chemo last January. After the first chemo I became pregnant. I did abort and continue ny treatment. During chemo my perids have been stoped. They come back with tamoxifen and zoladex.I am 8 months on zoladex and tamoxifen, but periods still are with me. What I can to say in our situation the best is to stop with periods at all. If we wanted to live longer with out recurrence. But every women wants to be mother and it is so hard for young womens...to decide between...
04-11-2011 09:08 PM
1. How old you were at dx?
2. Were your periods regular or not before?
Regular, every 28 days like clockwork!
3. What chemo you had, if any?
6 cycles FEC-T (3 of each, 3 weeks apart)
4. If/when your periods stopped?
First chemo as I was injected with Zoladex first to shut down my ovaries in the hope of protecting them from the chemo.
5. If you had hormone therapy and/or the injections to keep your periods away?
Not applicable - triple negative
6. If/ when your periods came back, and if they are regular now?
They came back 6 months after chemo and are approximately every 21 days but getting closer together sometimes which I'm not a fan of!
02-11-2011 07:35 PM
You must be very surprised Tina - understand why that could rattle you. I've been period free since 2nd chemo - at 48 now and don't expect them back - maybe the couple of years between us makes all the difference. I do remember one conversation with my oncologist who said he didn't expect them to come back but he wouldn't be the slightest bit concerned if they did.