My sister had breast cancer and under went chemo and radiation, she has been in remission for 4 years now and has started bleeding extremely heavily and she has extreme pain. Is this normal?
I'm really shocked you went through all that before a biopsi....unbelieavable and so sorry for you. I was fortunate, i founf my lump, went to the GP and he said straight away it's a lump and I had official diagnosis in the same week.
About treatment, my first oncologist was a woman that told me I had to have a mastectomy and the Chemo drug they had prescribed was not the best recommended for tripple negative when from the reserach i did. I went back and requested the recommended drug, she said yes, but on the next appointment I was told the hopital body said no. Anyway I went for a second opinion to another oncologist, who I found on google (UK breast oncologists) . He recommended different chemo drugs and he mastectomy may not be neccessary if my cancer was not caused by a faulty gene. My gene tests came back negative. I wrote to an oncologist at a different hospital and asked if he would accept me as a new patient. He did and I have to say I had the best care, had many chemo sessions, decided to continue working because they managed my side effects really well. Also had radiotherapy and a lumpectomy after treatement. 2 years clear and still going.
Ladies get 2nd opinions....it helps ... I do wish you all the best.xxxx
Hi, I'm a 32 yo single mom of two girls and came across this thread in my curiosity about my missing mensi. I had my youngest in 2016 and had been pumping breast milk so lumps weren't a concern, nor was pain. But a sharp pain had me going straight to the doctor who attempted to dismiss it as a blocked milk duct but I refused to leave his office until he agreed to at least an ultra sound of my breast. A week later the day after my ultra sound the doctor called me and had me go in for mammogram, and then a biopsy immediately after. Two days later the doctor called and told me it was breast cancer. Triple negative, stage 2 so it must have developed sometime after my daughter was born. Never in my life have I ever wanted to wrong about something but I cried for about an hour. That was in March 2017. One pinched nerve, 3 surgeries 8 chemo sessions, several trips to the emergency, one burnt down house, two lost cats, several hotels, several infections and wigs later, my hair and nails are growing back and the only thing I was curious about was when I should expect my menstrual cycle. From what I've read so far it might be a couple years. I don't mind it's absence though I'm glad I had my girls when I did. Despite the difficulties they made this battle worth it. So don't let the doctor's off the hook. No one knows your body better than you do. If you feel something is off, push for results. And no matter how grim the battle field, no obstacle is impassable. Xoxoxo to those still fighting.
I have the same suspicion because I had my first child and I have no any genetic linked case of my triple negative cancer I was very healthy, I was eating good I had good pregnancy season any how after 2 month or so I noticed a lump and went to my family doctor and showed him .......and he sent me to have ultrasound the result was glatocele accumulated milk in the duct..... and i get home and start pumping ......no change ..... went back to himvand asked him by the time my lump was 10 cm. He got shocked and send me to emergency.....I went to hospital in emergency and one dotor came and checkd me, my family history and so on and he said 95% is not cancer and suggested me to have a hot pad on it and to pump as much as I could...OK....I was like....going home did what they told me. After a month or so the lump got so big..... and said I got to see specialist. I just found one doctor and he took 2 biopsies and he concluded triple negative cancer the stage at that time might 3 or not...... i did all the conventional treatment except the radiation i scared the radiation for my heart and lung.......well no occurance on the site of the mastoctomy which i will not regreat for not taking radiation .....currently my breast cancer metastesized to the liver and lung...long story short. Guys listen to your guts. No jock. Cancer is time sensitive the longer we wait to findout what is wrong to the breast pushing hard and ask as lot of specialist to see is important.
Hi I just wanted to send you a massive hug because after reading your bit about periods etc I feel you are an absolute inspiration. You did so many rounds of chemo and radiation and now everything is fine and you have inspired me so much with your positive attitude etc . What I would inspire to be . I wish you so much happiness for your future 🤗🤗🤗🤗
I had breast cancer (Stage 3+) in April of 2014...I started chemo treatments as our first course of action against my breast cancer. In end of May, I had cut my hair pixie style so that it wouldn't show as much when I started to loose my hair, for they told me it won't take long...After first chemo treatment hair loss was imminent! My period too was the next thing to go. So 30 rounds of chemo, then surgery to remove whatever that was left of the cancer. Had a month off to recuperate then started my 33 rounds of radiations! I have been in remission from cancer for almost 2 yrs now, Official on May 15, 2017. My last treatment of radiation was in the week of May 15, 2015. I just got my period back now that I am 45yrs old. I had my kids already so I was kind of hoping to fall into pre-menopause...But then even in pre-menopause, you do get some menstrual cycles in here & there...So yes, there is hope for all you younger ones out there. Still wanting a family, just be careful, make sure you keep an eye on your hormones...Make sure your doctor knows of your previous fight with cancer & survived it!!!
HER2 positive with ATM mutation and 1/2 of BRCA1 mutilation, don't ask.
1. Started chemo at 47
2. Had very regular periods my whole life.
3. 6 months of chemo, double mastectomy, radiation, 3 months of just Herceptin a 3 month break and another 3 months of Herceptin.
4. My period stopped from the first chemo treatment.
5. I had no hormone therapy.
6. 3 months after my last Herceptin treatment my period came back. It came back heavier than before but I've only had one at this point but a month has not passed since my last period.
Basically I have had 2 years of treatment in between surgeries etc. and my period came back at the age of 49. I will update as time goes on, BUT it gives hope to all.
God Bless on your journey.
thank you for your reply.
I couldn`t go to the moving forward course. i have young children. I wonder if the type tripple negative cancer is linked to pregnancy, because i had a new baby then just after a month of the bith of my latest child i lost my mum, she was really poorly, she past away from hart failiur, but also she had a rock hardness to her left side of her breast. It wasn`t diagnose because she olsa had problems with vitle organs, her hart was very week and it resulted to the poor function in other organs like kidney and liver failiur. and swelling in the body, hardness and heavyness i the breast ( i thoght it could be cancer), then at those very same time dealing with a new baby, dealing with my mothers death i felt a lump in my breast. it wasn`t as large as it was as the time progressed. i thoght it was just a milk duct, but the only difference from my experince from milk duct from my previous babies that this was not painful, and it was a bit on the upper side of the breast. i just thoght it was a milk duckt but then it did not go infact it doubled in size. then i decided to go to the doctors as i even felt it growing and moving towards my arm pit. so every one out there, my advise is if you feel any kind of lump in your breast, pease act fast and go to your doctor. it is not a joke, if you act fast you may even save your self from a major operation like mine which is the compleat removel of your breast. you can save it if your fast, thank you. good luck to every one. i`m also worried about becoming menapousal, but i feel greatful to have lovely 4 kids. i hope everyone can be able to have their child, so good luck everyone
Thank you for replying back, reading all the other comments below I'm kind of assuming that everything is alright, a few woman have there periods back while on medication, it's just I got a bit worried because been hearing different stories, will wait see if come back, so far have stopped again. Sorry that you had to have a mastectomy, I had a lumpectomy and all lymph nodes removed, mines was her 2, so had a year herceptin too, I must admit the chemo was the worst for me, the 1st 3 fec was fine a few side effects, it was the doxitacel was the worst bit, but then we are all different, my biggest fear was losing my hair, I know to some people it's not a big deal, to me I have never felt so scared to look at myself, yet it didn't bother me seeing others, I just wasn't that brave at that part. Thankfully my arm is improving, but can't lift heavy things for to long, I joined a gym just over a year ago, don't overdo it, but love using it for the pool, etc. I don't know anyone that has had reconstruction I'm sorry, did you go on the moving forward course? I found that so helpful, I have just started writing on this forum, which I find so useful and people are so nice, when I got diagnosed I was scared of going on the net, but a while after noticed this forum and always read different things. I hope everything goes well for you Leyla and everyone else that is going through all this.x
Following BC diagnosis I received chemotherapy treatment September- December 2014 am since on Tamoxifen, also aged 44 and have just started a light period today. This happened once before last September and lasted a day. I hope this will be similar and a one off.
4 years ago I ended chemo. After my first treatment my periods stopped. Now I'm a little nervous because they seem to be back, not not normal like a "real" period. Very brownish and clotty. I am experiencing the cramping like a period, and a month ago to the DATE I had spotting. I'm assuming it's back. I'm 47 years old. I'm shocked that it's back now after being gone for so long.
I'm 36, have been through FEC-T (with Heceptin) and surgery (starting radiotherapy on Monday). I had my last period in December (at that point around the 4th or 5th chemo session), then they stopped. I started again last week and it's been extremely heavy. Extremely. It's now also in it's ninth day. I spoke to one of the Breast Cancer Care workers the other day and she said that the first period back can be heavy, but - as it's Saturday! - was wondering if anyone has experienced the same, before I can get the GP on Monday?
Had breast surgery april 15 2014 the periods stopped and started to spot last month and now again this month more , started to freak out so it is nice to have a place to chat !!! a year and a 1/2 was nice and im 54 !!! this should be done, well i was hoping !!!
I was diagnosed with breast cancer in 2012 (january) started immediately on chemo. Periods stopped in March of 2012. I woke up this morning and noticed I was bleeding after going to the restroom. I'm assuming I started my period again. It's been so nice not to have this to worry about for four years. I never thought I would have my period again. It's been almost exactly four years since it stopped. Anyone else out there who's had this? AND I"M 50!
i did recieve a cycle afterwards. after i stopped chemo my period came once every 3-5 months. after 2 years it became regular (28 day cycle). i did a video on my journey please check it out: https://youtu.be/d13g9Wky4us
Hello. I am 42 and was diagnosed just over a year ago. My periods stopped after the second round of FEC, which was then followed by doxatacel. They have returned this week, 8 months after my last round of chemo. Whether I am fertile is another matter as I have PCOS and had to have fertility treatment to have my children.
Thank you for your answer,
So you recover your periode in less than 6 months , that's a good thing, even you want to put your ovaries out instead.....
i'm looking for woman, who hadn't period for more than year
merry christmas to all !!!
I had 4 x EC and 11 x Taxol from February to July. My periods stopped after 2nd EC and have just come back with a vengence. I've refused Zoladex (don't want to take another med as tamoxifen is giving me enough side effects) to chemically keep me in menopause and have opted to have my ovaries out instead.
My situation is different as I'm 41 with 2 kids and am def not having anymore.
Might be worth checking with your BCN to see when genrally speaking periods come back after your chemo regime. Take care xx
i was DG in january 2014 at 36, had 8 cycles of chemo FEC and TAXOTERE;
My period stopped after the second chemo, and still not back
i finished chemo in september 2014 so, i'm in chemenopause for 13 Months post chemo ....
is there , any one, in the same situation?
did any one, get periods a long time after finished chemo ???
i have no children, and i mariied juste before the diagnose ;(
i m taking tamoxifen ... and i'am no 37 ;
hope to have some answers
I also wasn't told about the possibilty of being left infertile by chemo until I was handed the consent form on chemo day 1 ! Luckily I had never wanted children but I still came as a shock to find the choice to have a baby was very likely about to be taken awa from me x
Hi Im 46 now, diagnoed at 43. I had a lumpectomy and axila disection for triple negative cancer. Warned I would likely end up infertile after treatment. I had 4 cycles of EC 3 weeks apart and then 4 Taxol cycles 2 weeks apart. Periods stopped after the first Taxol . 12 months later I was put on HRT but withough checking for definite that i had done though the menopause! After taking HRT for 6 months I started have very lihght / short persions so they stopped the HRT but still didn't do any blood hormone tests to see what was happening. Then nothing much happened for amost 2 years until 3 months ago, I had the most horredous period and actually went to the Drs about it. Blood hormone tests and a scan later, it turns out I HADN'T gone through an early menopause afterall (despite what various docs and specialists had said previously!) because of the chemo and hormones were as they should be for a woman my age, Oh and I aslo now have fibroiods :-( Now I'm wondering if the fibroids have been caused by the excess levels of oestrogen that must have been in my system thaks to the HRT !! Anuway, I have since had 2 more very paiful and very heavy periods and all my GP suggested was getting a coil fitter !
Sorry that was a bit longer than I intended ! I would suggest asking fora blood test to see what your hormones are up to. Rchel xxx
just read your story hope you have your period back , i havent had my period for 2 moths , worrying so much , i just engaged and we want tohave baby
having menopuse system is killing me , crying nonstop , feeling hopeless eventhouh i believe there is always a hope
so i wish your helath and your period back like i am wishing myself at the same time , i know we will
wish you the best