Member
Posts: 1
Registered: ‎18-08-2016

Re: Hair loss - 1 year AFTER chemo finished

I am 18 months post chemo for breast cancer. I am on anastrozole. Approx 2 months ago I started to lose my hair again. It had grown back as before. Then suddenly feel out in clumps. I am under a specialist and still my oncologist are convinced it is unrelated to my cancer treatment. I am not convinced. It just seems to be a coincidence to me. It continues to fall out and I'm not far off from being back to having to wear a wig.
Member
Posts: 1
Registered: ‎09-08-2016

Re: Hair loss - 1 year AFTER chemo finished

I've been cancer free for 3 1/2 years and am still losing hair. It's whole strands not broke ones. I do wear wigs which make a big difference and I'm thankful for them. I doubt our hair will ever get thicker or stronger. I'll take this over cancer. Try a Jon Renau wig. They are pretty and last years if taken care of.  i cut bangs on my wig which I have always worn my hair with bangs all my life. I wear my wig all day but I'm going to try some turbans and scarf wraps to use in the evenings. E-bay has some cute ones. I'm 67 and just glad to still be alive.

Member
Posts: 1
Registered: ‎15-07-2016

Re: Hair loss - 1 year AFTER chemo finished

so i used herceptian and tomoxifen back in 2009-2011. I still havent got my hair back. My oncologist told me its unlikely mine will grow back fully. Im sorry to say Im 52 and wear wigs 24/7/365 unless i wear a hat. To describe my hair regrowth would be like "male pattern baldness", the crown is weak. But I dont care as much as I used to. I've used different hair products and tried several suggestion, to no avail. The hair that did come back which is all good on except the crown, so when it came back it was all white... So I dyed it my natural color dark brown and I like that better and it looks fuller, but I know its not growing back like pre cancer. stress can be a factor also for hairloss, menopause, and tomoxifen/heceptin cocktail are likely my causes for no regrowth on the crown. Hang in there, really our hair is not as important as my whole body health and not getting cancer again. I do feel jipped by not having my whole head of hair. Now my eyebrows and lashes are weak, my leg hair is thick!
I dont know where they got the format to make the paragraphs. I guess you could just follow the report you first got from doctor.
cif
Member
Posts: 22
Registered: ‎02-05-2014

Re: Hair loss - 1 year AFTER chemo finished

[ Edited ]

Yes, tamoxifen and AI's do cause hair loss.  Yes, my ono's say no - but they also said there is no such thing as chemo brain, my neurologists laughs at that since they knew me before chemo when I took my Dad in.  In fact they were so alarmed at the change it has been deemed perm disability, I cannot remember how to do what I made a living at, and family felt I had adapted enough to remind me this past Christmas I had an older sister I used to check in with at least once a month.  So HOW do I know it causes hair loss, because each time I stop tamox for a month or so for medical reasons the hair grows back, then thins out again when I resume them (with tamox, too new to arimedx to know).  So I make sure to use rogaine when it comes it and never stop it (lessons learned, it will drop out if you stop it).  If you do herceptin for a year, your hair will come back more slowly then others that had chemo.  Also, there seems to be a three month cycle where eyebrows thin out then grow back for a couple of years after last chemo/herceptin.  In addition to hair thinning the eyebrows do too. 

 

Can someone tell me how to get the paragraph like below to be part of my profile like I see others have? and maybe correct my words to correct abbreviations:

Biopsy and diagnosis Sept 2013

Left two tumors 1.5, 2.5 cm ER+/Her2+++

left mast reconstruction Nov 2013  stage IIb

chemo/herceptin Dec 2013

Last chemo April 2014

set of girls May 2014

replace girls Nov 2014 due to capsulation

Last herceptin Dec 2014

Tamoxifen Jan 2015

March 2015, nearly bald on top of head

June 2015 take month off tamoxifen, hair grew back, new set of girls, start rogaine this time before resuming tamox

no meds Dec 2015 (and life was grand and speach started to improve and exercise didn't hurt)

Anastrozole Jan 10 2016

Jan 18 2016 sudden 2.5cm cysts in left, biopsy results pending (no past hist or family hist of cysts assume from AI)

Feb 6 2016 pain from AI's unbearable, bruises above each painful joint, lost use thumbs, thrush mouth, more, ugh  Degree of crawling and tingling/numbness in wrists/fingers/feet almost back to chemo 6 days

 

Member
Posts: 1
Registered: ‎08-12-2015

Re: Hair loss - 1 year AFTER chemo finished

I am currently having the same problem. My hair is very dry and falling out. I had TCH-The chemotherapy drugs Paclitaxel (Taxol) or docetaxel (Taxotere), carboplatin and Herceptin. Do you have the same or similiar drugs combination?

 

I don't know what to do, I just turn 45 this month and greatful to God I am still alife but I never seen balding woman or woman with bald patch that are normal (like middle age balding man is common).

 

I am hinding my balding head under a hat, even indoor.

 

Any one got any tip?

 

I hate wig cause they are hot and itchy, so I don't wear one.

Member
Posts: 2
Registered: ‎12-10-2015

Re: Hair loss - 1 year AFTER chemo finished

Hi..I had the same hair loss after the first cycle of chemotherapy. .it started to get dried like grass and fall gradually as soon as I touch it..I didn't need to shave it.. I kept it as baby hair.. and started wearing ice cap or a weg..it is hard but not the end of the world. .The important thing is to keep faith in God..that will reward you for your patience in this test..
Member
Posts: 837
Registered: ‎25-08-2014

Re: Hair loss - 1 year AFTER chemo finished

I lost all hair including body hair.  I didn't use cold cap and am fortunate that it has come back thick and very grey.  Had it cut twice already and finished chemo last Christmas Eve.

 

try massage to the head regular and note the different chemos work differently.  If the chemo has saved your life and God willing that it the case is hair so important?   Winter is coming an we can wear some love.y hats.

 

 

 Keep massage going and don't dye too early if at all.

 

pamx 

Member
Posts: 1
Registered: ‎15-09-2015

Re: Hair loss - 1 year AFTER chemo finished

This is the first time I have ever been on a forum and it is 1 and a half years after finishing chemotherapy and radiotherapy. I always had very fine hair before I was ill and was quite self conscious about it. After chemo it was a slow comeback for my hair and when it did come back to my horror the colour had changed from blonde with bits of silver in it to pure grey. I took myself swiftly to the hairdressers when it was 1 inch long and got them to dye it a light caramel blonde. Since then my hair has grown so fast and is shoulder length now. It looks absolutely amazing. It seems much thicker and shinier and there is plenty of it.  This is my experience and I just wanted people to know that sometimes there can be a positive outcome from such a vile experience.

Member
Posts: 2
Registered: ‎29-01-2014

Re: Hair loss - 1 year AFTER chemo finished

Sad to say, my hair is still thin on top and the crown. I suppose after I'm done taking Aromasin it has a chance to thicken.
Member
Posts: 1
Registered: ‎16-08-2015

Re: Hair loss - 1 year AFTER chemo finished

I am 11 weeks out as well...Massive shedding, however I used the Chemo Cold Caps, so I had kept some hair. Has this happened to anyone? DOES the shedding ever stop and new growth begin? I am so thin now. Im wondering if its because of the Cold Caps.
cif
Member
Posts: 22
Registered: ‎02-05-2014

Re: Hair loss - 1 year AFTER chemo finished

I see several 2014 posts regarding hair loss a year later but no posts following up as to whether things got worse, hair remained but thin, or got better.  Can some of you gals provide a followup.

My last chemo was April 1 2014, last herceptin Dec 1014.  About 4 months after last herceptin and 2 months after start of tamoxifen my hair started falling out, I'm nearly bald on top.  Is so cruel, my hair came in so thick and pretty like it was before chemo between Dec and Feb and now I look like I did after second chemo treatment.  You are a year ahead of me in treatment, can you tell me if the hair on top of head came back or not? Ideas and suggestions?  I am also sending you my prayers and wishes for great health and happines

Member
Posts: 179
Registered: ‎21-03-2014

Re: Hair loss - 1 year AFTER chemo finished

Hi. I am 11 weeks post chemo and have also had surgery but waiting to have radiotherapy and concerned my hair is not growing back and I am due to start Anastrozole soon. If Anastrozole has the effect of causing hair thinning what are the chances my hair will grow back at all. Beginning to think I may be wearing a wig forever.

Member
Posts: 90
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

My hair grew well after chemotherapy but it thinned again when I was on Herceptin and Anastrozole, especially at the front. I'm waiting to see if now that I have finished Anastrozole it will improve (but not holding my breath!)
Member
Posts: 2
Registered: ‎29-01-2014

Re: Hair loss - 1 year AFTER chemo finished

I just got conformation that my hair is getting thinner after seeing it in my comb. I finished chemo one year ago and Herceptin 4 months ago. In a strange way, I feel better that I'm not the only one this is happening to. Then at the same time, I'm extremely sad. I've waited so long for my hair to grow.
DF
Member
Posts: 1
Registered: ‎01-11-2013

Re: Hair loss - 1 year AFTER chemo finished

13 months after stopping chemo, my hair started to thin again.  It had grown in evenly and nicely and was just getting to a point that it didn't look like chemo-grow back.  My head began to hurt, as it did with the original chemo fallout, and then withing 2 weeks I probably lost about 25 to 30 percent of my hair--mostly on the top and crown of my head, although it has thinned all over.  It's still shedding, though not at such an alarming rate.

 

My oncologist said it wasn't from chemo.  The pcp said it probably wasn't from chemo.  The dermatoligist said that he was 95 percent sure it had something to do with chemo, giving about 5 scenarios, before telling the oncologist that he thought it was from stress--like after pregnancy.  After 5 kids, I know what the stress-related shedding feels like.  This felt like chemo loss.  

 

Seeing that there are others who are asking this same question makes me think that it is more common than one might think.  When someone talks about a symptom and doctors and everyone else tells them it's not happening, they usually give up and don't talk anymore.  One thing I've learned from my experience is that just because it's not common or the doctor hasn't heard about it, doesn't mean it's not happening.  So, if you've suffered from this or are still suffering, please let us know.  You're not alone and you're not crazy.  

 

To the people who have posted that it's probably not from chemo, please don't say that unless you have actually gone through this.  We need support, not doubts.

 

Thanks.

Member
Posts: 128
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

Hi Tors,
when my hair fell out with the chemo it was gone totally within 48hrs, including every other hair on my body!!
This time its only head hair that seems to be going, not as quickly as before but quick enough for my liking! lol
I'm trying not to fiddle with it, its become a bit of a paranoia thing now and i feel as iff i have to test it to see if its still falling out - and yep, it is!
Lou x

Member
Posts: 2,384
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

maybe it is alopecia, which can be caused by stressful events, and it certaibly sounds like you have had a stressful time. Have other hairs on your body fallen out? Have they followed the same pattern as when you lost hair after chemo?

Member
Posts: 128
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

Hi, they have referred me to Toni & Guy lady, they did ask the Dr to see me at the hospital but his conceren was that as i was coming to the end of my treatment i might get left out the loop and he wanted me seen/ followed up regularly so have to go back to my GP.
I wasnt too worried when my hair fell out cos of the chemo but now it's a different matter!!! we'll have to see what happens!
Lou x

Member
Posts: 813
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

Hi again Lou... ah yes, it's the "E" in FEC (epirubicin) that is so tough on hair. I finished 6xEC (without the "F") in Feb.
I would guess that your recent hair loss is not related to your course of chemo, but this is just a guess... posssibly the strong antibiotics?? I hope you get a helpful answer, I would suggest onc. and/or GP who might be able to refer you to a hair-loss specialist??

Member
Posts: 128
Registered: ‎01-05-2012

Re: Hair loss - 1 year AFTER chemo finished

Hi, 6 x FEC,18 Herceptin and Tamoxifen which is ongoing
x x
The nurses did check the side effects of Tamoxifen, all the usual but not hair loss