30-04-2017 02:23 PM - edited 30-04-2017 02:26 PM
Hey there. I've just had my fourth year clear, and am back at my old job working in a developing nation. I was diagnosed at stage 3. I did chemo, radiation, had 2 separate mastectomies, a complete lymphedectomy on my right side and a hysterectomy.
i feel healthy and full of positivity. It all seems so far in the past now....and having survived all that, I feel grateful and full of optimism.
Its a difficult process....but there are moments of profound awareness and gratitude.
I am not the person I was before. I'm better.
21-04-2017 10:20 PM
21-04-2017 12:47 PM
21-04-2017 11:24 AM
i have just been diagnosed with tnc.Had surgery..tumour under 2cm and not spread to lymph nodes.. I feel very alone at the minute and for my own sanity i will have to stop googling..I start chemo on 4th May..feeling very anxious about that but know i just have to get on with it.. Trying to remain upbeat.
14-04-2017 07:12 PM
Hi Annie you sound very positive it's good your family are supportive too . Have a great holiday don't google anymore and come back from your holiday fighting fit .we are here if you need to sound off . I recommend you join forum for people starting in May 17 and there are forums for younger ladies as well . Take care DEN X
14-04-2017 08:04 AM
02-04-2017 07:45 PM
I had a biopsy done on 2-1-17 and showed positive for TNBC-IDC. Had surgery on 3-1-17, lumpectomy and 2 sentinel lymnph nodes were clean. My tumor was smaller than 2cm. but not too much smaller. I had my first chemo (Adriamycin & Cytoxan) on 3-20-17. The side effects have been extremely challenging. I got my chemo on Monday afternoon and was fairly okay until Wednesday afternoon. I think I started having nausea sneak up on me and I was not taking the anti-nausea meds like I was supposed to, because I have a hard time taking Rx drugs because I have never had to before and I don't like putting bad stuff in my body. So Wednesday afternoon and all day Thursday I felt pretty yucky. You can keep in touch with your clinic and they can have you come in and they put fluids and medications in your body to help with side effects. I have a port in my chest that they use. Important to keep up with anti-nausea meds the first week after chemo. Everyone is different and every day can be different. But if you are feeling bad the clinic can often put things in you to make you feel much better.
28-03-2017 06:42 PM
Hi all I was diagnosed with tnbc mid January and had left mx end of January tumor was 3cm no node or vascular involvement finally started chemo yesterday FecT as a previous history of lung disease and further tests also went for a second opinion with Pro Justin Stebbings if anyone is concerned about their treatment I would thoroughly recommend him . I have not had any feelings of sickness as yet and no other side effects as yet but a bit of light headiness as this is the first day after chemo is it usually later in the process that she start
27-03-2017 04:19 PM
JBS your feelings are normal once you get treatment plan you will be able to think straighter everyone is different but we are all frightened at first and you will have good and not so good days but don't read negative posts it's like childbirth some people enjoy talking about the bad bits not the good bits .none of us wanted to be on this forum but we are so being positive is the way to go we are here and will help you if we can as. Pam says there are other forums to join good luck with your mri keep in touch DEN
27-03-2017 08:35 AM
You are not alone and some people do survive this. I'm two years in remission and Bel on this site is 15 yrs. There is part of this site for people just like me and young mums. You may want to join that part as well.
pam x. UK
27-03-2017 08:31 AM
You will need to listen to your body. I had a really bad with sickness, hospitalisation during chemo for sepsis. Then an emergency operation to remove infected cyst. You need to keep clear of bugs so you need a plan if carrying in working. This can be agreed with your employer as you are now covered by the disability rights act (if you live in U.K.). You may need to work ffrom home if possible.
As A says this is doable but we are all different. I know if people losing nails during Taxol but to prevent this paint nails dark shade as this helps.
I couldn't work during treatment as I was just too ill. That said in I'm my late 50s and that may account for that. I was extremely well before diagnosis and it came as real shock so one can look and feel well but have cancer.
maybe you could set out a plan A and plan B with employer. Your GP will sign you off sick if you can't go to work and remember Doctors receptions are full of sick people with bug. So insist you wait in a private area or ask for first appoint of day.
some people sail thrust and some don't. This will not affect your outcome but you and those around you need to understand things can change suddenly if you get unwell.
The hospital where you are being treated should give you information about needed A&E services as you will need to skip to front of que if unwell as your immunity will be low at times. Hence my getting sepsis.
good luck with treatment. You can do this with support.
27-03-2017 03:12 AM
I was just diagnosed TNBC IDC a few days ago. I've been scared out of my mind, especially when I get to looking at stuff online about it. I'm 39 with 3 beautiful little girls, which is making it so much harder worrying about their future and how they'll be so scared when they find out. I can't stop my mind from racing around, thinking I have cancer everywhere, and that I'll be back every year for reoccurence. MRI is tomorrow. Haven't eaten or slept decently since the first doctor said, "yup, that lump feels like cancer" a few weeks ago.
I just wanted to tell you that this forum has been so helpful to just read. You are an amazing group of women that are flowing with this whole thing so well. I'm in the US, but the local forums are just freaking me out with all of the bad news. Thank you for keeping the positive attitudes going here. There are people like me who are reading this, trying to get a grasp on their new reality, and are still too afraid to step out and join a community. Please keep as much good news coming as possible. I know I'm going to need all of the positive news I can get.
27-03-2017 12:03 AM
Hi Williams 500. We are all different in the way we are during chemo. I had 6 FEC-T and carried on quite normally. Whilst on the FEC I found I felt tired and got thrush in mouth and a metallic taste which made me unable to taste food. The steroids I took for a couple of days before chemo and 2 days following chemo were a problem because I couldn't sleep. You'll probably find yourself posting on here at stupid o'clock for this reason. I also felt emotional for 2 days after finishing the steroids. I never had to take the sickness meds but got mild indigestion. Whatever s effects you get there is a remedy. You need to drink lots of water before during and after chemo as this flushes the toxins out. When I was on the T part of chemo I had the dreaded allergic reaction so had to go to another hospital for Abraxane as this drug wasn't funded by my hospital. I had a side effect called peripheral neuropathy which you might need to Google. My finger and toe nails lifted but I am almost a year post chemo and these have fully recovered. There is of course the hair loss which was the worst part for me but this like everything is temporary. To sum up it was all very doable and I still did normal things on a daily basis. Remember your experience will be unique to you but you will hack it. It will help to join the chemo monthly threads with people who are doing this with you. You will share very useful information and tips to combat side effects and make friends along the way. I didn't work through my b/c journey as it was mastectomy then chemo followed by node clearance then rads. I was off work for a year with pay so had lots of good recovery time. I've been back at work since last September and loving it. You will get through this and it may be easier than you are thinking and the time flies by you will see. I hope this helps you to see this is very doable and I wish you well Williams 500. Anne xx.
26-03-2017 09:28 PM
26-03-2017 07:02 PM
Hi Vicki. Thanks for the tips. My GP prescribed cyclizine and this has helped. The nurse told me it builds up over time as well. My chemo was Tuesday and have finally felt a bit more normal today so hopefully it is wearing off now. Even enjoyed my Mothers Day lunch with my girls. At least I will know the pattern for my second cycle now and can plan a bit accordingly. It's a whole new world but I am finding this site great for support and tips! X