Hi George and Caroline,
Thanks for your kind comments and support it's nice on here because you all get it and it makes me feel less isolated.
Good to hear you all planning some fun in your lives ladies without that we would feel even more sad. I am hoping to be well enough to go to my grandaughters school concerts I just love those events. They are 3 1/2 and 5 years old, both attending school in the Welsh Medium so are bilingual and correct my poor Welsh. Boo Hoo!. Best of all they sing in both English and Welsh it is so lovely to hear the kids all singing away in the choirs.
In the meantime I hope you are all getting as much fun as you can.
Be well and keep smiling.
Hugs to all
Just catching up on your posts as I have been cape-unwell-bed. I'm sure you will be okay on a reduced dose Carolyn52. My oncologist told me this week it was not dose dependant for good results so I hope you can remain on it for a' long spell' and get the benifits.
I went for my 3rd cycle on Monday but when my oncologist saw me she decided to suspended me for 2 weeks of cape and delay my Denusomab too. I will be reviewed then and we will decide how I will move forward. Which is good because I have options and my onc has more stuff in her arsenal if cape is not for me. Yippee!
On the positive side the drugs had already started to reduce the mets in only 2 cycles, so for you girls who are uncertain it works - it works great. So keep taking the peachy pills.
My next plan is to join the Christmas Shopping with the others in this group as soon as I can, just in case the shops run out of goodies.
Happy shopping to you all and by the way remember you need to treat yourselves too, I always feel better after Retail Therapy.
Hugs to all
sorry to hear that your bloods are low. I do know of a lady whose doseage was lowered twice because of early problems when she started Cape. She was fine for several months and then they raised her dose because she put on weight, so you could still have a long spell on the pills.
Was your dosage lowered by much ?
I am full of cold at the moment....getting better though.....so taking the rest and spoiling myself a bit
Hi everyone...so good to see such a busy thread.
went to pick up my next cycle of tablets yesterday....which is my fourth. I am very pleased to say that my TMs have gone down again by nearly half,,this is the second reduction in six weeks. The nurse was nearly as pleased as I was.
hope everyone else has such good results and that you are as well as you can be
Hi Everyone, had my review today and the Onc sent me for a chest xray as I am so breathless all the time. Fortunately he said the xray was unremarkable but is giving me an extra week off to see if I feel better during the coming week and also I requested extra "time off" as I'm going to an "Elvis" show in Coventry on Sat night at Grosvenor Casino. I think when go next Friday for my review and next prescription the Onc will reduce my dosage and then maybe I'll feel a bit better and have a bit more energy.
Thanks to all of you who responded to my previous posts...its a real booster to hear from you and hearing all your positive attitudes. When I was first diagnosed I wouldn't plan for anything thinking its not worth it as I probably won't be here. But now I have changed my mindset as I hear of so many long term survivors. In my area we meet every month, organised and held at the Hospital and lots of the girls there had their diagnosis years ago and are still going strong !
Hope you all have a good weekend,
Love Carolyn xxx