01-11-2018 05:43 PM
01-11-2018 05:20 PM
01-11-2018 01:38 PM
27-10-2018 12:43 PM
Welcome back Carolyn! So glad to read that you are back on the forum and your son's wedding went so well. Family is everything when the chips are down, aren't they? Cape seems to be working well, so pleased for you.
I called Cape a wonder drug when I was on it! I had very few side effects and it worked for 2.5 years as it has for many others. I think because it is called chemo we expect it to be brutal but I much preferred it to my current trial drugs. Wishing all the Cape crusaders many more months of good results x
27-10-2018 09:04 AM
How lovely to have enjoyed your sons wedding Carolyn. As you say, something maybe a few months ago you didn’t think you’d be able to. I have been in that situation many a time and somehow my treatment has been far more effective than I ever thought it would be at the time. So there’s always hope. And you now have the twins birthday to look forward to as well. Our grandson was 1 a couple of months ago and it was so nice to be part of this landmark. Apart from the joy he brings me (well, except for this morning when he is here and causing havoc as ever!) he also brought great joy to my Dad and that is a big comfort for all of us at this sad time. Thanks for your kind wishes.
I hope your recent post is one of many and it’s good to see that you are tolerating Cape so well, it is quite the unsung hero of the chemo world!
26-10-2018 06:50 PM
26-10-2018 06:10 PM
How lovely to see you back on the forum, Carolyn, you have been missed - a lot! So pleased you are getting good results for Cape as well, I do hope you managed to celebrate.
ps I was about to PM you anyway but saw you had been on here already so that was a lovely surprise xx
26-10-2018 03:11 PM
26-10-2018 05:14 AM
22-10-2018 10:21 PM
Hi Graceland girl .I've just joined the group and was interested in the fact that you've just started cape treatment. I finished 5 cycles on it about 8 weeks ago and though I was really ill after the first one (dose needed lowered) after that I stayed well. Did buy into taking special honey to prevent nausea though. My sister had heard about it on breakfast tv. I've never coped well with the prescribed anti-sickness meds and the honey really worked for me. I'm seeing my oncologist next week to see what effect the treatment has had and I'm keeping very positive about it. Diagnosed with my secondaries March this year 5 years exactly after my initial cancer. The battle continues!!!!
19-10-2018 03:08 PM
18-10-2018 10:32 PM
18-10-2018 09:01 PM
Welcome though sorry you find yourself here. What a fab attitude you have especially in light of unwelcome prognosis from idiot onc,
Take care, wishing you a long time on cape.
18-10-2018 08:41 PM
I haven't used this forum before, so I hope Im using it correctly. I had intravenoue chemo for about 12 months but was taken off it due to my blood not recovering. I went on to tamoxifen but the TMs and scan showed it was no longer working, so I'm on Cap now. I'm on my 2nd cycle on max dose of 2300 x 2 daily. I don't feel too bad, just lacking energy and the sole of my foot feels very tender. Its very comforting reading other posts as I don't feel so alone in coping with incurable cancer. The saying "Living with Cancer" rather than "Dying from Cancer" is something that I think about every day. I don't think this disease has stopped me from doing anything I would normally do...except I dont do so much housework ! But I still enjoy cooking and eating, although I dont seem to be able to eat as much as I used to ! My original breast cancer was diagnosed in 2011 and I had a lumpectomy and radiotherapy. Although I continued to have mamagrams that were always ok, in 2016 after a visit to my GP she discovered lump under my arm and after tests it was shown to have spread to my liver and was inoperable. The surgeon was very offhand when he gave me my diagnosis...with a shrug of his shoulders he said I had 2 to 4 years survival. That stayed in my mind and all I kept thinking was there was no point in buying new clothes or planning for anything as I probably wouldn't be around. I have since been told that I shouldn't have been given a time limit as no one knows and everyone is different....so now I've started buying again !
14-10-2018 11:41 AM
14-10-2018 10:54 AM
Hello again - glad u had a good trip George, I’ve been to Galway twice and it poured with rain both times. We found good places to eat both times and had lovely evenings though.
I started my cape three weeks ago and have just started my second cycle- the first one seemed to go okay, not much in the way of SEs. Saw the Onc on Friday for my second cycle and he said that the bloods I had done showed low white blood platelets, he asked me if I would be willing to wait around at the hospital whilst they repeated the test, which I did and they had gone up enough so he gave me my second prescription.
Also gave me my scan result which was a bit daunting, it appears that the bone mets in my spine have infiltrated the bone marrow, which could be why the platelets were low, also the peritoneal mets are more apparant. However he did say that this scan is a baseline to see how the cape affects things...I had it just as I was starting my first cycle and had not had any treatment for 6 - 7 weeks. I was on Zomera and Letrozole for almost five years which reduced my TMs and also kept them stable. Since then have tried E and E which had no effect. Pacitaxetol which kept me stable for the 16 weeks duration but when I stopped my TMs increased dramatically- also tried Tamoxifen but the side effects were awful so I had to stop it.
Yesterday morning I had awful diarrhoea but after taking a couple of imodium it has been okay since. My eyes are a little sore, red and dry, but I understand that can be a SE as well. Really hoping that I can get some stability with Cape
love to all, hope you’re all as well as you can be.
12-10-2018 10:13 AM