Hi Carolyn and George
just back from oncologist appointment, reduction of cape by 20% not sure what that brings it down too, maths was never my strong point!
Apparentley tumour markers are down from 2900 to 2600. Not sure what this means but he said it shows it’s working. Does anyone else have tumour markers recorded my last oncologist never used them, so I’m in the dark a bit.
Feeling more positive today, scan on 28th Jan, results 7th February. Hoping it’s good news then and will then continue on 3 more cycles.
well it’s my 38th wedding anniversary today so going to have relaxing day with hubby. Film watching and chilling I think.
Hope all well with everyone else.
Big day tomorrow see oncologist to discuss level of cape and side effects! I’ve spent the day snuggled up in bed with a hot water bottle as felt really unwell and it’s my week off!
Tomorrow is also our wedding Anniversary 38 years can’t believe it, not sure there’ll. be much celebrating going on. Never mind hope I’ll feel better.
No scan results as that’s not till after 3rd round.
Keep up the good work cape crusaders, it really helps me to hear about others experiences! And I don’t feel so isolated.
Hi Bob,Bel,Carolyn and all on Cape. The only side effect i have had so far are finger tips peeling and cracking and very sore, hospital have prescribed me some cream. i know that Cape is working for me because i have obvious lumps in my neck which are going down, also had blurry left eye, and losing teeth on left hand side, the fog is clearing, still numb face though but that is from brain. it is a drug which seems to work on a lot of people though so worth pushing through. xx
Hi Bon and everyone else
i was very poorly before going on the peachy pills(as Carolyn calls them) but once into them felt better. I’m just about to finish second round, whilst I feel better than I did before taking Cape, the side effects can take a bit of getting used too and managing.
worst for me is fatigue, and dodgy tummy!!! I think it’s a case of getting dose right from what I’ve read on here. However I started on 2150 twice a day, but have lost a lot of weight so hoping that the dose will be reduced and I will find more manageable this week after seeing onc.
im not sure what others think but I far preferred having one dose of chemo every 3 weeks intravenously than all this pill taking!
Im on to 17-18 pills a day now and can’t get my head round it all. Luckily my OH is brilliant and managing me.
Hoping for a nice day today as we are expecting 2 new goats next week, pandora and Tiffany, so need to complete there house today.
Hope everyone has a happy Sunday.
Hi Ramade and everyone else.
We have rescue animals too. We rescued 5 Alpacas, and 2 rather large pot bellied pigs, called Arthur and Bramble. We also have 15 rescued chickens! Alongside these rescued animals we have 15 runner ducks, 3 geese, and two goats called Pandora and Tiffany. We also have a small flock of 22 sheep. 2 rams called Barry and Kevin who we hand reared and now think they are dogs!
Animals are therapeutic but hard work, my OH works very hard looking after them, as I’m all but useless now as I get worn out so quickly. I do partipate in the growing of the veg, as we’ve set up a reclining sun lounger in the poly tunnel so I can take a break any time in there.
The last few days have been a bit up and down, tummy not coping very well and I’ve had to resort to Imodium, hoping that next week my dose will be reduced and things will settle down a bit. I’ve also lost 10kg, so I’m sure this will mean my dose can be lowered.
Interestingly I get the runny nose side effect in the 2nd week of cape! Hoping that everyone is well and side effects in 2019 are more manageable.
Definitley feeling more positive today!
Hi Carolyn. I googled the question and apparantley platelets and neutrophils ‘are partners in bacterial destruction.’
So not exactly the same but they work together..
I get them from a mobile unit one cycle and then from the hospital the next cycle. I have Zometa infusion every six weeks which is at the hospital so they fit that in with my new cycle. They do blood pressure and weight when I am at the hospital, but not when I go the the unit.
I also feel worse on my week off - Nausea, diarrhoea and shaky. Also lower energy levels, still go for my walk around the village but hubby always comes with me now.
As you say things are building up, I don’t know how long before they give us an extra week off, I expect that also depends on SEs
Won’t complain though since I know that others have worse SEs
Hi everyone. Glad to hear Bel that your bloods were okay and that your TMs are better
I start my 6th cycle tomorrow,
had bloods done yesterday and then a phone call from the hospital this morning to say that my neutrophils were too low for me to be given my next cycle.
the hospital is about an hours drive away but we have a mobile chemo unit which comes to our local hospital and every other cycle they let me get my chemo from there
The options were to leave it for a week or to go to the district hospital where they would do another blood test to see if they had gone up...they told me that they were just marginally low...so I decided to go through and have the blood test. It was a two hour round trip but they did the test straight away and the new results were through in about an hour. Thankfully they had gone up to acceptable levels so they gave me my next lot.
They also told me that TMs had decreased again from 122 to 111 so pleased with that
This is the second time this has happened with my neutrophils and I asked if there was anything I could do to make a difference but they said -‘No it is just one of those things’
I have started taking multivitamins and vit c yesterday, and I am on Adcal already so hoping the extra vits will help
hope you’re all back to ‘normal’ now after the Christmas break
Hugs to all
Hi Bel, we have a smallholding aswell and we have rescue animals, i find them really therapeutic, i expect you do too.
al the best
Thank you for your lovely supportive replies. I had my bloods done yesterday and they were ok, my tumour markers were better than they had been, my liver function was slightly worse than before.
Anyhow I feel a lot better, I’ve decided to go dairy free again as I wonder whether that’s making me feel so poorly. I started eating dairy after a 5 year break when I started cape because my calcium levels were so low and I can’t tolerate any calcium pills.
so today I’m hoping for a good day, no anti sickness and less morphine and I hope to be able to go for a walk around our small holding to chat with the animals!
Again thanks for your support, I’m really appreciate it, particularly as I don’t know anyone else on the same treatment as me.
Have a good day everyone.