25-11-2018 09:12 AM
24-11-2018 06:16 PM
24-11-2018 03:38 PM
24-11-2018 02:58 PM - edited 24-11-2018 02:59 PM
Hi everyone...so good to see such a busy thread.
went to pick up my next cycle of tablets yesterday....which is my fourth. I am very pleased to say that my TMs have gone down again by nearly half,,this is the second reduction in six weeks. The nurse was nearly as pleased as I was.
hope everyone else has such good results and that you are as well as you can be
24-11-2018 12:29 PM
24-11-2018 11:04 AM
24-11-2018 10:38 AM
23-11-2018 03:52 PM
Hi Everyone, had my review today and the Onc sent me for a chest xray as I am so breathless all the time. Fortunately he said the xray was unremarkable but is giving me an extra week off to see if I feel better during the coming week and also I requested extra "time off" as I'm going to an "Elvis" show in Coventry on Sat night at Grosvenor Casino. I think when go next Friday for my review and next prescription the Onc will reduce my dosage and then maybe I'll feel a bit better and have a bit more energy.
Thanks to all of you who responded to my previous posts...its a real booster to hear from you and hearing all your positive attitudes. When I was first diagnosed I wouldn't plan for anything thinking its not worth it as I probably won't be here. But now I have changed my mindset as I hear of so many long term survivors. In my area we meet every month, organised and held at the Hospital and lots of the girls there had their diagnosis years ago and are still going strong !
Hope you all have a good weekend,
Love Carolyn xxx
23-11-2018 12:15 PM
23-11-2018 11:10 AM
Hi I hope you dont mind me joining your thread to find out more about Capecitabine. I have just been diagnosed with Secondary BC after 9 years and several local recurrences. Due to start Capecitabine in two weeks so finding the advice very useful.
23-11-2018 07:40 AM
Well I have just completed my first cycle and have to say that on the week off I felt wonderful and was pleased that some of the minor SE Ihad ie feeling wobbly and ligt headed disapperared as I had convinced myself that the cancer had spread.
It is amazing how over active the brain becomes in the middle of the night as I lay awake !!
The onc is sending me for a bone scan just see if there is any other activity so fingers crossed that comes back clear.
I am now trying to get to the point where i feel able to make plans in the future and I spoke with the onc about travel. He dismissed some of my ideas such as a cruise due t high risk of infection but yet said that a trip to South Africa to visit family may be an option. He has advised waiting to see how effective this treatent is but i so hope that I am able to make this trip.
I'm hoping that as i start my second round that my energy levels don't dip and have some nice activities planned.. I'm heading over to Harrogate today and very much looking forward to it..
I think it was Lynne that mentioed a possible meet up in Yorkshire for coffee and if this were to go ahead I would love to meet some of you ladies.
Take care everyone
22-11-2018 03:14 PM - edited 22-11-2018 03:16 PM
Hi again everyone. Just finishing my third week off and off to pick up my fourth packet of pills tomorrow. This week has been as bad as when I am taking the pills but compared to many my SEs have not been too bad. Hope that doesn’t mean the cape isn’t working - tho I have read that SEs don’t affect results. Hoping to get a TM reading tomorrow which will give me further reassurance- they’re have been on the downward trend so far.
Graceland Girl hope that you’re feeling better and that they reduce your dosage which in turn reduces your se’s
and George so pleased that you are remaining stable after 15 months makes us all very hopeful. I agree about planning as well, I have always been a planner - it is our Golden Wedding on Boxing Day and we are planning a party in March.... when life isn’t so busy and the weather is better...can’t expect people to travel at such a busy time of the year. I have sent out ‘save the day’ invites. The pub we want to have for the party gets booked up very quickly so daren’t leave it too long.
Best wishes Carolyn and and Happy girl.
Just wondering where everyone lives I am in Yorkshire.... close enough to anyone for a coffee somewhere???
Hugs to all
22-11-2018 01:06 PM
22-11-2018 12:29 PM
21-11-2018 10:09 PM
20-11-2018 08:12 PM
20-11-2018 07:53 PM
Hello Graceland Girl,
You are not alone with these SE's, I have just finished my 2nd cycle and my breaks seem much the same as yours without the breathlessness. I do take an antisickness pill in the morning even when on a break because it helps with the nausea, so it might be worth a try.
Pleased to hear the Doc will review your dose it seems to help some cope better with SE's from what I've read of other Cape ladies on here, so fingers crossed things improve for you soon.
I feel the hardest thing is to continue treatment knowing it makes you ill. But we have to focus on the possible improvements and that's what helps us keep going.
Hugs and keep going
20-11-2018 05:54 PM
I'm on my week off from cap after completing my 3rd cycle ( 2150 x 2 a day ) I definately feel worse when on the break, which I thought would be the time to feel better. I am so tired, breathless get stomach ache together with the big D don't want to eat and consequently cannot stand drinking all I should on an empty stomach as it makes me feel sick. I went to the Hospital today for my blood test and went to the Emergency Assesment Room where they put me on a drip for 2 hours. The Dr I saw took lots if notes and he said my Onc might reconsider my dosage when I have my review on Friday.
In the meantime hope all who read this are feeling well and I look forward to hearing if any other ladies have the same SEs. By the way...do we have any men in this thread as I understand men also can be affected by breast cancer.
Love Carolyn xx
20-11-2018 04:04 PM
Hi again everyone, hope you’re all as you can be. It’s cold, wet and miserable here today in Yorkshire.
like you Carolyn I feel the cold more on Cape, I was on Letrozole for almost five years - didn’t have hot flushes but never felt really cold.
Hope that the liver biopsy goes well for you Bel. and that you can start your cape and start to feel better.
This is my week off on my third cycle - Finished Friday and had a bit of the big D for a couple of days, also really tired and a bit shaky but today I feel much better. Will be collecting my fourth cycle on Friday after my bloods on Thursday, so fingers crossed for good results. Had low neutrophils after my first lot but when I asked the nurse if there was any supplements or diet changes which would help she said that there wasn’t. - just one of those things.
all the info about doseage are very interesting.. thanks for that everyone
lovey phone call from my son today who says not to Christmas shop for food, him and his partner will shop and arrive on Christmas Eve and he will cook on Christmas Day- so I will just get a few extra treats in.