04-12-2018 07:40 AM
03-12-2018 08:45 PM
03-12-2018 08:24 PM
Caroline my scan is at 6 as well. I will be sending you positive vibes. I really think a scan results ban should be enforced in December!, I always get December flaky brain without this added stress. Good luck tomorrow x
03-12-2018 08:13 PM
03-12-2018 05:44 PM
03-12-2018 03:50 PM
Hi Cape Ladies,
So glad to hear that on a whole you are all managing well on cape and getting good results and good luck Carolyn for your scan on the 8th.
I am now on my 6th round of cape which I have found very easy to tolerate and none of the side effects that I was expecting. I have a scan tomorrow, which is the first one since starting on this chemo.
My worry that is keeping me awake at the minute is that I have just found a few lumps in my neck, I am sure that they haven't always been there and have just recently developed. Do you think this will be an indication that the Cape is not working on other mets ? The constant worrying is really getting me down. If the cancer has spread to neck lymp glands/nodes can they be treated from anyones experience ?
Big hugs to everyone waiting for results and feeling poorly xx
03-12-2018 03:15 PM
03-12-2018 11:29 AM
03-12-2018 10:04 AM
03-12-2018 08:43 AM
After my initial melt down that having spent the whole Summer on Docetaxel for a splattering of liver mets (onc’s words!) only to find by 1st October liver Mets had spread extensively through my liver, I am at last calming down! ( well a bit anyway). I also requested a Chang ego oncologist as I’d been with same one since primary in 2005.
for the last couple of months I’ve felt so lethargic and unwell, on so many pills and potions I haven’t managed to do much but today I’ve turned the corner.
LOTS OF POSITIVE thoughts from my lovely family and friends as I join n the CAPE CRUSADE! so this morning ive popped my first “peachy pills” as Carolyn calls them.
im hoping for not too many side effects but I seem to be having quite a biggish dose. 2150g x 2 a day? I weigh about 10 stone. So not sure if that’s why!
Im also waiting for the results of liver biopsy from last Thursday. Very surprisingly I found this quite painless! A night in hospital to recover but no discomfort from site.
Please any advice help on cape would be appreciated, Ive been booked for 3 cycles then scan, so hopeing that it works well for me.
Good luck to all other cape crusaders. I’m going to be busy today wrapping all those internet xmas presents that it’s all to easy to buy when your sat at home!
Fairies and elves seem to have decorated my house already!!
02-12-2018 10:25 AM
02-12-2018 09:24 AM
hi Carolyn, i agree with you about the grandchilden they really take your mind off...
i had no joy with e/e either and with everything else failing they are suggesting cape so i was glad to find this thread thanks to our late friend Moijan.
i hope you are feeling better now i missed you when you were off line.
hugs Ramade x
29-11-2018 04:53 PM
29-11-2018 02:27 PM
Hi George and Caroline,
Thanks for your kind comments and support it's nice on here because you all get it and it makes me feel less isolated.
Good to hear you all planning some fun in your lives ladies without that we would feel even more sad. I am hoping to be well enough to go to my grandaughters school concerts I just love those events. They are 3 1/2 and 5 years old, both attending school in the Welsh Medium so are bilingual and correct my poor Welsh. Boo Hoo!. Best of all they sing in both English and Welsh it is so lovely to hear the kids all singing away in the choirs.
In the meantime I hope you are all getting as much fun as you can.
Be well and keep smiling.
Hugs to all
29-11-2018 09:18 AM
28-11-2018 08:53 PM
28-11-2018 08:36 PM
Just catching up on your posts as I have been cape-unwell-bed. I'm sure you will be okay on a reduced dose Carolyn52. My oncologist told me this week it was not dose dependant for good results so I hope you can remain on it for a' long spell' and get the benifits.
I went for my 3rd cycle on Monday but when my oncologist saw me she decided to suspended me for 2 weeks of cape and delay my Denusomab too. I will be reviewed then and we will decide how I will move forward. Which is good because I have options and my onc has more stuff in her arsenal if cape is not for me. Yippee!
On the positive side the drugs had already started to reduce the mets in only 2 cycles, so for you girls who are uncertain it works - it works great. So keep taking the peachy pills.
My next plan is to join the Christmas Shopping with the others in this group as soon as I can, just in case the shops run out of goodies.
Happy shopping to you all and by the way remember you need to treat yourselves too, I always feel better after Retail Therapy.
Hugs to all
28-11-2018 07:57 PM
28-11-2018 07:51 PM
sorry to hear that your bloods are low. I do know of a lady whose doseage was lowered twice because of early problems when she started Cape. She was fine for several months and then they raised her dose because she put on weight, so you could still have a long spell on the pills.
Was your dosage lowered by much ?
I am full of cold at the moment....getting better though.....so taking the rest and spoiling myself a bit
28-11-2018 06:41 PM