16-06-2018 06:52 PM
16-06-2018 11:23 AM
I have just finsihed my first cycle of Capecitabine. I have never felt so awful. I think I had all the side effects listed but the worst was the nausea and exptream tiredness. It was all I could do to go from bed to sofa. Now having had a few days off I am starting to get energy but I can't walk due to the massive fluid blisters.
My consultant has reduced the does by 20% but I am not confident that this will make enought difference.
Has anyone experienced similar.
06-06-2018 12:43 AM
06-06-2018 12:27 AM
06-06-2018 12:21 AM
05-06-2018 06:23 AM
05-06-2018 04:25 AM
04-06-2018 09:44 AM
I have lung mets diagnosed Autumn 2016. At that time I had a really persistent cough - couldn't get through a sentence without coughing! My initial treatment was Letrozole and, after a few weeks, as the tumours shrank, the cough resolved. It has never returned.
03-06-2018 10:22 PM
03-06-2018 10:15 PM
03-06-2018 09:51 PM
03-06-2018 07:52 PM
I've just started on Cape a couple of days ago....interested to know if anyone had a bad cough due to mets in their lungs and if so did the Cape help. (My onc thinks that my lungs are being irritated by the mets there giving me a horrible cough. Have been prescribed liquid morphine which helps).
Keeping evrything crossed that the Cape works!
03-06-2018 06:07 PM
03-06-2018 05:03 PM
03-06-2018 03:19 PM
03-06-2018 07:09 AM
03-06-2018 02:46 AM
Sorry to hear your news about recurrence and secondaries. Wishing you all the best and sending hugs.
I took Cape for 20 months and and had a few SE in the beginning but after reducing dose to 1500mg twice a day i found it very doable. My main issues were constipation which was probably exacerbated by other meds and fatigue which may have been caused as much by the cancer as it was by the Cape.
I actually gave up work but I probably could have carried on as my employer was very good about time off for hospital appts and flex working when the fatigue was bad. In the end though I was lucky enough to be able to afford to stop and that was the right decision for me.
Good luck, let us know how you get on.
02-06-2018 11:27 PM