Hello again everyone. Interesting to read about everyone’s weight gain losses. I lost about a stone and a half on the EE combo which didn’t work for me and gave me dreadful mouth ulcers . I have put about half a stone back on, but ONC still mentions me looking thin. I am within the Bmi range for my height so don’t worry about it too much.
I have intermittent diahrea which usually lasts a day....but it tends to be one or two explosive sessions (sorry TMI) and then I am fine for the rest of the day. Happens every few days and I am trying to see if it comes with any particular food but it seems random. I try to eat little and often, but fitting in with pills and husband - who is a three meals a day man - I have adopted your rice pudding pot for my evening pills, seems to be okay.
I am half half way through my 6th cycle and my fingers are dry and sore but the udderly cream helps.
off to see the GP in half an hour, hoping to persuade him to prescribe me some mild sleeping pills, sometimes I am awake nearly all night, and then off all day. Will see what he says..
love to all
Hunger is something I don't experience. Would be good if it did. Most of my clothes are too big.
love to all Bon xx
Thanks for replying Carolyn, i looked in the mirror this morning and thought oh no now i've got skin cancer aswell. i feel relieved that it's a side effect and l'll talk to the oncologist aswell next time i see him. i scrolled back and see someone, i think Angelfalls wants to compile a list of side effects because our group are certainly finding a lot more than is described on the packet. Glad you had a good lunch, i find Cape makes me hungry and i'm piling on the pounds but,you know, i just don't care, i have ordered larger size trousers from Damart!
all the best
Hello all you Capes, i now have brown and red patches on my face, they came suddenly so i'm guessing they are a side effect of Cape, Anyone else? i look a fright!
hugs to all
Hi Carolyn and George
just back from oncologist appointment, reduction of cape by 20% not sure what that brings it down too, maths was never my strong point!
Apparentley tumour markers are down from 2900 to 2600. Not sure what this means but he said it shows it’s working. Does anyone else have tumour markers recorded my last oncologist never used them, so I’m in the dark a bit.
Feeling more positive today, scan on 28th Jan, results 7th February. Hoping it’s good news then and will then continue on 3 more cycles.
well it’s my 38th wedding anniversary today so going to have relaxing day with hubby. Film watching and chilling I think.
Hope all well with everyone else.
Big day tomorrow see oncologist to discuss level of cape and side effects! I’ve spent the day snuggled up in bed with a hot water bottle as felt really unwell and it’s my week off!
Tomorrow is also our wedding Anniversary 38 years can’t believe it, not sure there’ll. be much celebrating going on. Never mind hope I’ll feel better.
No scan results as that’s not till after 3rd round.
Keep up the good work cape crusaders, it really helps me to hear about others experiences! And I don’t feel so isolated.
Hi Bob,Bel,Carolyn and all on Cape. The only side effect i have had so far are finger tips peeling and cracking and very sore, hospital have prescribed me some cream. i know that Cape is working for me because i have obvious lumps in my neck which are going down, also had blurry left eye, and losing teeth on left hand side, the fog is clearing, still numb face though but that is from brain. it is a drug which seems to work on a lot of people though so worth pushing through. xx
Hi Bon and everyone else
i was very poorly before going on the peachy pills(as Carolyn calls them) but once into them felt better. I’m just about to finish second round, whilst I feel better than I did before taking Cape, the side effects can take a bit of getting used too and managing.
worst for me is fatigue, and dodgy tummy!!! I think it’s a case of getting dose right from what I’ve read on here. However I started on 2150 twice a day, but have lost a lot of weight so hoping that the dose will be reduced and I will find more manageable this week after seeing onc.
im not sure what others think but I far preferred having one dose of chemo every 3 weeks intravenously than all this pill taking!
Im on to 17-18 pills a day now and can’t get my head round it all. Luckily my OH is brilliant and managing me.
Hoping for a nice day today as we are expecting 2 new goats next week, pandora and Tiffany, so need to complete there house today.
Hope everyone has a happy Sunday.