24-12-2018 01:48 PM
21-12-2018 08:33 AM - edited 21-12-2018 08:34 AM
Woohoo Carolyn on your fab scan results. You can enjoy Christmas without that cloud of scanxiety hanging over you 😘
Hi to all other Cape crusaders, wishing you all great results from the peachy pills and a happy Christmas .
Ps great news from you as well Stillhere xx
20-12-2018 05:07 PM
20-12-2018 03:26 PM
So pleased for you, Carolyn! Stable is great so have a lovely Christmas, when else can we overindulge just a bit? I'm not medical but have read lots of forums, Cape seems to be effective at lower doses and my hospital does 1 week on/ 1 off. They say they get the same result.
Just had my 3 monthly scan result, I'm stable Mabel too, phew! My trial has worked since April 2016 so I'm feeling blessed x
20-12-2018 11:21 AM
20-12-2018 08:57 AM
19-12-2018 08:46 PM
Carolyn that’s such good news, I hope you are pleased . I had results today too, all stable and he said my tumour markers were 63, does anyone Else know their markers? I was really hoping that the cape was kicking but and shrinking everything but I know I should be pleased with stable. The onc did say that this chemo didn’t cross the blood/brain barrier, I thought it did but must have read it wrong.
Hope me everyone is doing well, you are all so amazing x
19-12-2018 04:39 PM
17-12-2018 11:40 AM
16-12-2018 11:01 AM
Hello Wee Vee, i am on day 10 of my first cycle and have no side effects yet, i was told that if i got diarrhoea to inform the hospital but to take immodium and they would only stop the treatment if i had severe diarrhoea even taking immodium. i tend to lean more towards the constation side of things normally but we'll see. they can give you cream for sore hands and feet, avoid wearing socks as much as you can.
i do hope this helps and good luck to you. i feel this treatment is already working for me and it is fair to say i have had a long line of failures so i intend to try anything rather than stop. you have only 3 days to go of this cycle. i am off it for 2 weeks instead of 1 because of Christmas and the onc said that wouldn't make any difference. o xxx
15-12-2018 08:45 PM
Hi, I am on day 11 of my first cycle of capecitabne. All was good until yesterday and now suddenly all the side effects have kicked in. I woke up last night with diarrhoea which has now settled, have sore hands and mouth ulcers. Anyone else had a similar experience? My oncologist told me to phone the chemo helpline if I had severe diarrhoea and they would probably advise me to stop but instead I have reduced the dose for the last few days to see if that works. Just wondering if anyone else has had a similar experience?
15-12-2018 09:31 AM
Hi Carolyn. my daughter has sent me some Macmillan/ Greene king recipes for Christmas for people who have difficulty with eating or swallowing, they look really scrummy, i will be getting hubby onto that job pretty soon. I have to physically hold open one side of my mouth to put food in but then it,s fine. Good luck with your scan results, it's not the time of year to have that sort of worry.
13-12-2018 12:29 PM
12-12-2018 05:04 PM
i often read that ladies have problems with needles, bloods taken etc, , which is what I had for several years, however earlier this year I had a port a cath fitted, its brilliant and I don’t get problems at all.
A lot of hospitals don’t offer the option unless you asked, which I did and they arranged to have fitted quite quick. (I only learnt about it from a fellow chemotherapy patient)
Contrast for scans go in, bloods out and chemo in. Once used a small plaster on and off I go.
over the summer I as able to swim etc as all that’s visible is a small bump on my chest and no external tubes.
The last straw for me was when they had to take bloods from my feet, very painful and slow and bruises horrendous.
im sorry if you already know about this but I didn’t so thought might be worth a mention here and help someone else having similar problems that I had.
good health to all. X
11-12-2018 11:32 AM
11-12-2018 07:38 AM
Morning all, hope you are all coping.
Carolyn, thanks for your reply i thought that might be the case with the brain. They are not talking about wbr yet but they are going to biopsy the neck lump because i have to physically hold my bottom lip down on the left in order to eat. Whole apples are out as i'm sure you've found. i think i'll have to ask my daughter to mash my food up as she does for the little ones lol. how are your twins by the way.
hugs Ramade x
10-12-2018 08:33 PM
I’m a week in on first round of peachy pills and apart from feeling slightly nauseous in the morning, I’ve not been too bad. Liver pain has started to ease off as oramorph kicks in. Nurse said to maintain pain relief not try too get on top of it once too bad, so at the moment that’s what I’m trying to do.
still waiting for biopsy result.
Is this normal, whatever is normal, start to cape. I’m not sure what to expect!
good luck to all and stay well. X
08-12-2018 07:49 PM