22-05-2018 11:20 PM
22-05-2018 10:56 PM
22-05-2018 10:33 PM
22-05-2018 06:28 PM
22-05-2018 01:35 PM
22-05-2018 09:50 AM
Hi everyone, thank you for your advice. Just finished my first cycle so have now got a week off tablets. I’m seriously thinking about going to see my daughter and returning to work, going to wait and see what bloods are like next week. My oncologist wasn’t too keen with me going to Greece last year so hope he will be ok this year.
19-05-2018 05:22 PM - edited 19-05-2018 05:25 PM
Hi Toby joe, I was on capefor21/12 and wish I’d been more adventurous...wanted to go back to Oz, which would have been quite possible...other than I was studying art at uni and also my partner didn’t want to go...,so kept putting it off...now I’m on hv chemo most of the time and that has limited my options.,,,you sort your insurance, go and travel——beiing really careful tho....but GO🤗🤗🤗🤗.
19-05-2018 07:03 AM
19-05-2018 01:00 AM - edited 19-05-2018 01:04 AM
HiNicky, my onc said they used to use vit b6 for pn, but found that it worsens it.....sorry.xx
16-05-2018 08:13 PM
Thanks all for such a warm welcome. Hi Tatyana, I was diagnosed in March 2016 and also had fec-t with partial responce. Followed by a lumpectomy in Sept then lymph nodes removed in Nov. Radiotherapy in Jan 17 and a mastectomy in May, then Gemcarbo in Aug. I am also in the same situations as to whether or not the cape is working but I'm not sure what they will put me on next as I have already been on gemcarbo. I also have lymph nodes that are affected and inoperable. Good luck for your scan results next week. Mine is now confirmed for the 21st. Hi Mulligans, with regards to the SEs I'm not doing too bad. I have sore hands and feet which come and go, I have vitamin B6 for this and am also using lots of hand cream. I have felt sick a couple of times but this has passed.
16-05-2018 05:33 PM
16-05-2018 05:17 PM
15-05-2018 10:57 PM
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15-05-2018 05:43 AM
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14-05-2018 08:33 AM
I completely back up what George and littlelizzie have said about living with SBC. I have been living with it for over 10 years now and during that time have travelled many times both in Europe and further afield. The main thing is to get travel insurance and there is a very good thread that lots of us have added to. It is more difficult and expensive to get insurance for secondaries but it can be done. Have a look at it. Having said that when my daughter was living in Paris for 3 years I didn’t take insurance out for every trip as it would have been too costly (at the time very few if any companies were offering annual policies for SBC) so I used to travel with my EHIC card and a general travel insurance policy which came with my bank account which covered all the other aspects such as travel delays etc but not my SBC. I also continued to work after my diagnosis for several years because I enjoyed working with the people at the company I was at (I didn’t love the job as much but the people made it worth it!) but then gave up work when the company changed hands. I did get another job which I really enjoyed but the very nature of it, visiting different hospitals and a change in treatment, meant I had to give it up. I have made the most of my time now I don’t work and get out and enjoy doing things I want to do. Having SBC certainly stops you ‘sweating the small stuff’!
13-05-2018 10:47 PM
I am new to this and was just wondering if anyone has an experience of capecitabine with triple neg bc?
I have been taking it now since the beginning of Feb, I am on cycle 5 and take 1950mg twice a day.
Not sure yet if it is working waiting for a CT scan date w/c 21st.
13-05-2018 06:24 PM