I had a dose reduction immediately when I started Capecitabine back in 2013. I continued to have stability in my bone mets for the 18 months I was on it and also shrinkage in my liver mets in that time. After 18 months a scan showed slight progression in the liver mets which is why I moved to a different treatment.
It's all down to a balance between not suffering too many side effects and getting results from the dose you are on so tweaking it is fairly normal. In fact when I started it my oncologist said that you are usually started at the maximum dose to see how you tolerate it but most of her patients moved down to a reduced dose and this was almost always the case in her experience.
Enjoy the week off although sometimes you can feel a bit worse, as other ladies have reported. I found it took me a few cycles of Capecitabine for my body to adjust to this new treatment regime so didnt feel great however after that I felt pretty good all the time I was on it.
Well done Racer, yes Cape used to make me very sick in the beginning....hope tomorrow is a better dayxx
Lovely hear from you again, racer! Sorry to read that the nausea is still troubling you. Enjoy the good days, and take it easy on the others. That was very thoughtful of your son - shame you weren't up to it, but I expect he was just glad to do somethong for you.
Hugs, and best wishes. Barton.x
Oh, London, poor you! I know that feeling (although not recently, luckily!) - the feeling as if you are walking on burning coals mixed with ground glass! Really nasty. Plenty of cream is the answer, as others have already said. I used to use Vaseline, with cotton socks on, but you have to keep your feet up as much as possible as you tend to slide around in your slippers otherwise! I now use Nivea Express Moisturiser instead as it soaks in nicely. However, while your feet are still so tender you will need to keep off them as much as possible. Then take it gently for a while. Hopefully it is a side effect that you won't get again.
I take the mushrooms as capsules so no taste. Babsy xx Racer, they say having a fighting spirit helps prolong life and you have buckets of it, so all the very best xx have you checked out the website www.canceractive.com? Might be worth a look .
Sorry Moijan, havent been on for a while. Musherooms still having their effect. Had blood test today so will be interested in results as I've managed to pick up some kind of nasty virus. Started last Wednesday and I'm convinced I picked it up after oxygen therapy, perhaps the mask hadn't been properly cleaned. Haven't needed a blood transfusion either and my haemoglobin levels were low at my last test. Fingers crossed.
Well done for going for a walk. Why not soak your feet in warm salt water for a while, then massage in some cream - udderley smooth or anything mild, then put them up for the evening...if they arent red...they will surely settle downx
have nothing sensible to say today, and as you know im a bit of a prankster! So reining myself in xxxx
have a great weekendxx
Hello Helen, lovely to hear from you! Also, wonderful news that you are doing so well on Cape, especially after those dire warnings from your medical "professionals"!
Glad it went well, George!
I have hospital this afternoon to pick up my next lot of pills (as long as blood ok). No clinic this time but see Onc again in 3 weeks for following cycle. I should, hopefully, have a CT scan soon (promised for after this next cycle) to see how the Christmas break has affected things.
Hugs and best wishes to all.
Hello George, hope the staple removal went OK? Glad your pain is manageable, after what must have been a major op, by just taking Paracetomol!
Racer - hope you are doing OK. Just wanted to let you know we are all thinking of you. Post when you can, but don't worry if it's too much at the moment.
Hope everyone else (lurkers and all!) are doing OK. Hope that doesn't sound pushy - don't mean it to! If you can't or don't want to post, please don't think you have to. I just want you to know that we all think of the quiet ones too!
Hugs to all. Barton.x