01-04-2017 11:18 AM
01-04-2017 10:33 AM
Your post has given me some hope then that I may still be able to somehow access palbociclib. Please could you give me the name or trial number of the trial that you're on?
01-04-2017 10:21 AM
I'm 52 with two sons,..like your daughter. I wanted Palbociclib, and managed to get onto a trial. I researched options and took a suggestion to my oncologist. She then got the ball rolling and contacted the Royal Marsden. I had to pass a number of health tests and meet criteria, but I have shown it can be possible. I will lobby my MP,
20-03-2017 08:11 AM
Thank you for your post, I will happily contact my MP to request his support in this debate. My situation is similar to Claire's in that I am unable to be prescribed Palbociclib on the NHS and not eligible to be included in current trials as I have been prescribed Letrozole since October 2016. I do not have private health insurance and to purchase privately seems prohibitively expensive.
I feel so sad that there is a drug with proven efficacy available but out of reach for most of us to whom it could make such a huge difference.
20-03-2017 07:33 AM
My daughter Claire Molyneux was diagnosed with secondary breast cancer two years ago. She is only just fifty and has two teenage children. She was told by her consultant that pablociclib has been proved to be effective in prolonging the effectiveness of other treatments and is being prescribed privately. Its availability on the NHS was being reviewed by NICE last week but despite a huge petition started by Claire it was rejected. Claire has now enlisted the help of her MP, NIck Clegg, who now hopes to lead a parliamentary debate on this. Could you please please ask your local MP to contact Nick Clegg and give him their support. Could you please also share with me any thoughts or experiences you have with regard to palbociclib. My thoughts are with all people in a similar position to Claire and their families.