05-07-2018 12:10 AM
Where did you hear that about thc? I hadn t heard thatxx
If it’s true, then the onc likely wouldn’t know? As there have been no trials as far as I know in uk?
maybe contact a website in US to ask? I’m sure a lot of us would like to know!
goodluck and hugs
03-07-2018 11:31 AM
Morning ladies x
Well after the shock I’m feeling strong and positive just waiting for an appointment for radiotherapy.
I was just wondering what you all thought of CBD & THC oil ?, I asked my oncologist and she said she is not against it but not able to advice, I’ve heard it’s the thc that can kill the cancer cells, but my primary was oestrogen breast cancer which I finished my treatment only in Apri and apparently thc is fuel to the fire for oestrogen receptor which I’m scared if I start using the oils it my come back.
Found out 2 weeks ago I have several nodules in my brain I’m feeling great in myself, just don’t know what to do about the oils if a oncologist is saying she is not against surely it’s helping ?
02-07-2018 08:44 AM
01-07-2018 05:01 PM - edited 01-07-2018 10:10 PM
No worries, I too book in this country for the same reason.
wondered how the carbo was, as am destined to visit that soon. What side effects?/ did you get nutrapenic and need to visit a+e ?
love and hugs..M😸💜😎
01-07-2018 04:25 PM
27-06-2018 05:12 AM
26-06-2018 11:46 PM
Well the good news is I don’t have it in my bones but the little buggers have got into my brain, waiting to start radiotherapy,so let the fight begin......
love karen x
16-06-2018 12:10 PM
I wonder if you can give me some advice ?
I feel like I’m being a nuisance and hypochondriac with doctors and work colleagues,it started with hip problems mainly at night struggling to turn over in bed and getting in and out of cars, it seem to start after having a mastectomy in January. I could cope with the hip but one morning I woke up and my lower back was in agony struggled getting out of bed could not stand up straight the doctor prescribe codeine 15mg & paracetamol which really didn’t help,the 30mg codeins were too strong, after a week the back pain eased off but now its back!! Plus side pain but I think that is coming from the hip, I really struggle to get up from my sofa the pain is that bad with certain movement. The doctors think it’s muscular, so does the breast consultant,I’m having a bone scan on Thursday so hopefully it is muscular!
It it really helps reading everyone’s stories I actually don’t feel like a hypochondriac ha.
Hope we you are doing ok You are such a positive lady.
16-06-2018 02:31 AM
Hi Ann! Oh gosh the vision loss in your eye must be hard to adjust too. It probably messes with your balance too. I imagine having constant care must be annoying. I'm a caregiver for a lady who had a stroke. She hates all the people on top of her. Sometimes I tell her I will go outside her apartment and sit in the hallway with her door open so she can be alone for a bit. I'm allowed to leave her to go for groceries. She looks forward to that time. I haven't had carboplatin but did have capecitibine for 2 years.I know it's supposed to cross the blood/brain barrier, but I have no experience with that. Not sure how well it does. I hope your eye isn't causing pain and any swelling being kept at a minimum. My arms have stretched across the pond to give you a big hug. Hugs are the best! FF
14-06-2018 07:28 AM
Just adding my thoughts and hugs to the ones you’ve already received. I’m sorry to hear about your latest update about your brain mets and really hope that the treatments can help with the SEs (of brain mets) and that you are getting the support that you need closer to home.
12-06-2018 10:19 AM
It's Emily here from Breast Cancer Care.
I'm really sorry to hear your update. I'm hoping that the treatments help, and you can get a bit steadier on your feet.
Ann, I just thought I'd let you know that if you want to chat, there's an online private Live Chat this evening 8.30 - 9.30pm (it's every Tuesday) if you'd like to talk to other people who are having treatments for a secondary diagnosis too. You can register here or drop me a Forum message if you need any help.
Wishing you all the best
11-06-2018 08:54 PM - edited 11-06-2018 08:57 PM
Hi Ann, just popping in from lung mets. So sorry to hear your news. Obviously very shocking for you, and I don't know what to say, but couldn't just ignore this post. So.....sending a very big, very gentle hug, and hoping that there is some experimental, or new research at the Marsden that will help you. X
11-06-2018 07:30 PM
11-06-2018 06:01 PM
As with Charys I have no experience of what you are going through, but I wanted to add my hope that they are able to sort something out for you to help.
Sending you hugs