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Kadcyla

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Re: Kadcyla

Hi Gaunts!

 

The first dose is a long one............for me 90 mins and then 90 more observation.  All was fine, I'm glad to say!  Next dose on Tuesday, which I'm told will be only 30 mins.  Good luck tomorrow!  If you've had previous chemo this one is definitely more gentle.  Will be thinking of you. 

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Re: Kadcyla

Hey magicdragon I am new to here too. Starting kadcyla tomorrow so we are all quite new to it. There seems to be plenty of positive experiences so we csn share those together x
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Re: Kadcyla

Hey magicdragon I am new to hear too. Starting kadcyla tomorrow so we are all quite new to it. There seems to be plenty of positive experiences so we csn share those together x
Member

Re: Kadcyla

Hi All!

 

Newbie here!   I started Kadcyla on the 6th of this month.  Felt really tired for a couple of days, had "flu legs" on day four, but have been pretty ok since.  

 

My BC has mets to liver, but had been controlled after a course of Docetaxel and then Herceptin for around 18 months.  The Herceptin has decided to give up the ghost, so this is our latest attack!  My liver mets had gone from "barely there", to 3.2 cm in the six months between scans.  Pretty scary, so hoping that the Kadcyla will help.

 

I am sorry for just talking about myself!  It's my first post and will reply and be more interactive once I feel my feet here!

 

Have been reading your sometimes inspiring posts for ages, and glad to be no longer a "lurker"!

 

Good luck, ladies, in all that you fight. x  

Member

Re: Kadcyla

Blimey you have been controlling it for ages then which is brilliant to see. Im 12 months in but like I say i have really only just finished primary active treatment in may so this lung mets sort of come from nowhere!! Im only in a little chemo unit so very friendly xx
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Re: Kadcyla

Kent Oncology centre, Maidstone.
Been toing and froing there roughly every 3 weeks for the last 13 years!! My oncologist is like my mate now!!
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Re: Kadcyla

Whereabouts are you being treated Revels?
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Re: Kadcyla

😘
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Re: Kadcyla

Thats good news. I too am just watching tele trying to find the breath to do something. First cycle tomorrow so will let you know how I get on xx
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Re: Kadcyla

Hooray!! That is fab to hear.
Day 2 and I'm feeling ok, bit achy but nothing worse.
My breathlessness has been much worse, not sure if it's the drug side effects, or the war currently waging in there, or my lack of movement, I was fairly horizontal yesterday, didn't feel ill, just a bit tired and happy to watch rubbish in the tele!!
All in all I'm ok!
Stay in touch ladies. Xx
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Re: Kadcyla

Even more great news. I just want to be able to breathe again and have some kind of normality so hopefully this drug will do the trick xx
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Re: Kadcyla

Hi both, I have had my second cycle of kadcyla and side effects have been very minimal. I feel well and am continuing to work full time and do everything as normal. I know it's early days, but there are ladies at my hospital who have remained well on kadcyla for three years! Even better, the lymph nodes in my neck, which resulted in my switching from herceptin to kadcyla have significantly reduced/resolved already - amazing! Good luck to you both. I hope it has fantastic results for you. Xxxxx
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Re: Kadcyla

Thats good to know. Im pretty breathless too at the moment can just about make it to bathroom and back. Big hugs and keep us up to date xx
Member

Re: Kadcyla

Hi,
Had treatment this afternoon and am feeling fine, quite breathless, but that's normal for me at the moment, am hoping it's because there's warfare in my lungs currently!
Nothing exciting to report, it was all good.
Xx
Member

Re: Kadcyla

Ok we can go through it together. Glad to see your managing your symptoms. Good luck. Let me know how you get on xxx
Member

Re: Kadcyla

Hi, no useful advice as I'm starting Kadcyla tomorrow!
I was diagnosed with lung mets in 2006 and have had various different treatments over the years and have stayed stable up till now.
I'll let you know how I feel over the next few days.
Good luck. Xx
Member

Kadcyla

Hello there. I have only finished active treatment for primary breast cancer in June and have just been dealt the blow that I have lung mets! I start Kadcyla on Thursday and dont really know much about it. I have already had a mastectomy and a course of fec - t followed by 15 sessions of radiotherapy. Gutted is not the word. Any advice anyone may have is nore than welcome x