Member
Posts: 325
Registered: ‎21-07-2017

Re: German clinics

Member
Posts: 2
Registered: ‎30-04-2018

Re: German clinics

Hi all it eoyld seem that most who have gone to hallwang have tnbc has anyone gone who is triple positive?
Member
Posts: 1
Registered: ‎27-04-2018

Re: German clinics

Hello,

Could someone give me advice about hallwang,

we are thinking treating our father there.

But we are afraid with all the controversy found on internet.

And No doctors I've been in touched knows this clinic and look skeptical?

You can pm me srs75017@gmail.com

Thanks a lot

 

Member
Posts: 1
Registered: ‎28-02-2018

Re: German clinics

Hi, I'd like an recommendation on how to pick these type of clinics. So far, I only ever heard of veritalife or Unique Access Medical, since it based in Thailand and also Germany.
Member
Posts: 1
Registered: ‎16-03-2018

Re: German clinics

Bonjour Joshmomm;

Mon épouse est dans la même situation que la votre. Ceci dit, les métastases sont encore très localisées sur un poumon. C'est une récidive précoce d'un TNBC. Nous sommes en contact avec la clinique Hallawang et nous sommes très interessés pour poursuivre leur traitements. Cependant, nous n'avons pas un budget suffisant, c'est pourquoi nous essayons d'obtenir une partie des traitements chez nous en France. Je souhaite prendre contact avec vous pour avoir plus de renseignements sur les traitements de la clinique Hallwang. Il est vrai que, dans le cas du TBNC métastatique, nous avons eu de très bon retour.

Pourriez-vous prendre contact avec moi? Votre expéreince pourra probablement beaucoup nous aider.

Bien cordialement.

vivissol

Hi Joshmomm;

My wife is in the same situation as yours. That said, the metastases are still very localized on a lung. It is an early recurrence of a TNBC. We are in contact with the Hallawang Clinic and we are very interested in continuing their treatment. However, we do not have a sufficient budget, which is why we are trying to get some of the treatments at home in France. I would like to get in touch with you for more information about Hallwang Clinic treatments. It is true that, in the case of metastatic TBNC, we had a very good return.

Could you contact me? Your experience will probably help us a lot.

Best regards.

vivissol
Member
Posts: 4
Registered: ‎04-05-2017

Re: German clinics

Hello kathya!

Have you visited the clinic or asked them about it? In Germany they have different regulations on medical treatment and can offer treatments also outside of trials. From my own experience, it is hard to get into trials sometimes, but still the drug tested might be the right one for. I have done lots and lots of research on the inernet and talked to many doctors before letting my wife visit the clinic, and now I am totally convinced that this was the best decision. Sometimes you have to think outside the box. Obviously, there are no wizards and cannot promise anything (would be unprofessional if they did), but they can offer a chance to patients in need while no other doctor offers anything any more. In my experience, many doctors, including oncologists, are really not up to date with sciennce and new, even approved!, drugs. We have been disappointed by so many doctors on our path, sometimes they did not even offer drugs and treatments, just because they did not know they were available. It is really a pity. At Hallwang clinic, bothe the scientific and clinical background and know how is really strong. Obviously, this comes at a cost, but we are very grateful we found this clinic. I can only recommend it to cancer patients out there.

Member
Posts: 4
Registered: ‎04-05-2017

Re: German clinics

[ Edited ]

Hello there!

I would definitely try the Hallwang Clinic, I am still amazed about what they can do and the care they offer. It is definitely worth the cost. I have seen many patients here who had great success, including my wife with breast cancer-now finally in remission. Cannot thank them enough. They offer targeted treatment and many new immunotherapeutic drugs along with conventional treatments. Best wishes!

Member
Posts: 6
Registered: ‎10-01-2017

Re: German clinics

[ Edited ]

Hello Giedre

 

Never did answer you. I lost motivation to proceed with Hallwang after had private consultation edited by moderator as per terms & conditions with a prof at LOC who said there are no trials fot my type HR+ HER- and immunolgy would not work. Hallwang offered this so was confusion. Also if only a trial at Hallwang why are we paying?  I also saw a blog on intrtnet of someone who kept paying out huge amounts with no success so I got disillusioned. Still am and dont know what else to try. . Am on chemo again at mo EC

Member
Posts: 321
Registered: ‎30-09-2017

Re: German clinics

Hi Carolyn, October 15, with bone mets, same here! Agree about Letrozole and those pesky cancer cells!!! Sorry to hear you're getting more pain, I've read that can happen on Letrozole sure you have too, hope it's nothing more than that. I'm concerned because I've started getting pins and needles in my fingers if I lie on my bad side. As you say, all will be revealed in the not too distant future! I'll do a transfer to the bone mets thread...!! Take care xx 

Community Champion
Posts: 8,527
Registered: ‎26-10-2015

Re: German clinics

Hello Kate
Yes got dx October 2015 ...with bone mets and am a letrozole girl too ..but I'm getting worried that with extra pain. .it's not working and my scan is coming up so all will be revealed !!
Looking back letrozole has been a doddle really but cancer doesn't really care !!
Keep in touch ..the bone mets thread is the daily meeting place really! !!
Hugs xxx
Member
Posts: 321
Registered: ‎30-09-2017

Re: German clinics

Hi Carolyn, thank you for replying, appreciate it, and hope Giedre is feeling better soon. Reading through posts earlier I noticed you have been taking Letrozole two years and have another scan soon? If I'm right you must've started taking it around the same time as me, I have an upcoming scan too! Hope you're scan goes well and thank you again x

Community Champion
Posts: 8,527
Registered: ‎26-10-2015

Re: German clinics

Hello Kate
I hope giedre is reading this and can offer you some good information. I'm in daily contact with her in oz ..but she's not too well at the moment and might not be online to reply.
Xx
Member
Posts: 321
Registered: ‎30-09-2017

Re: German clinics

Hi Giedre, afraid I can't offer any opinion on the vaccine as I know nothing about it but I read your post with great interest. I have ER+ PR+ HER2 + Fish-ve also with bone mets, my primary hasn't been found but are convinced it's breast. I have been taking Letrozole for two years now, was told I was NED three months after starting it and fortunately have remained so since, although I have another scan looming! I'm also very fortunate that I have suffered few side effects so far! I am very interested in holistic care and alternative therapies. On diagnosis (I was diagnosed stageIV despite going to my GP for many years saying something was wrong, didn't ignore me but maybe could've done more), I eliminated sugar and dairy from my diet and eat primarily a plant based diet, do have some wild Atlantic salmon and occasionally eggs. I also do more exercise and make sure I get more sleep! I would be very interested to hear more about your visit, and would welcome any information. I hope you've benefited from your visit to Hellwang and send you best wishes going forward. Kind regards, Kx

Member
Posts: 27
Registered: ‎14-04-2016

Re: German clinics

I have just spent a week at Hallwang and it's truly a very caring and professional clinic.  I have er+pr+HER2- lobular cancer with bone mets.  I received all the detox infusions as well as my last booster of THX vaccine.  I've been offered polyclonal vaccine treatment but didn't have it as it's very new and isn't even in trial yet., has anyone else been offered this vaccine and could tell me more about it.

i live in Australia and would like to try the vaccine but am worried about side effects.

 

Member
Posts: 1
Registered: ‎24-08-2017

Re: German clinics

Hello everyone,
My wife has secondary estrogen positive breast cancer(metastatic ) which is now in liver , lungs and bones..
Can hallwang help her kind of breast cancer?
Member
Posts: 4
Registered: ‎04-05-2017

Re: German clinics

Hello SD123, my wife is being treated with TNBC at the Hallwang with great success. She has also had brain mets, also liver and lungs and is doing incredibly right now. All of the mets are smaller, and most of them gone. But yes, it is expensive, as these drugs are very new and some of them are even especially designed for the patient. For us, every penny we spend is worth it, as we know that otherwise she would be dead already, and we cherish every day/week/month the Hallwang treatment has given her. Do not know how long she will have, but she feels so good right now, and we can be at home most of the time, that I am so grateful we took the decision to go to Hallwang. It is definitely worth looking into.

Member
Posts: 1
Registered: ‎12-06-2017

Re: German clinics

Hi there, 

I just wondered if anyone had been to Hallwang for treatment when they had brain mets? 

My mother has mets from TNBC in her brain, liver, lungs, and most recently found in on place in her bone. We've obviously exhausted all NHS options and possible UK private treatments, and looking at Hallwang but we are relying on the treatments to cross the brain blood barrier (it should be damaged from the WBRT she had in Jan 2016). 

I'm concerned about the time we have left to sort anything out that may help, but at the same time it's such a huge commitment money wise, and more so the time in hospital as my Mum hates any hospital (understandably). Lots of thinking to do and no time to do it.

Sam x

Member
Posts: 533
Registered: ‎01-05-2012

Re: German clinics

I'd just like to reiterate what's been said by others who have been treated at the Hallwang. I would be on the next flight to Stuttgart Airport if I could afford to go back to have all the treatments they recommended. They give hope, when all feels lost, and they're very caring and professional. I very much enjoyed the secure feeling of being there and that glimmer of hope that things could improve. Unfortunately, I needed treatment for at least four different problems, which meant the cost was far greater than my means. I just had as much treatment as I could afford.  I was never promised a cure but they thought they could offer me targeted treatments that would give me better quality of life and the potential to gain years, rather than months which was the most likely outcome if I'd just had to have chemotherapy here. Since my treatment there, my skin mets have cleared up and not returned, which is a huge relief, and I have certainly had a good quality of life for longer than I would have if I hadn't gone there. My situation has deteriorated since Christmas and I'm now on a clinical trial here but things have gone rather badly. I just need to win the lottery and get back to the Black Forest. If you have plenty of funds, I don't think the cost is excessive for what they can offer. The big disappointment is having to pay 19% VAT. Without that I could have had more treatments.

Member
Posts: 4
Registered: ‎04-05-2017

Re: German clinics

Hell there! I am Josh, and my wife is being treated at the clinic. I can only support Diane in everything she says. We have been treated incredibly well at the clinic-finally my wife gets the treatment she needs and deserves for TNBC. And she looks so well now, after 3 months treatment, the best I have seen her for years. Staff and treatment strategy are amazing. I think best is always to talk to ppl that have been there, talk to the doctors there before you decide what to do. So far, I have only met people who are very happy at the clinic. Obviously, I imagine there will also be some who are not (even though i have not met them yet), as this is normal. We have been to many clinics before, and there are always some who think differently, for whatever reason. From my side, people are purely professional and caring. They offer you the most recent medical discoveries based on clinical trials, which is especially interesting for those who did not get into a trial. We are glad we gave this place a chance!
Member
Posts: 6
Registered: ‎12-01-2017

Re: German clinics

Hello Feejay,

 

I just answered to another post. I have been treatetd at Hallwang and I can only recommend them. I think theier website is so vague, because they offer so much, that it is hard to be specific, as they will always analyze your tumor tissue to decide what treatment is best for you. So you do not know before what you will get, because it depends on the genetic characteristics and markers of your tumor tissue. But what you do know is taht at the beginning there is always a thorough diagnostic strategy, which is why I chose to go there-away from the concept "one chemo for all" to a treatment that is designed for ME. Of course, there are other doctors that do not recommend you to go there, because they do not understand or support what they do...but what I learned is, where there is success there is envy. And Hallwang clinic is very successful. What won my trust is that I was able to look up/google everything they offered me, i got myself informed about the scientific background and ongoing trials, which all convinced me to have treatment there. As most of you, I ahve exhausted conventional treatments, so there was a decision I had to take: Go experimental or palliative. Well, I chose experimental, and I am still alive (you should have seen my oncologist´s face when I came to see hm 6!months after he had told me there is nothing else he could offer me. I think he thought he was seeing a ghost!) So, I am still getting maintenace treatment at the clinic every other month for 2 days, and talking to the patients there, hearing their stories..it reassures me that I am at the best place for cancer treatment. Of course, there were also patients that did not make it, they came so late, that the cancer was too aggressive, but even their relatives speak highly of the clinic, which speaks for itself.