26-01-2018 07:47 PM
Waffles, I meant to share that when I. Had my injections in the bum, I stood up and leaned over the couch which was raised...and it barely hurt at all...the nurses did them over 2.5 minutes for me.
28-12-2017 09:04 PM
30-11-2017 05:42 PM
27-11-2017 10:35 AM - edited 27-11-2017 10:40 AM
sorry to hear about Ladybirds leg pain. I know you've probably done all this...but I too get leg pain....rt front of leg..(shin splint).spotted, its worse if my shoes are too tight over my top of foot....think ...(no evidence for this at all)maybe an artery which supply's that area gets pressed on? People talk on the web about these pains, if that's what Ladybird gets....lots of people get bone pains from ant oestrogen drugs, but these are often manageable.
My real bugbear was/is sciatica which I'm hoping I've managed to control...was getting this a lot. And it happens more when I'm stressed....anyway, I went to a really good chiropractor who apart from helping me with my poor posture, gave me the following advice - and as it really works, I have no worries about sharing it.
In bed sleep with a pillow between knees when on side.(under knees if on back.)
Sit on well padded seats in restaurants, other venues.
Make sure when sat down, that bottom is higher than your knees(this was purely as I also have bad knees)
Car seats...these are pretty lethal now for sciatica..they tend to be bucket seats - sit on a cushion.
The charity shop near my chiro tell me they do a roaring trade now in cushions for clients who come out of the chiropractors! Only £1 each. (I bought four so as to raise my btm on the sofa and keep one in each car.)
I now conscientiously do all that(apart from the bottom height sometimes) and in church I sit on a kneeler on top of the pew. It works! But just one slip can bring on sciatica, however, I've trained myself now to do it....it's only things like unavoidable park benches etc which are a problem . The chiro says it's the 'sitting bones'. Which set it off.
Fulvestrant apparently can rarely give it to you, but fingers crossed...not so far. My theory is that the fluid obviously takes up space, the extra bulk of which which could press on the sciatic nerve, but my nurses have been pretty good..keeping to the upper outer side of the buttock and injecting it slowly over 2.5 minutes
sorry for the lecture....but as it really works, I'm passing it on. Sciatica became quite limiting for me...once it started in my btm, then my knee gave up too...its nasty xx. But you have to keep to the process.
Best wishes and love to Ladybirdxx
26-11-2017 09:23 PM
21-10-2017 03:31 PM
Hi Moijan, it did stop working but I got longer on it than I thought I would having spent years on hormonals beforehand. Hoping you enjoy a long run x
20-10-2017 01:00 PM
Hi Moijan, I'm so glad that you are having Fulvestrant now and that all is good so far. I think you know that I was on it about 18-22 months ago and it has been my best Mets treatment so far. I felt really well and went on a great holiday to India whilst on it. After the loading dose its once a month which is very doable and gives you freedom to feel normal.
Wishing you a long spell and no side effects xx
18-10-2017 11:36 PM
Started on this drug today. Was pleased to find that the injections were virtually painless.💉
Would be lovely to share the journey with others on this drug - maybe also hear from some who have tried it before. 🔮