Member
Posts: 5
Registered: ‎27-01-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi everyone 

 

i meant to post last week but got busy and didn't get it done. My chemo treatment last week was easy but later that night was not.  My husband and I and some friends went out to eat.  Great meal, good conversation.  But after two bites of dessert, my stomach was not happy.  I looked at my husband and told him that we needed to leave, NOW!!  As we started to make our way out, so did the contents of my stomach.  I was so embarrassed.

Everyone with us understood the situation.  

Since then, I have had a little nausea in the mornings, but it is getting better.  My hair is coming out by the handful.  It started a couple days ago.  Oh well, I had the same thing happen a couple years ago while on Taxol. It's only hair.  It will take less time now to get ready for work and who cares if it rains!!  I'm having it cut very short this afternoon.  Will make it easier for t.he rest of it to fall,out.  

No treatment today, just bloodwork.  Another easy day!  

Talk to you again soon.

 

Debbie

Member
Posts: 215
Registered: ‎10-08-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hi Phillipa

 

I went straight from Capecitebine to Eribulin and felt just the same as you- in one word "phew"!!

 

Good luck with your treatment, let us know how you get on

xx

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Phillips, yes one of the few chemos I look fondly back on.....

 

hope it it works well for youxx

 

moijan

Member
Posts: 4
Registered: ‎12-10-2017

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

I was just reading everyone's  positive remarks about eribulin. I swapped from Capecitebine & feel so much better now on eribulin....on 6th cycle now. Major hair thinning after the 1st cycle, but apart from that feet, hands are amazing now & energy levels are so much better than before. So encouraging to hear some people are on for many many cycles. Will know if it's doing the job in a few weeks time. But I feel like a different person so that's good. Good luck to everyone else on eribulin too.

Philippa x

Member
Posts: 344
Registered: ‎18-01-2013

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Debbie
Hope you're getting on ok with eribulin, I am about to start cycle 18 next week.
My hair thinned just after cycle 1. After complete hair loss with docetaxol I was really pleased that it didn't completely fall out. It has grown over the last year! There doesn't seem to be a pattern on hair loss/thinning - everyone has a different experience.
I find eribulin tolerable and hope you do.
All the best with your treatment.
Helen x
Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi, there, you know what, I think it was quite quickly....but I did stop washing it very often...like now actually! And I had got a couple of wigs from last time, but I went up and ordered one fairly early, I also wore those little headscarf’s that are ready made, eg with elastic at the back. I keep meaning to mention ‘Heathers hair’ on here..they are a charity who make headbands with real hair on, so you can wear them under a cap or scarf and you have a fringe,* or even an all round short bob.*

 

it is free, but as it’s a charity, they like small donation.xx I have two of those myself.*

 

Moijanxx

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Lovely to see you withasmile xx

Member
Posts: 5
Registered: ‎27-01-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Had my first treatment yesterday. Was amazed at length of treatment-only 5 minutes!!  Tolerated it well, haven't had any side effects yet.  Have next treatment on Friday next week.  Will see how that one goes.  To those who have lost hair: when did the hair loss start?

Member
Posts: 215
Registered: ‎10-08-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

hi Clarisse Debbie

 

after your other chemos I think you'll LOVE Eribulin!

good luck today, hope everything goes smoothly

xx

Member
Posts: 215
Registered: ‎10-08-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Nicky,

thanks for the update, its so annoying when things take so long.

 

My onco was muttering about trying hormone drugs together in combo to try and prevent a recurrence but we didn't get very far with discussions.

 

I'll keep popping back to hera your updates, you're in my thoughts

xx

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Yes, please doxx

Member
Posts: 5
Registered: ‎27-01-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Thanks for the info, Moijan

 

I will let you know how everything is going after my treatment on Friday.

 

Debbie💗

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Clarice, after taxol you should find Eribulin a doddle.xx

 

have a scan back through the thread to see what side effects you might get...but I did lose my hair, it came back slowly whilst on the chemo. Most of us found the erib pretty tolerable and it worked for about 15 months for me. The drip is about 10 minutes and I drove to and from the hospital, about half an hour.

 

was getting no side effects other than my hair really. I did get cellulitis, but have lymphoedema so that was a given.

 

welcome to the thread xx

Moijan💚💚💚

Member
Posts: 5
Registered: ‎27-01-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

[ Edited ]
 
Member
Posts: 5
Registered: ‎27-01-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi everyone

 

I am starting Eribulun next week. I'm not sure what to expect.  This will be my 3rd chemo drug.  Started with Taxol for 9 months and lost hair.  I got good results, but neuropathy was getting bad. Next was Xeloda, hair came back. I was on this for 9 months.  Got good results until last scan.

Any advice about Eribulun?   WillI lose my hair with this one?

 

Debbie

 

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Kay,

 

good luck with with your mri results...I normally get asked to start a new treatment the day after. Not sure about getting erib out of your system, eg how long.

 

mx

Member
Posts: 205
Registered: ‎01-05-2012

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Helen 44

yes I Had 16 but the scan I had on the 9 th of jan showed progression I presume I will have to wait while eribulin gets out my system I have not heard from the chemo specialist nurse practitioners about going getting the information about Taxotere but I have just received appointment for onc for mid March, I am waiting for bone scan which I will have next week so when I ring my breast care nurse to tell her I have had it I will mention not hearing from the chemo nurses and double check what I presume is right because I do not recall hearing onc saying anything other than I would hear from the nurses 

good luck with your treatment I hope it carries on working for you 

 

kay 🍀

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Good luck to you guys....and keep in touchxx

 

moijan💚💚💚

Member
Posts: 344
Registered: ‎18-01-2013

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi lovely ladies,
Sorry to hear that eribulin has stopped working for you Kay & I hope that you get started on a new treatment quickly. We were on same cycle I think, just started 17 today. The neuropathy isn't great but I am pretty ok apart from that. Should be time for another scan soon -what joy!!
Big (((((cyber))))) hugs to you all xx
Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Kay, have sent you a pmxx