16-02-2018 12:30 PM
i meant to post last week but got busy and didn't get it done. My chemo treatment last week was easy but later that night was not. My husband and I and some friends went out to eat. Great meal, good conversation. But after two bites of dessert, my stomach was not happy. I looked at my husband and told him that we needed to leave, NOW!! As we started to make our way out, so did the contents of my stomach. I was so embarrassed.
Everyone with us understood the situation.
Since then, I have had a little nausea in the mornings, but it is getting better. My hair is coming out by the handful. It started a couple days ago. Oh well, I had the same thing happen a couple years ago while on Taxol. It's only hair. It will take less time now to get ready for work and who cares if it rains!! I'm having it cut very short this afternoon. Will make it easier for t.he rest of it to fall,out.
No treatment today, just bloodwork. Another easy day!
Talk to you again soon.
16-02-2018 06:39 AM
I went straight from Capecitebine to Eribulin and felt just the same as you- in one word "phew"!!
Good luck with your treatment, let us know how you get on
11-02-2018 04:08 PM
I was just reading everyone's positive remarks about eribulin. I swapped from Capecitebine & feel so much better now on eribulin....on 6th cycle now. Major hair thinning after the 1st cycle, but apart from that feet, hands are amazing now & energy levels are so much better than before. So encouraging to hear some people are on for many many cycles. Will know if it's doing the job in a few weeks time. But I feel like a different person so that's good. Good luck to everyone else on eribulin too.
08-02-2018 06:52 PM
03-02-2018 02:01 PM
Hi, there, you know what, I think it was quite quickly....but I did stop washing it very often...like now actually! And I had got a couple of wigs from last time, but I went up and ordered one fairly early, I also wore those little headscarf’s that are ready made, eg with elastic at the back. I keep meaning to mention ‘Heathers hair’ on here..they are a charity who make headbands with real hair on, so you can wear them under a cap or scarf and you have a fringe,* or even an all round short bob.*
it is free, but as it’s a charity, they like small donation.xx I have two of those myself.*
03-02-2018 01:55 PM
Had my first treatment yesterday. Was amazed at length of treatment-only 5 minutes!! Tolerated it well, haven't had any side effects yet. Have next treatment on Friday next week. Will see how that one goes. To those who have lost hair: when did the hair loss start?
02-02-2018 07:13 AM
thanks for the update, its so annoying when things take so long.
My onco was muttering about trying hormone drugs together in combo to try and prevent a recurrence but we didn't get very far with discussions.
I'll keep popping back to hera your updates, you're in my thoughts
27-01-2018 10:45 AM
Hi Clarice, after taxol you should find Eribulin a doddle.xx
have a scan back through the thread to see what side effects you might get...but I did lose my hair, it came back slowly whilst on the chemo. Most of us found the erib pretty tolerable and it worked for about 15 months for me. The drip is about 10 minutes and I drove to and from the hospital, about half an hour.
was getting no side effects other than my hair really. I did get cellulitis, but have lymphoedema so that was a given.
welcome to the thread xx
27-01-2018 01:19 AM
I am starting Eribulun next week. I'm not sure what to expect. This will be my 3rd chemo drug. Started with Taxol for 9 months and lost hair. I got good results, but neuropathy was getting bad. Next was Xeloda, hair came back. I was on this for 9 months. Got good results until last scan.
Any advice about Eribulun? WillI lose my hair with this one?
26-01-2018 07:14 PM
good luck with with your mri results...I normally get asked to start a new treatment the day after. Not sure about getting erib out of your system, eg how long.
26-01-2018 12:15 PM
Hi Helen 44
yes I Had 16 but the scan I had on the 9 th of jan showed progression I presume I will have to wait while eribulin gets out my system I have not heard from the chemo specialist nurse practitioners about going getting the information about Taxotere but I have just received appointment for onc for mid March, I am waiting for bone scan which I will have next week so when I ring my breast care nurse to tell her I have had it I will mention not hearing from the chemo nurses and double check what I presume is right because I do not recall hearing onc saying anything other than I would hear from the nurses
good luck with your treatment I hope it carries on working for you
25-01-2018 04:52 PM