Community Champion
Posts: 4,507
Registered: ‎01-05-2012

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Phoebe

As has already been said you do not need steroids with this chemo. You will probably be offered them by the chemo nurses at your hospital but you do not need to have them as the side effects are not as extreme as a lot of other chemos, when you do need them, it will be up to you I should think.  I also found I did not need anti sickness tablets (and I'm the worst nausea sufferer!) so it is a matter of choice.  Some ladies might have steroids but for me I really didn't need the added SEs that steroids give you, in this case 2 weeks out of three.

The infusion is very quick, about 5 mins, but my team built up to that and gave it to me a bit slower for the first couple of cycles and then just let it free drain (it comes in an IV bag so goes into a vein/cannula/port).  The time you spend in hospital is down to the saline before and after and in my case the waiting around for the nurses to be free as at times it was quite a busy ward.  However they are all so lovely and dealing with all patients so I didn't mind, just brought enough reading things to keep me occupied.

Nicky x

Member
Posts: 69
Registered: ‎27-10-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Phoebe, No you don’t take steroids before the infusion. I have a steroid anti sicknesses infusion before the Eribulin, which takes a couple of minutes, then saline is used and the Eribulin is syringed into the line. After a few more minutes of saline,I’m all finished.

Hope this helps. I have my next day 1 on 13th April.

Good luck, you will be fine.

Liz x

Member
Posts: 68
Registered: ‎03-08-2015

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi
I'm hoping to start eribulin next Tuesday. Can anyone tell me if you have to take steroids before the infusion?
Thanks
Px
Member
Posts: 69
Registered: ‎27-10-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi again Phoebe,

Eribulin is one of the quicker chemos to have. It normally takes about 40 mins. You have it on day 1 and day 8, then a 2 week break. I manage to go and do things and do all my shopping, housework etc , with my husband. When you feel tired just rest, then usually I can carry on! I get peripheral neuropathy, numb fingers and toes, but it’s not bad.

Look forward to speaking again on this thread,

Good luck for the 10 th. 

Liz x

Member
Posts: 68
Registered: ‎03-08-2015

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Clarrise and all the other 'eribulin' ladies

I hope you are all still doing well on Eribulin?

I have had taxel and capecitebene, which has now stopped working. I am hoping to start eribulin on 10th April, if all my blood tests are ok

Phoebe xx

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Our hospital doesn’t let cold caps re Eribulin...as no evidence they make a differencex

Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

HI

 

has any body done chemo caps while on Halavan ?My daughter has just started and is using them , just wanted any feedback good or bad

 

thank you\teri

Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Well, when I was on halaven(Eribulin) it really did wonders for me.....I had 16 months of it working. So it’s a good drug and very few side effects....10 minutes for infusion too.

 

best of luck to you daughter with itxx

 

Moijanxx

Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Moijan, my daughters are tiny and widespread also , nut the specialist at MD Anderson says the qualifies , but we had already started he Halaven her is St Louis so not sure what we are going to do ,Her oncologist from MD Anderson is out of the country but we are waiting to here back from her.Hope and pray that miracles happen for everyone you all deserve this,
Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

[ Edited ]

Teri, what is a Y90?please

 

 

 

 

Have just just looked it up...as my liver mets are tiny widespread seeds...it would be a bit impossible to use y90

 

Moijan

Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

HI Bousy,have you ever tried any clinical trials?Have you tried intragative along with conventional?MY daughter has already been in 1 trial and had great success,so she will definitaly do it again ,
Member
Posts: 69
Registered: ‎27-10-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Teri,

I have hormonal bc. I have mets in my spine, pelvis and right shoulder, my lungs and did have a 4 cm tumour in my liver which shrank and no longer shows on ct scans. There are only a few more chemos I can try when this stops working so Eribulin has got to keep working. It’s positive thinking!

Hope your daughter is ok with her first cycle.

Liz x

Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

HI Bousy,thank you also for your quick response.I am glad that Halavan is working for you and will pray for next scans show success.Can I ask what type of MBC do you have ,and why do you feel you are running out of options?
Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

thank you for your response.The chemo went ok .WE line st St Louis MO and do partial treatment here and some at MDA in Houston.In February at MDA when the liver mets showed up they were goiing to see if she qualified for the Y90 procedure .But in the mean time we started to go ahead with the Halavan. Well right when she was starting the chemo MDA called ad said she did qualify and they wanted her there Friday. so we went back and forth but we decided to go ahead with the Halavan.I hope ot goes well for her she needs a break.She is only 31 .Have you been offered the Y90 for your liver mets?Well we are going to hope and pray this chemo works in knocking them out and then she will start on Ibrance and Falsodex,So what is the plan for you now? are you ER/PR + Her2-? thank you
Community Champion
Posts: 3,294
Registered: ‎04-02-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hello, sorry I’ve not posted for a while...those of you who have recently joined..welcomexx this chemo is a real joy and so much nicer than many....just ten minutes in the chair and minimal side effects...so I. Hope. you have a easy ride on itxxx

 

love Moijanxx

Member
Posts: 69
Registered: ‎27-10-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Teri and Helen 44,

I have just been to see oncologist to get results of CT scan. Bones are still healing and nothing showing on liver. I’ve been on Eribulin for 9 months and starting cycle 13 on Friday. I hope results are as good at next scan. 

Sorry it’s stopped working for you Helen, I only managed 2 cycles of Docataxel and that was enough. Hope they find something else for you. I know there aren’t many options left for me after this.

Teri this is the best chemo I have had. My hair thinned at first but now have a good head of hair, Get a lot of fatigue but no sickness. Good luck to your daughter.

 

Liz x

Member
Posts: 344
Registered: ‎18-01-2013

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi Teri
Good luck to your daughter with eribulin today. It's very quick, with saline flushes before and after I can be done in 50 mins. I am in the middle of cycle 19 and think eribulin is a breeze compared to docetaxel. Unfortunately it looks like it has stopped working for me as liver mets show progression but I have had a year on it.
My hair thinned just after cycle 1 but didn't fall out completely. I lose my taste the day after chemo but it comes back on the day after that. I have suffered with peripheral neuropathy in the last couple of months however in all I would say I found it tolerable. Everyone is different though!
All the best to your daughter.
Helen x
Hello to fellow spongebobbers - hope you're all ok.
Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

HI , so herd your thought Erublin was not to bad ,,  do you still feel that way? MY daughter starts tomorrow and very scared to do chemo again ,  any positive words..

 

Member
Posts: 7
Registered: ‎20-03-2018

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

Hi , my daughter is starting Halavan tomorrow, hrs will last 10 miutes so they say ,  so side effects are not to bad?? She has read good and bad stuff on the internet but hopefully most of you had found it easier than other . 

 

thank you 

Member
Posts: 215
Registered: ‎10-08-2016

Re: Chemo Buddy Needed - Anyone Currently on Eribulin?

oh dear Debbie!

Chemo does seem to make its opinion known at the most embarrassing times

xx