02-06-2018 12:33 AM
Sarah, Eribulin killed my bc, at one point all they could find was scar tissue,,,,I was on it for I think 18 cycles, but Tim’s began to rise at the end and I was put on Fulvestrant which did b’all for me, so now I’m on the Paclitaxel train, which is much more unpleasant than Eribulin...good luck with it, try not to take breaks, as I have found that that is when my bc changes it’s dna and becomes resistant, it's like not completing the full course of antibiotics....anyway, that’s my advice to you.xx
01-06-2018 11:12 PM
19-05-2018 12:38 AM
Nice to hear from you Bousy, hope your scan goes well....if and when things change what is the next step for you?
does sound as if you have had mores /e than I did on erib, my fingers did go a bit numb, but not as bad as currently.
very very best wishes and keep us posted.
18-05-2018 05:37 PM
Hope you are ok.
I have just finished my 15th cycle. I have a scan on 14 June and am dreading the results. I don’t feel any different but will have been on Eribulin for a year in July. I know it won’t work forever but would like it to work for longer.
I haven’t lost any weight but I have had the same amount of Eribulin for 14 cycles but for the 15th it was a smaller amount. This time have been very tired and aching back. Still have no taste and ankles feeling numb now and again. Other than that I’m fine!
Been to London for a weekend so probably done too much.
Hope you have a lovely weekend.
18-05-2018 04:30 PM
‘’how are you getting on, on Eribulin?
iwas thinking, although I really found it easy as far as chemos go....I. Do recall myself. Withasmile. Helen acquarius and smarties finding that it made us get angry on our week off....,..mindyou...now I’d swap with any of you...you could have Paclitaxel and I could have Eribulin ......
actually these 15 days-between Paclitaxel treatments have been more pleasant than on the first three cycles....which is a bit strange.
come on ladies tell us how it’s goingxxx
you know yesterday, I got frustrated with my phone and said S**t ! as one does.......and Siri said
’I hope you don’t kiss your mother with that mouth’!
I ‘I did laugh. I hadn’t realised he’d. herd me!
anyway, let’s hear how everyone is going,
14-05-2018 09:06 AM - edited 14-05-2018 09:08 AM
Yes Alee, that was bad luck...was it actual sepsis? Or nutrapenia?
.and I found erib to be a kind drug.....much nicer than Paclitaxel which I’m on now. What plans have they for your next drug?
hugs to you,
13-05-2018 09:47 AM
sorry to hear you've been through the mill with sepsis twice.
I haven't discussed any further treatments with onc yet as I'll wait and see if Eribulin works again for me- scan after 3rd cycle will tell.
04-05-2018 08:53 AM
24-04-2018 08:00 AM
Hi withasmile - it’s good to have you back but not for the reasons you have said! Glad though that you have had a big break from any form of treatment, it will have put you, and your body, in a good place for when you start again. I take it you are going back on Eribulin? I’m being nosy as I stopped Eribulin last year as the oncologists thought I should only have 8 cycles and not because it had stopped working (it was doing a good job at the time!). I have thought about it being an option to go back to but also thought, even though it is now approved by NICE, that you can’t go back to it? It would be interesting to know if that is a possibility. Sorry to pick your brains - and it is good to see you posting again!
24-04-2018 07:28 AM
I missed you all so I'm back! hahaha
I stopped Eribulin Feb 2017 when the tumours had shrunk within acceptable limits (triple neg lymphoma para-aortic and liver) and have had a fab time chemo free, but the last couple of scans have showed steady regrowth so I'm starting back next week.
My cancer has never followed a conventional path so the break was the right thing for me at that time.
Of course there's 'will-it-wont-it-work-again' worries but we won't know until 3 cycle scan so I'm not thinking that far ahead.
I've followed the threads; its good to see this tolerable drug available to so many more ladies and lovely to find support still shining.
13-04-2018 04:12 PM
Thanks for your message!
yes I was due to start Wednesday but due to an oversight in the paperwork they gave it to me yesterday. Had a good nights sleep which always helps. Thye've given me steroids for a couple of days to make sure I cope.
21 months is a good length of time (at least good in my world!) ; they've told me 12 max, and thats being optimistic, but they are hopeful of a response and of course they never can tell, so we are relaxed and positive about things.
Sorry to hear you're having to move on, I can understand how you feel. I was doing quite nicely on the capecitibene and then a similar thing happened to me. The uncertainty of what they will offer and what you will have to cope with next is tough and unsettling.
I'll be interested to hear what the next treatment is.
All the best, I'll be thinking of you xx
13-04-2018 03:23 PM
05-04-2018 01:37 PM
Relieved to find my bloods have remained stable in this interim phase - I know the cancer has grown in my liver, but fortunately I've kept well with no treatment for the past 4 weeks. Now I've been given the go ahead for my first eribulin on 10th April
I'll be celebrating my son and husband's birthdays with all the family this weekend, so we're all overjoyed I've got the promise of the 3rd line chemo and hopefully many more months/years of quality time ahead!
Beautiful sunny day here!
hope everyone in good spirits
Hugs Phoebe xx