04-08-2018 11:53 AM
04-08-2018 08:47 AM
glad you've found support with this thread.
Eribulin certainly is an easier chemo when you've tasted a lot of the others on offer!
My BC has chopped and changed over the years from OE neg to pos and back again, so I've had the joy of sampling most drugs!
I started Eribulin 2016 when my BC became stage 4 Triple Neg Lymphoma with para-aortic and liver tumours.
It shrunk the liver ts completely, and reduced the para-aortic ts.
I asked for a chemo break with 3 month CT scans to check progress and had nearly a year off chemo. I re-started Eribulin this year when the tumours re-grew, and latest scan showed some hopeful reduction.
So many of us have been battling for so long - and long may we continue!
04-08-2018 08:26 AM
I hope everything is going steadily for you.
Those nervous days of starting Eribulin seem so far away now don't they?
The taxel chemos are pretty heavy going - I had a course prior to Eribulin - so sending lots of empathatic hugs your way.
03-08-2018 07:47 PM
03-08-2018 07:42 PM
03-08-2018 07:35 PM
03-08-2018 07:32 PM
Can you tell me your name? I am new to the forum so if your name is listed somewhere, I can't find it. Probably staring at me in the face. It feels good to connect with someone with my diagnosis. I really appreciate your feedback about your hair. If i stay on this clinical trial I will stop using the cold caps. My insurance was suppose to pay for them, but it is not looking good. The company I use here is US has you pay for the first 8 sessions and then the rest are free so I thought that was a pretty good deal for those of us who will be on chemo for an indefinite period of time. Thanks again...
03-08-2018 10:35 AM
Hi all --
So happy this thread is active with eribulin veterans and newbies like me (just finished 3rd tx like Hlarsen)
Someone mentioned cold capping and it's interesting that various research has indicated it "helps" and many insurances in the US will cover part of the cost. I see it being done at Mass General which is where I go for treatment. To me it's not worth the added hassle and cost, esp since it may/may not work. With the rate I'm losing hair I"m headed for wig and already picked out a cute one. I have a 14yo and need to keep a presentable appearance so as not to be an "embarrassment" (giggle)
My breast cancer was stage 2 when dx 2011 but mets 2016 and now four areas of liver mets in 2018 which have grown on Ibrance and Navelbine. Pain had been an issue as liver was enlarged but I have a great pain med regime worked out thanks to pallliative care MD. Anything that keeps those mets from growing will give me hope --I guess we'll see after 4th cycle.
03-08-2018 10:19 AM
welcome to this thread. What a lovely positive and inspiring post xx
hope things go well for you on Erib..it killed mine atoepoint but sadly grew back later, but had about 21 months
actually, I got sore fingers which recovered well, I must have got the tiredness,but really I can’t recall...this chemo is an absolute joy, compared to my current one! I recall it very fondly.
alto I began the thread..Withasmile is now likely the current lady who would be good to discuss s/e and strategies if need be...I lost my hair, but it started regrowing almost immediately! I lost my lashes and eyebrows, got them back now tho.
very very best of luck...and enjoy.xx I miss this chemo
03-08-2018 08:50 AM
03-08-2018 08:07 AM
I hope Eribulin helps you- after all the other chemos it seems a much gentler regime.
I was first diagnosed 1995, so like you I've worked my way through most of the available drugs!
Its amazing when you look back, just how far treatments have come, and attitudes have changed.
The fatigue seems to come and go, I've not been able to work out a pattern.
Good luck with everything
03-08-2018 02:29 AM
02-08-2018 10:48 PM - edited 02-08-2018 10:50 PM
I did lose my hair on Eribulin....but it started growing back..my hosp doesn’t use the cold capwith it as apparently there is no evidence it work...it’s avery busy hosp and cold cap, as you say adds a lot of time to either end
my treatments were about ten minutes with a pre and post flush, I was usually out very quickly indeedxx
good luck with everything
02-08-2018 06:40 PM
funnily enough, this morning I was reading up about immunotherapy with Eribulin. It does seem to have some good results.
I find the neuropathy fades away during my recovery week off. I also get a strange no-feeling sensation down the front of my shins and thighs.
Glad your TMs have decreased, hope it continues!
02-08-2018 10:09 AM
Hi all --
Chemo routine for Eribulin here in the US sounds the same (day 1,8,15)
I was disappointed not to get into the trial combining immunotherapy (Keytruda) with Eribulin, but excited to know it's happening and hopefully with good outcomes! If results are positive they may open more slots. My oncologist thinks finding an immunotherapy and chemo drug that work together is the key to shrinking the tumors and progression free survival.
My tumor markers decreased after just two doses, so I'm encouraged
I had the sensation of numbness in fingers of my left hand for a few days last week but thankfully that subsided. I know neuropathy is a side effect and hopefully won't be problematic.
02-08-2018 07:28 AM
glad to hear the treatment is working for you.
I too have Stage IV triple negative bc.
I found with Eribulin my hair shedded and got thin at the start, and so I cropped it short, but then new hair started to grow back in.
I had success with the cold cap, and didn't lose my hair for my first chemo back in 1996, but haven't bothered with using it on subsequent chemos.
Hope this helps- let us know how you get on
01-08-2018 08:53 PM
My name is Jo and currently on a clinical trial with Eribulin and everolimus. I have been on this trial since December 2017. So far it is shrinking my tumors. I have Stage IV triple negative bc. I have used the cold caps for all cycles. I recently started to cut my cold cap sessions short by about an hour. I have kept all my hair and have not shedded at all. I am playing with the idea of not doing the cold caps anymore due mostly to cost and inconvience. Does everybody lose their hair on eribulin? Or are there some people who don't? After 16 sessions of infusions, I am thinking I may be okay without the coldcaps. Was wondering what others think about this.