Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Hi Helen

Thank you so much for your reply to my question about red face. I.did eventually get through to the chemo unit it is like what said it is the steroids that causes it.

By you have been through the mill with all the chemos. I had chemo back in 2009 DEC Taxetere. This is the first IV chemo since then so I suppose I have been quite lucky.

I am hoping they arrange for a scan half way through. No point in having 12 if it is not working. I keep asking how big is my liver met which was diagnosed in October last year. I don't get a reply.

I would like to see my scan on a computer so she can go through it with me but unfortunately there is no facility at the hospital I attend. The oncologists come from a different hospital to where I attend..

In one respect if this is the only side I get red face for 24 hours so can cope with that.

Good luck with your results next Wednesday. If you don't mind me asking is this your first scan since starting this treatment?

I have only had one MRI scan back in 2009 usually CT scans I get with dye. When you have an MRI is that with dye as well? It is such long time ago O can't remember.

Linda



Member
Posts: 344
Registered: ‎18-01-2013

Re: Anyone on Taxol

Hi Linda
Glad to hear you have now started on paclitaxel, I do hope it will be a good chemo for you. I am on week 10 of 18 and hoping it's doing the trick on my liver mets. I have a red face & neck on the day after chemo which seems to only last about 30 minutes when I wake up - I call it my steroid glow! If it lasts a long time for you I would mention it to your onc.
I have a liver MRI on Friday, results next Wed so fingers crossed....
I have been ok so far with side effects, just feel pretty tired most of the time & no hair again. I think you asked me in an earlier post whether my chemos were back to back - Yes, diagnosed Dec 2012, 1st chemo docetaxel Nov 2014 then Herceptin and Kadcyla (when they thought I was her2+) then eribulin & now paclitaxel. Unfortunately my largest liver met 4cm is in the most awkward place right under the diaphragm and is not suitable to even be biopsied. So I am really hoping the Taxol is shrinking it and the others.
All the very best with your treatment.
Helen x
Community Champion
Posts: 4,507
Registered: ‎01-05-2012

Re: Anyone on Taxol

Hi Linda

I hope you are coping OK with your first dose of Taxol.  I havent had it (yet!) but have had docetaxel which is from the same taxane family of chemo's. Regarding the red face and neck, have you taken steroids? I found on taxotere that the steroids made my face red but wore off after a few days of taking them.  Hopefully someone else can come along and either say they have had similar or give other pointers.

Nicky xx

Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Morning taxol ladies

Wondering whether any of you ladies had a bright red face and neck. Started last night and is still the same.day. If it did what treatment did you use or what was prescribed for. Your help would be much appreciated.

Thanks in afvance.

Linda
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Evening all you taxol ladies

Just to let you all know had my first of 12 sessions of weekly taxol. Went well I think after from taking 5 hours from start to finish. As I mentioned before I am having the cold cap so that is why
I was there long.

Lorraine good luck for Wednesday.

Linda
CLJ
Member
Posts: 22
Registered: ‎06-08-2018

Re: Anyone on Taxol

[ Edited ]

Hi everyone

 

My partner has secondary cancer. She finished radiotherpay in March this year, but in May started devloping maculopapular lesions along the mastectomy scar area. There is also low volume metasatic disease in bith lungs.

 

Her chemo cycles were stopped in November last year after her team decided that it would be best to proceed with the mastectomy and lymph node removal (12 in total) as a matter of urgency because she wasn't responding to chemo. However, she didn't have Paclitaxel. I think it was EC. And because they didn't give her Paclitaxel, she has not been able to get on an immunotherapy clinical trial (it is one of the conditions that make you eligible to participte in the trial). 

 

She is due to start chemo again this month and this time they will give her paclitaxel.

 

I would be grateful for any views and opinions about this drug.

 

Many thanks.

 

  

Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Evening greenmachine

Sorry it has not done all that you both hoped for. With it not working very well is your wife's treatment not going to be changed then?

Hope the reminder of the treatment works better.
Member
Posts: 1
Registered: ‎13-08-2018

Re: Anyone on Taxol

hi
My wife developed secondary breast cancer last Feb five years after the initial diagnoses..its in the bone/lung/liver..she has been on Taxol since one a week with the fourth week off..she had a scan after 9 weeks and it showed improvement in some areas
but not in the liver and bone..the side effects are fatigue 2 days after the chemo and an itchy each on her hands and chest..she has never suffered from sickness but some do...we are disoppinted
that it's working on the liver bone but maybe with the remainder with the treatment it may..
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Hi Lorraine

I am just turned 66 in relatively good health at moment excercising regularly. I am still hoping to do something during this treatment although I mentioned to oncologist last Monday about going swimming and aqua fit she advised against it because of the germs. That same oncologist I asked her then when I was on cape and she said same. I still carried on swimming. There are germs everwhere. I suppose they don't want the come back if we caught something.

Not looking forward to it but it has got to be done. I am going to ask next week at my pre assessment if they scan half way through to see it is working.

Linda
Member
Posts: 59
Registered: ‎08-01-2018

Re: Anyone on Taxol

Hi Linda

I am 53. Is devastating whatever age! Fingers crossed for the both of us.

Lorraine x
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Afternoon Lorraine

You are probably still young why they intend to keep you on it all the time.

Upto now I only had 2 hormone treatments. Not sure how many there are still for me to go on.

It sounds like taxol must be aweaker chemo than Taxetere which I had back in 2009. I only had 3 and 3 FEC. then Letrozole for 4 years.

Good luck.
Member
Posts: 59
Registered: ‎08-01-2018

Re: Anyone on Taxol

Linda - I start on 30 August. I still work 3 days and hope to continue altho change hours. It keeps me sane. My Taxol will be ongoing. I have had Hormone therapy and run out of options there then Cape. One thing after another but it has been four year since diagnosed so feel lucky. Hope this luck continues on Taxol. I wish you well with cold cap. I will be looking at wigs as said because no break in treatment so will not get chance to grow back. Yes you can PM me however not sure how that works? You sound like me so we will accept what is to come and deal with it as is only way. Fingers crossed xx

Mollymop - 21 months is inspiring. I wish you continued stability on your current treatment. Xx

Lorraine
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Evening mollypop

Thank you for your reply. 21 months thats a long time. Wonder why some of us lije are only having maximum 12 while some seem to have loads. I am planning to have cold cap. Did you loose all your hair when on taxol?

I normally I have an active social life. Also I swimming and do aqua fit. I asked oncologist the other day if I coukd continue with exercise was told best not just in case I catch an infection.

Don't like to pry but do you never get a break from having chemo?

Pleased you seemed to have cooed well on taxol hope I am as lucky as you.

Linda

Member
Posts: 60
Registered: ‎04-06-2016

Re: Anyone on Taxol

I had weekly Taxol for 21 months, it kept me stable all that time.  I was active throughout and it didn't stop me doing anything.  Have been on Kadcyla for just over a year, I do admit this one is much easier x

Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Evening Boo

That is amazing 34 Taxols. You must tolerate it really well.

I was told I would have 12 in total. If you don't mind me asking were you told you would be on it for this long?

As I mentioned before I intend to try the cold cap this time. No one mentioned I could have that way back in 2009. Have you done the cold cap before?

With you being on it for such a long time is there any tips you could share with me. To put mildly I am dreading it. I don't start treatment till 28 August after bank holiday.

Lorraine sorry like me you have had progression.
How it stands at moment I am going to chemo unit next Friday 17 to be assessed and measured for cold cap. Starting first treatment on 28 August.

Have they said how many you will be having?

Once we both start the treatment I could send you a PM to see how you are getting on.

I don't know about you it's a shock when a treatment fails so quickly Not had that before. Hope for both our sakes it works really

Linda


Member
Posts: 59
Registered: ‎08-01-2018

Re: Anyone on Taxol

Lyndyloo - Hope you get on well with new treatment. Second opinion confirmed more mets in liver so will be starting same as you. Just another hurdle! I never had chemo wad previously on hormone treatment as also have in bones. Will let you know how I go. X

Boo1967 - sorry to hear about neuropathy but encouraged by 34 weekly Taxol. Have you lost your hair? If so how many treatments did you have before you lost hair. I wish you all the best. Xx

Lorraine x
Member
Posts: 1
Registered: ‎19-01-2038

Re: Anyone on Taxol

I have BC for the 3rd time with mets to sternum and liver. Triple negative. I have had 34 weekly taxols. Missed 4. Neuropathy is the tingling, pins & needles, numbness, pain in fingers & toes. I’ve had dosage dropped to 80%. Talk of dropping to 60% just so I can keep going. Eventually if left on Taxol for too long, the fingers & toes lose all feeling & will compromise day to day living. Good luck. Much love x
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Evening Lorraine

You must be at the stage as me apart from my oncologist said it could be for 12 weeks alot of people come off it before then. I also said yesterday I want to have the cold cap as I am not prepared to loose hair again. I know there is no guarantee butI feel it is worth a try.

Last time I chemo way back in 2009 I lost my eye lashes and eyebrows as well. I have just had eyebrows micro bladed so won't loose them. It was about 3 months ago now.

I don't mind giving the new treatment a try but if it means I have no quality of life I will stop it. At the end of day I am 66 so I am not prepared to feel poorly all the time. Hubby was with me yesterday when I told oncologist.

The oncologist told me I would on it for a few weeks then I would go on hormone therapy. I wonder why your oncologist told you you would be onto till it stops working.

I am hoping to fit in holiday in this country before I start treatment.

I will let you know how I get on.

Keep in touch

Linda





Member
Posts: 59
Registered: ‎08-01-2018

Re: Anyone on Taxol

Hi Linda, I too had progression in liver and found out in October. I started cap in January had scan in March which was fine. Latest scan was outsourced for results. Oncologist not 100% happy with result so is getting second opinion. Hope to find out later this week. Dont hold out too much hope it is wrong. Oncologist had consent form on desk and I knew before he said anything. He has signed me up he said to save time and if changing then will start week after next. Hardest thing is he says is weekly for as long ad it works and if loose hair then cos ongoing will not grow back. Is such a rollercoaster. X Lorraine
Member
Posts: 498
Registered: ‎01-05-2012

Re: Anyone on Taxol

Afternoon Lozzer

You are right I was on cape from October last year. Had CT in .March l was stable then I have just had another CT scan couple of weeks that is when they discovered the liver met had grown. Mind I never thought it was working as tumour markers had not dramatically dropped. Think they are still around 500. I even queried it couple of months ago with chemo nurse told I should not get hung up on numbers.

Back in 2009 the oncologist only went on tumour markers after I had finished chemo. Since about 2013 old oncologist retired so got new one.

Think the way oncologist work now is they try to get the most out of each treatment that is what I was told anyway.

When will you know if they are changing your treatment?

I won't be starting taxol for a couple of weeks. Will let you know how I get

Linda