Hi Linda, I too had progression in liver and found out in October. I started cap in January had scan in March which was fine. Latest scan was outsourced for results. Oncologist not 100% happy with result so is getting second opinion. Hope to find out later this week. Dont hold out too much hope it is wrong. Oncologist had consent form on desk and I knew before he said anything. He has signed me up he said to save time and if changing then will start week after next. Hardest thing is he says is weekly for as long ad it works and if loose hair then cos ongoing will not grow back. Is such a rollercoaster. X Lorraine
You are right I was on cape from October last year. Had CT in .March l was stable then I have just had another CT scan couple of weeks that is when they discovered the liver met had grown. Mind I never thought it was working as tumour markers had not dramatically dropped. Think they are still around 500. I even queried it couple of months ago with chemo nurse told I should not get hung up on numbers.
Back in 2009 the oncologist only went on tumour markers after I had finished chemo. Since about 2013 old oncologist retired so got new one.
Think the way oncologist work now is they try to get the most out of each treatment that is what I was told anyway.
When will you know if they are changing your treatment?
I won't be starting taxol for a couple of weeks. Will let you know how I get
Hi Linda I am on week 7 of an 18 week course of Taxol (also known as paclitaxel). I lost my hair on week 5. My onc said the main side effect would be fatigue which I have to agree with, it's really starting to kick in now. Had no nausea, a couple of stomach upsets but nothing else so far. Neuropathy is the loss of sensation in your nerve endings, it usually affects fingers and toes. I previously had eribulin for 23 cycles & suffered on and off with neuropathy but haven't had it on paclitaxel as yet. All the very best with your treatment. Helen x