Keyhole surgery, that’s good! Your recovery time will be so much quicker than mine and also the scar won’t be as big! It must also mean that your liver lesion isn’t too big so they are able to access it all without opening you up so to speak. Yes, do update us all, shared knowledge is a really good thing especially when it’s first hand rather than reading about it in some medical pamphlet as many of the less mainstream treatments don’t get so much information written about them.
Hi to all other liver mets ladies, hope you are doing well. I’m still a bit overwhelmed by the paperwork associated with my Dads recent death (mainly due to it happening whilst he was abroad on holiday) so am not on here as much as I usually am. I hope that can change quite soon and I can get back to some normality - whatever that might be!
Thank you Nicky that's really helpful. I have just heard they will do laperscopic surgery within 4 weeks. I'm so relieved not to need chemo. I'll keep you posted xxx
Hi Anne, I’ll try to help!
My largest liver met was in the right lobe and therefore very accessible. It had been biopsied on 2 separate occasions so I knew they could get to it! I had 2 smaller mets show up on a pre op MRI (they were too small to show up on a CT) and these were all removed in the op.
I had to go into hospital the night before to be ready for the following morning, I was first on the list. The op it self I think only took an hour or so, maybe a bit longer. I came around in ICU and stayed there overnight before being sent up to the post surgical ward. You are fitted with lots of tubes to deliver pain killers, some of which allow you to dispense extra pain relief and also drains to get rid of fluids. I was able to eat once I’d come round sufficiently and in general you stay in ICU to make sure there are no complications. On the post surgical ward I was also kept under close observation, right by the nurses station. Gradually tubes were removed and pain relief reduced. I was encouraged get out of bed and sit in the chair on that 2nd day and you have to do deep breathing excercises to protect against pneumonia. That day, or the next (I can’t remember which) my catheter was removed which was a nuisance as I now had to walk to the loo! Luckily the 2 bed ward had an en suite. I was discharged from hospital on day 5 which was a bit of a shock as I suddenly had to rely on tablet pain relief. That was the worst bit, going home and managing on pretty low level pain relief. I’m sure I could have got something stronger but wasn’t prescribed it (unfortunately). You are encouraged to walk and not just sit around, either in hospital or after discharge at home. My stitches were removed about a week or so after the op, leaving a very long scar which healed well. I wasn’t able to drive until 4 weeks after the op, although that is down to your insurance company rather than a directive from the consultant. I think that’s about it but ask any other questions and I’ll try to answer although I’m not on the forum so much at the moment due to a family bereavement which is taking up a lot of my time at present. My op was done at the North Hants Hosptial in Basingstoke where there is an excellent surgeon, look on their website for more info as it is a centre of excellence for abdominal cancer surgery so I knew I was in the best hands.
Hi to all other liver mets ladies, I have been reading but not had much time to log on, hope you are all doing well. Xx
I always read this thread as I like to know what is being offered for liver mets. I have had liver mets since 2014 - first lot of docetaxel got rid of them but they came back in late 2016. Unfortunately the largest one is in the most difficult place in the liver it could be (typical!) ie right under my diaphragm. I have been on kadcyla, eribulin & currently on paclitaxel since Oct 2016 & it just keeps increasing a couple of millimetres between scans. Originally I was told that ablation/resection was not an option & was actually on the table ready for a liver biopsy when they changed their minds & said it was too dangerous to do the biopsy. It all gets very frustrating!
All the best to everyone with their treatments. Hope to see you soon Nicky.
I have just been told that a liver met of around 2.5 cm has reappeared in my liver. The last time was 2 mets in 2015 which were ablated. The MRI shows a difficult position so RFA not an option this time. I've been given an outpatient appointment to see Professor Heaton head of liver at Kings on Monday. The nurse said on the phone that he will see if surgery is possible. I think the met is in the right side of my liver. I was looking on the forum for women who have had this treatment an d found you! I've got lots of questions that will obviously be answered Monday but in the meantime can you tell me more about the surgery/ hospital stay/ recovery time etc. Also what will happen if he decides he can't operate? I'm dreading the thought of another round of chemo.
thanks in advance
Well at least you are a step further to ablation. We seem like performing seals having to jump through hoops to get what we want. I didn’t realise you had to hav a failed treatment to get RFA just thought you had to be stable! I continue to learn.
Keep in touch and yes stay warm xxx
Thanks for letting us know, Debs, about your biopsy result. Mine too confirmed that the liver spot is a secondary. No surprises there really. My onc says if he refers anyone again for ablation he will book them an mri and a biopsy beforehand, to save time! It has been 3 months since his referral at the beginning of August. Anyway, your result seems to mean you will continue with faslodex which has the very nice advantage of being an easy treatment for you! Aching bones behind you! For me the result should now mean having the ablation, and I wait for a phonecall from the churchill team. They can't possibly want any more tests! Also my biopsy came back HER2-ve, so I will probably come off the herceptin, although he has put off that decision for now. Seems to have been a pointless year on it, plus docetaxel, but I needed to have one failed treatment to have the ablation, so not entirely wasted!
Love to Nicky while I'm here.........you might drop by to catch up. We are still thinking of you at this difficult time.
Love to everyone else! keep warm! The short days are a bit of a shock.
Just a quick update. My liver biopsy confirmed it is metastases and the receptor ER positive 8/8 and PR positive 8/8. This is interesting as my bone mets are Er positive 8/8 but PR negative proving that the receptors can change. So I am continuing on Faslodex which I am finding such an easy treatment and am hoping to respond well. Having come off Exemestane I didn’t realise how much that made my bones ache, I always presumed it was the bone mets aching.
Hope you are all doing ok
Thank you ladies for your kind thoughts. It is tough dealing with this on top of everything else we have to deal with having SBC. I am not getting much ‘me’ time as you can I again, which is how I normally re charge my batteries so I need to get that back in place soon or I will get very run down, and we all know how that doesn’t help us!
im so sorry to hear about your Dad. Such a difficult thing to have to deal with on top of everything else. Sending you hugs and hoping you find comfort in the love and closeness of your family
Nicky........like debs can I just send my sympathy to you and of course your mum. It was obviously a shock, but as you said it is important now for you to keep as well as possible to cope and help your mum through. We are thinking of you and you are in my prayers.
Many thanks Deb and mo. Sadly my family crisis has been my Dad dying unexpectedly so there is a lot to deal with including supporting my Mum. I will be making sure that I look after myself, as much as her, because I have to make sure I am not overdoing it and getting run down. This is something I did not envisage, as far as I was concerned I was going to be gone way before either of them passed away as my adult daughters astutely told me! So this definitely wasn’t in my game plan! Anyway, thanks again for the support, things are calming down a little bit now so I have a bit more time for things like the forum which I generally check each day and I can keep following and keeping in touch. Good luck with everything - results, treatments and new oncologists.
Nicky........like debs just sending sympathy for your family crisis. I do hope whatever it is will resolve happily in the end. But don’t forget to think of yourself in the midst of it. Take care for now,
sorry to hear you have a family crisis to deal with. Most of our emotional resources are spent on keeping ourselves well and so it’s particularly hard when something else hits the fan too.
thinking of you
Glad to hear the biopsy wasn’t too painful mo, and good luck with the injections etc Debs. I don’t have mammograms either, as mo has said any changes will be seen on the CT.
I may not be on for a while as I’m dealing with a family crisis right now but will be trying to read as and when I can.