07-11-2018 10:32 AM
I have just been told that a liver met of around 2.5 cm has reappeared in my liver. The last time was 2 mets in 2015 which were ablated. The MRI shows a difficult position so RFA not an option this time. I've been given an outpatient appointment to see Professor Heaton head of liver at Kings on Monday. The nurse said on the phone that he will see if surgery is possible. I think the met is in the right side of my liver. I was looking on the forum for women who have had this treatment an d found you! I've got lots of questions that will obviously be answered Monday but in the meantime can you tell me more about the surgery/ hospital stay/ recovery time etc. Also what will happen if he decides he can't operate? I'm dreading the thought of another round of chemo.
thanks in advance
02-11-2018 11:10 AM
Well at least you are a step further to ablation. We seem like performing seals having to jump through hoops to get what we want. I didn’t realise you had to hav a failed treatment to get RFA just thought you had to be stable! I continue to learn.
Keep in touch and yes stay warm xxx
02-11-2018 12:12 AM
Thanks for letting us know, Debs, about your biopsy result. Mine too confirmed that the liver spot is a secondary. No surprises there really. My onc says if he refers anyone again for ablation he will book them an mri and a biopsy beforehand, to save time! It has been 3 months since his referral at the beginning of August. Anyway, your result seems to mean you will continue with faslodex which has the very nice advantage of being an easy treatment for you! Aching bones behind you! For me the result should now mean having the ablation, and I wait for a phonecall from the churchill team. They can't possibly want any more tests! Also my biopsy came back HER2-ve, so I will probably come off the herceptin, although he has put off that decision for now. Seems to have been a pointless year on it, plus docetaxel, but I needed to have one failed treatment to have the ablation, so not entirely wasted!
Love to Nicky while I'm here.........you might drop by to catch up. We are still thinking of you at this difficult time.
Love to everyone else! keep warm! The short days are a bit of a shock.
28-10-2018 12:24 PM
Just a quick update. My liver biopsy confirmed it is metastases and the receptor ER positive 8/8 and PR positive 8/8. This is interesting as my bone mets are Er positive 8/8 but PR negative proving that the receptors can change. So I am continuing on Faslodex which I am finding such an easy treatment and am hoping to respond well. Having come off Exemestane I didn’t realise how much that made my bones ache, I always presumed it was the bone mets aching.
Hope you are all doing ok
23-10-2018 07:46 AM
Thank you ladies for your kind thoughts. It is tough dealing with this on top of everything else we have to deal with having SBC. I am not getting much ‘me’ time as you can I again, which is how I normally re charge my batteries so I need to get that back in place soon or I will get very run down, and we all know how that doesn’t help us!
20-10-2018 11:56 AM
im so sorry to hear about your Dad. Such a difficult thing to have to deal with on top of everything else. Sending you hugs and hoping you find comfort in the love and closeness of your family
18-10-2018 06:40 PM
18-10-2018 11:44 AM
Nicky........like debs can I just send my sympathy to you and of course your mum. It was obviously a shock, but as you said it is important now for you to keep as well as possible to cope and help your mum through. We are thinking of you and you are in my prayers.
18-10-2018 07:52 AM
Many thanks Deb and mo. Sadly my family crisis has been my Dad dying unexpectedly so there is a lot to deal with including supporting my Mum. I will be making sure that I look after myself, as much as her, because I have to make sure I am not overdoing it and getting run down. This is something I did not envisage, as far as I was concerned I was going to be gone way before either of them passed away as my adult daughters astutely told me! So this definitely wasn’t in my game plan! Anyway, thanks again for the support, things are calming down a little bit now so I have a bit more time for things like the forum which I generally check each day and I can keep following and keeping in touch. Good luck with everything - results, treatments and new oncologists.
17-10-2018 10:38 AM
Nicky........like debs just sending sympathy for your family crisis. I do hope whatever it is will resolve happily in the end. But don’t forget to think of yourself in the midst of it. Take care for now,
16-10-2018 11:14 PM
sorry to hear you have a family crisis to deal with. Most of our emotional resources are spent on keeping ourselves well and so it’s particularly hard when something else hits the fan too.
thinking of you
16-10-2018 06:16 PM
Glad to hear the biopsy wasn’t too painful mo, and good luck with the injections etc Debs. I don’t have mammograms either, as mo has said any changes will be seen on the CT.
I may not be on for a while as I’m dealing with a family crisis right now but will be trying to read as and when I can.
15-10-2018 10:41 AM
Thanks for your response, debs. Yes, one more box ticked, and hopefully moving on to the rfa. You mentioned your mammogram. I was offered one last year..........they pop up automatically with no reference to individual circumstances, just age. I rang the mammogram team and they were reluctant to advise me so I cancelled it until seeing my onc. It could be rescheduled. He said that now that I am stage 4 it wasn’t relevent any more. Any change in my remaining breast would show up in ct scans, and my treatments are whole body now. So I didn’t rebook. I think you should just mention it to your new onc........who sounds excellent by the way........a fresh start such a good attitude........and he willl advise what he wants. At the same time having a mammogram won’t do any harm but as you said I also just felt I could do without any unnecessary tests these days! All that poking, prodding and pushing!
take care debs, and keep us updated on your new onc and any changes or adjustments. We learn by sharing with each other, and personally I like to know what is happening to those I ‘meet’ here on the threads. I think you should feel confidence in this new onc. A fresh start, which you needed.
15-10-2018 10:04 AM
Well done Mo another box ticked. So pleased it went well and sounded similar to mine in that he said it was easy to get at and not deep.
I haven’t any results yet but started my Faslodex injections last week. My new Onc at new hospital wants another set of scans so we can start off fresh and see how Faslodex works over next 3 months. Have had the MRI and got CT scan Friday.
I’ve also got mammogram today, do you still have these? I was wondering as I’m already stage IV is it even relevant? I’m starting to feel like “ leave me alone now” I’ve had so much prodding n poking the last 3 months, all necessary but will be glad to just settle into my new meds routine and lay off scans/ biopsy’s for a few months.
14-10-2018 05:06 PM
Just to update that I have survived my biopsy, although I do feel I have been kicked in the tummy! But not bad...........have not taken any painkillers............and my worry about bleeding was unfounded. Small scar has healed up fine, and no evidence of internal problems at all. I have taken it easy........very!........which may have helped. The radiologist who did it was very nice and fortunately a consultant.........it was on his badge! Not a trainee! He said it was very accessible indeed..........easy to get at and not near anything. That’s just luck. He said in his opinion it is a secondary..........i have thought so because of how it shrank post chemo, then grew again. Suspicious. But he was very keen on the rfa............has excellent outcomes. So.......roll on rfa! I suppose it will be a few weeks before I get a result.
anyway, I have survived intact, so thought I would just post the fact in case anyone else coming here has a liver biopsy on the cards. I was given a canula......just in case, for fluids, or whatever. Not needed. Also no food for 8 hours, but again just in case sedation was used. It wasn’t.
Hope everyone is well today. It’s raining down here, but really quite mild. Autumn gently arriving. Take care, everyone, especially Nicky, debs, jacksy..........everyone.
09-10-2018 09:23 AM
A quickie. All the best, debs, for your results. After reading both Nicky’s post and mine you can see how confusing liver results can be! But at the same time it is good to know that. Forewarned is forearmed! You will be able to discuss the results with real experiences behind you. Certainly the liver can have a different status, and the normal liver can be sprinkled with little cysts, haemangiomas, etc. My Churchill meeting apparently had liver surgeons there too........adding their experience of liver conditions and appearance.
nicky.........you have travelled a long and complex road! But the liver has been that problem. So diverse. Well, breast cancer isn’t all that straightforward generally. I had dots at the sec dx which US radiographers said we’re probably cysts, and they haven’t changed. Just the one spot. My question now would be if it isn’t a sec then why did it shrink with docetaxel? But of course docetaxel damages lots of cells of course, hence losing hair, etc. In a way I am hoping mine is confirmed as a sec which would be simple. Straight to rfa, with further in the future if needed, or resection. Certainty.
Like you, Nicky, I think the more we share the more we all learn and are armed to understand and discuss our position. I like to know what’s what! Oh, and my her2 was the result of the FISH test at the Churchill. My onc nearly put me on h&p 4years ago because of it. But a subsequent MDT meeting decided that as I was stable and well, to delay it. That proved correct, and in the end it didn’t affect this liver spot. This breast cancer is not as uniform as presented to us. And as you experienced, it can be ‘rogue’. My onc does point out occasionally that there is still so much we don’t know.
well, this was supposed to be a quickie! Take care anyone here reading. Our rambling posts are due to the awkward livers we all have! Non cancerous livers can be a problem too! Enjoy our Indian summer.........a perfect day ahead down here in bucks.
09-10-2018 08:23 AM
I wait with anticipation the biopsy results of mine. My bone biopsy scored maximum 8 for ER but negative for PR and HER. My primary in 1999 I was just told ER positive. Goodness knows what this little ugger will come back as! Will let you know.