Member
Posts: 3
Registered: ‎03-08-2016

Re: Top tips to help get you through Chemotherapy

Thanks for advice

Member
Posts: 14
Registered: ‎13-07-2016

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Ive got my first oncologist appointment tomorrow night and like you haven't got a clue what I need to get in preparation so the list of essentials from JenJen is a great start. All very scary but I remain positive and its great to see that others have the same worries/concerns that I have at this very early stage of our journey Smiley Happy

Community Champion
Posts: 575
Registered: ‎07-10-2015

Re: Top tips to help get you through Chemotherapy

Hi ScarletBea

I finished chemo end of March 16 I like you read the lists and bought stuff much of which went unused what I did use was

Paracetamol/ibruprofen
gentle laxatives
Diarrhoea relief tablets
Squash - lots and lots as water starts to taste nasty
Aveeno or other unscented body moisturisers
Alcogel hand stuff for out and about
Cordysl toothpaste and cordysl mouthwash
A kids toothbrush -i bought from £shop or b&m bargains as you get 5 in a pack and chucked mine away every cycle
Crackers or crispbreads for cba cooking need to eat meals - with various toppings whatever I had in

Little picky snacks nothing in particular just stuff other people in the house would eat if I decided I didnt want it/like it i bought nuts, crisps, pretzels, raisins just more than id usually buy as snacky type meals are easier when your not hungry and cba

I didnt use any of the ginger stuff I had bought as didnt really get nausea or sickness but you could grate fresh ginger from the freezer into water with some honey so it stays fresh and doesnt cost much Smiley Happy

Anything else you need you will be able to get people to pick up or buy in your good days (and you will have them)

Its scary prepping for chemo its kind of like prepping or armageddon but it is doable and you will be well lots of the time so get the basics in and you can always get the rest or ask someone else to

Jen x

Member
Posts: 20
Registered: ‎02-06-2016

Re: Top tips to help get you through Chemotherapy

I was given the info for Headstrong by BCN to make my own appt , and received referral info for wig through post today... Wasn't going to bother with a wig or cold app but BCN encouraged me to t least have a look at the wigs available. Makes you less noticeable seems to be the reasoning - doesn't really bother me - keep nipping to shop and forgetting I haven't put my softie in 😱Suppose no hair is more noticeable though. Will look into the Toni and Guy session.

Member
Posts: 24
Registered: ‎04-06-2016

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Annietre wrote:

make wig appt, make headstrong appt ...

 

I mentioned Headstrong to the nurse today (first time I visited the chemo ward) and she said it's them who make a referral to that service, after the first cycle. Maybe it's different by region/hospital, though.

 

And about the wig, I'm not going to get one, but from a Macmillan booklet I found out about the Toni&Guy "Strength in Style" service, and you can get an appointment with one of their specialists to talk about hair treatment, wig styling, etc. The first one is free and doesn't force you to continue.

I'm going to check it out on Monday.

Member
Posts: 20
Registered: ‎02-06-2016

Re: Top tips to help get you through Chemotherapy

I need an idiots guide to top tips too SCarletBea , heart scan next week should be starting chemo 1st or 2nd week of August . Trying to do a list  and not succeeding , make wig appt, make headstrong appt ... Rest is vague , sun screen, moisturiser, boiled sweets ? When I get actual date might organise me more . Note book for chemo brain I have already as I am already fuzzy headed. 

Member
Posts: 24
Registered: ‎04-06-2016

Re: Top tips to help get you through Chemotherapy

Hi, I'm meeting the consultant oncologist for the first time later this week to discuss my oncoming chemo, probably to start early August.

 

I read the other tip thread completely, a bit of this one, and I'm so confused. There's just so much information, and my brain is still a bit fuzzy from 2 general anaesthetics...

 

Could some kind soul make me a list of the *truly essential and basic* things I need to get before I start?

There's just so much, I don't know what I can leave to worry about/sort out later or what I should really have on the hour zero...

T
Member
Posts: 21
Registered: ‎22-06-2016

Re: Top tips to help get you through Chemotherapy

Fab thx Sue x

Community Champion
Posts: 930
Registered: ‎31-03-2016

Re: Top tips to help get you through Chemotherapy

Hi T - 

just pop into Boots and get a digital thermomenter

 

 http://www.boots.com/en/Boots-Digital-Thermometer_1125289/

 

Sue xx

T
Member
Posts: 21
Registered: ‎22-06-2016

Re: Top tips to help get you through Chemotherapy

Hi, Can anyone recommend a decent thermometer please, thank you x

Member
Posts: 33
Registered: ‎19-06-2016

Re: Top tips to help get you through Chemotherapy

Thanks for the advice Sue! I will join that thread. x

Community Champion
Posts: 930
Registered: ‎31-03-2016

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Hi Popkit50

 

The dizzyness should go afer about day 8-10 post  treatment - it it because your red blood count is dropping and not so much oxygen is getting to your muscles and the rest of your body. It is not because of the tablets you are taking. This dizzyness  may likely come back after each treatment between days 3/4 and last to day 9/10.

 

You might find it helpful to join the June 2016 sarters chemo thread. There are many ladies at about the same stage of your treatment. It is a fun and lively thread and I feel sure it could be of great help to you.

 

This is the link  https://forum.breastcancercare.org.uk/t5/Chemotherapy-monthly-threads/June-2016-starters/m-p/1026023...

Warm wishes

Sue xx

 

Member
Posts: 33
Registered: ‎19-06-2016

Re: Top tips to help get you through Chemotherapy

Hi

 

I'm on day 5 of first FEC treatment and so far the worst thing seems to be a feeling of dizzyness most of the time. My mouth isn't too sore yet but I can feel it going that way. I have a raging thirst most of the time and have been drinking as much water as possible. Does anyone know if the dizzy feeling will go or is it to be expected for the duration of all treatments? I'm thinking it might be the Lansoprazole I have to take every morning so was wondering if there might be an alternative I can take?

Thanks 

Member
Posts: 288
Registered: ‎15-04-2016

Re: Top tips to help get you through Chemotherapy

Is there a product that covers your scalp. ...bald spots? Or am i being silly.....? X

Member
Posts: 288
Registered: ‎15-04-2016

Re: Top tips to help get you through Chemotherapy

Wonderful stuff.....will try it. Is it when the T part starts? X
Member
Posts: 3
Registered: ‎01-06-2016

Re: Top tips to help get you through Chemotherapy

I have had good result from something called 'Diamond' nail hardener that I bought in boots.  My nails as a result are actually longer than normal and I am 4 FEC chemos down!.  I did take it off the other day and before I reapplied my nail had broken so the stuff definitely works

Member
Posts: 288
Registered: ‎15-04-2016

Re: Top tips to help get you through Chemotherapy

Anyone know the protocol. ..tips, for nail care please? 

Member
Posts: 288
Registered: ‎15-04-2016

Re: Top tips to help get you through Chemotherapy

Thankyou for that. I ended up being called intotthe ward to be checked over. They gave me tramadol for the awful head and some gelclair for my mouth. Tramadol didn't do anything and my daughter called in again as my temp kept going up slightly but the paracetamol was probably masking it. Ended up having to call ward in the night with my temp and luckily it was ok. Made myself get up today....my birthday and received lovely pressies. Hopefully nasty heads going. ...just a dull ache now. My eldests a nurse so bless her she's constantly monitoring me xx
Member
Posts: 254
Registered: ‎22-08-2013

Re: Top tips to help get you through Chemotherapy

[ Edited ]

I was given mouthwash on prescription, the name of it escapes me now, I was told corsydil can stain your teeth.  Anyhow worth asking your team about a mouthwash script if your suffering x

 

haha just remembered it was called Difflam.

Member
Posts: 288
Registered: ‎15-04-2016

Re: Top tips to help get you through Chemotherapy

Thanks both! Xx