02-08-2016 10:30 AM - edited 02-08-2016 10:32 AM
Ive got my first oncologist appointment tomorrow night and like you haven't got a clue what I need to get in preparation so the list of essentials from JenJen is a great start. All very scary but I remain positive and its great to see that others have the same worries/concerns that I have at this very early stage of our journey
22-07-2016 06:11 AM
21-07-2016 05:10 PM
I was given the info for Headstrong by BCN to make my own appt , and received referral info for wig through post today... Wasn't going to bother with a wig or cold app but BCN encouraged me to t least have a look at the wigs available. Makes you less noticeable seems to be the reasoning - doesn't really bother me - keep nipping to shop and forgetting I haven't put my softie in 😱Suppose no hair is more noticeable though. Will look into the Toni and Guy session.
21-07-2016 02:17 PM - edited 21-07-2016 02:21 PM
make wig appt, make headstrong appt ...
I mentioned Headstrong to the nurse today (first time I visited the chemo ward) and she said it's them who make a referral to that service, after the first cycle. Maybe it's different by region/hospital, though.
And about the wig, I'm not going to get one, but from a Macmillan booklet I found out about the Toni&Guy "Strength in Style" service, and you can get an appointment with one of their specialists to talk about hair treatment, wig styling, etc. The first one is free and doesn't force you to continue.
I'm going to check it out on Monday.
21-07-2016 12:02 PM
I need an idiots guide to top tips too SCarletBea , heart scan next week should be starting chemo 1st or 2nd week of August . Trying to do a list and not succeeding , make wig appt, make headstrong appt ... Rest is vague , sun screen, moisturiser, boiled sweets ? When I get actual date might organise me more . Note book for chemo brain I have already as I am already fuzzy headed.
16-07-2016 09:13 PM
Hi, I'm meeting the consultant oncologist for the first time later this week to discuss my oncoming chemo, probably to start early August.
I read the other tip thread completely, a bit of this one, and I'm so confused. There's just so much information, and my brain is still a bit fuzzy from 2 general anaesthetics...
Could some kind soul make me a list of the *truly essential and basic* things I need to get before I start?
There's just so much, I don't know what I can leave to worry about/sort out later or what I should really have on the hour zero...
19-06-2016 06:46 PM - edited 19-06-2016 06:47 PM
The dizzyness should go afer about day 8-10 post treatment - it it because your red blood count is dropping and not so much oxygen is getting to your muscles and the rest of your body. It is not because of the tablets you are taking. This dizzyness may likely come back after each treatment between days 3/4 and last to day 9/10.
You might find it helpful to join the June 2016 sarters chemo thread. There are many ladies at about the same stage of your treatment. It is a fun and lively thread and I feel sure it could be of great help to you.
19-06-2016 06:38 PM
I'm on day 5 of first FEC treatment and so far the worst thing seems to be a feeling of dizzyness most of the time. My mouth isn't too sore yet but I can feel it going that way. I have a raging thirst most of the time and have been drinking as much water as possible. Does anyone know if the dizzy feeling will go or is it to be expected for the duration of all treatments? I'm thinking it might be the Lansoprazole I have to take every morning so was wondering if there might be an alternative I can take?
01-06-2016 05:29 PM
I have had good result from something called 'Diamond' nail hardener that I bought in boots. My nails as a result are actually longer than normal and I am 4 FEC chemos down!. I did take it off the other day and before I reapplied my nail had broken so the stuff definitely works
19-05-2016 11:31 AM
18-05-2016 07:24 AM - edited 18-05-2016 07:25 AM
I was given mouthwash on prescription, the name of it escapes me now, I was told corsydil can stain your teeth. Anyhow worth asking your team about a mouthwash script if your suffering x
haha just remembered it was called Difflam.