Member
Posts: 4
Registered: ‎01-09-2017

Re: Top tips to help get you through Chemotherapy

Thank you x

Member
Posts: 4
Registered: ‎01-09-2017

Re: Top tips to help get you through Chemotherapy

Thanks, pre assesment Tuesday, start Chemo Thursday so will see what she says. Thanks again.

Member
Posts: 96
Registered: ‎07-08-2017

Re: Top tips to help get you through Chemotherapy

Hi Lozy

 

I had a PICC line in on Monday. I took some co codamol beforehand. I do this before dentist visits too. Hardly felt the local anaesthetic and totally pain free procedure. I was advised to use a hot compress with a cover for the first couple of days. I had my first chemo and having the line made it a really easy procedure.

 

Rhona x

Member
Posts: 187
Registered: ‎21-06-2016

Re: Top tips to help get you through Chemotherapy

Hi Lozy

Just saw your post re Picc line, I had one it was put in with local anesthetic and then I had to have an xray to make sure it was in the right place, all completely painless.

All chemo drugs, blood tests etc are done through the line so no harm to your viens, had to go every 10 days to my local clinic and have the line flushed and dressings changed again painless and easy to cover with plastic sleeve so showering etc not effected.

From my experience I would say if offered one take it

Good Luck and Best Wishes

Mary x

Community Champion
Posts: 821
Registered: ‎21-01-2017

Re: Top tips to help get you through Chemotherapy

Hi Lozy, sorry no one has replied re PICC line. I can tell you of my experience with a Hickman line if it would help? I, too, don't like needles , but that's because my veins are so thin there is always bother  finding them. As my chemo would last 5 months my Onco, once he'd looked at my good arm ( can't use the side the ops been on) decided that a Hickman line was the way to go. It went into the chest below the clavicle. The anaesthetic was local into the breast. The procedure , for me, wasn't the easiest . Again, all my veins are narrow so to thread tubing in was a bit difficult . It made administering the drugs extremely easy, and much reduced the time needed for each session. I have met a couple of ladies on my hospital visits who have had PICC lines fitted and it greatly helped the administering of the drugs. Both of them had the lines fitted after their treatment had started, and because their veins had hardened. PICC lines don't last as long as the Hickman. X

Member
Posts: 4
Registered: ‎01-09-2017

Re: Top tips to help get you through Chemotherapy

Hi Sue I start chemo in the next few weeks and am considering a PICC line as I am needle phobic and feel this will help me and the poor nurses. Can you tell me a little bit more about your experience. How long did it take to insert did they use an aesthetic? Thank you
Community Champion
Posts: 821
Registered: ‎21-01-2017

Re: Top tips to help get you through Chemotherapy

Hi Melly, everyone is very different re SE's, but I think you should let the Chemo team know about the palpitations. It may be that this is unusual and your dose needs adjusting. I'm not a medic so don't know, but the advice to me was, if in doubt ring.

Fatigue is fairly common, and if you have a little booklet and start writing down symptoms you may find a pattern emerging. This is helpful in planning stuff during cycles. For me I had one week knocked for six, one week ok but no immunity so didn't go out much, and the last week I was full of beans! Then it was the next round of chemo. The fatigue was cumulative for me, so by my fourth one there weren't so many beans, more like spaghetti! Im half way through rads now , so it's all doable. X

Member
Posts: 3
Registered: ‎27-08-2017

Re: Top tips to help get you through Chemotherapy

Thank you Nicky49 and all you lovely people. I've just started FEC-T, first cycle 10 days ago and it has hit me like a ton of bricks! I didn't expect racing heart and missed beats as well as fatigue after the first one. Any tips for getting through it is sooo helpful. It all feels very daunting right now.
Member
Posts: 863
Registered: ‎09-11-2015

Re: Top tips to help get you through Chemotherapy

 Hi Dotty79, 

 

I have moved your post to a thread that has already been started, Chemotherapy - Tips and Tricks. The ladies on here are very supportive and I am sure they will be along to share their tips soon. 

 

Best wishes, 

Lizzy 

 

Member
Posts: 36
Registered: ‎15-05-2016

Falling off nails !

[ Edited ]

Hi well I finished chemo 1st September 2016 and radios last week and the past 3 weeks I've developed really soft nails that have lifted off the nail bed they smell occasionally and are generally manky and painful I've tried nail polish what else can I do ?

Community Champion
Posts: 417
Registered: ‎31-07-2015

Re: Top tips to help get you through Chemotherapy

The little pots of fruit in jelly or fruit salad pots are great. A flask for hot water  to keep for days when you struggle to get up. I agree with JenJen that a lot off stuff gets bought but not used. You do need a thermometer. The only thing I would say about the mouthwash is to get the non alcohol version. Chemo is scary but until you do the first cycle you won't know how you'll be affected by it.

Do get yourself on the monthly thread for your chemo as having the support of people at the same stage as you is invaluable. All the best for your treatments. xx

Member
Posts: 3
Registered: ‎03-08-2016

Re: Top tips to help get you through Chemotherapy

Thanks for advice

Member
Posts: 44
Registered: ‎13-07-2016

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Ive got my first oncologist appointment tomorrow night and like you haven't got a clue what I need to get in preparation so the list of essentials from JenJen is a great start. All very scary but I remain positive and its great to see that others have the same worries/concerns that I have at this very early stage of our journey Smiley Happy

Community Champion
Posts: 587
Registered: ‎07-10-2015

Re: Top tips to help get you through Chemotherapy

Hi ScarletBea

I finished chemo end of March 16 I like you read the lists and bought stuff much of which went unused what I did use was

Paracetamol/ibruprofen
gentle laxatives
Diarrhoea relief tablets
Squash - lots and lots as water starts to taste nasty
Aveeno or other unscented body moisturisers
Alcogel hand stuff for out and about
Cordysl toothpaste and cordysl mouthwash
A kids toothbrush -i bought from £shop or b&m bargains as you get 5 in a pack and chucked mine away every cycle
Crackers or crispbreads for cba cooking need to eat meals - with various toppings whatever I had in

Little picky snacks nothing in particular just stuff other people in the house would eat if I decided I didnt want it/like it i bought nuts, crisps, pretzels, raisins just more than id usually buy as snacky type meals are easier when your not hungry and cba

I didnt use any of the ginger stuff I had bought as didnt really get nausea or sickness but you could grate fresh ginger from the freezer into water with some honey so it stays fresh and doesnt cost much Smiley Happy

Anything else you need you will be able to get people to pick up or buy in your good days (and you will have them)

Its scary prepping for chemo its kind of like prepping or armageddon but it is doable and you will be well lots of the time so get the basics in and you can always get the rest or ask someone else to

Jen x

Member
Posts: 22
Registered: ‎02-06-2016

Re: Top tips to help get you through Chemotherapy

I was given the info for Headstrong by BCN to make my own appt , and received referral info for wig through post today... Wasn't going to bother with a wig or cold app but BCN encouraged me to t least have a look at the wigs available. Makes you less noticeable seems to be the reasoning - doesn't really bother me - keep nipping to shop and forgetting I haven't put my softie in 😱Suppose no hair is more noticeable though. Will look into the Toni and Guy session.

Member
Posts: 30
Registered: ‎04-06-2016

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Annietre wrote:

make wig appt, make headstrong appt ...

 

I mentioned Headstrong to the nurse today (first time I visited the chemo ward) and she said it's them who make a referral to that service, after the first cycle. Maybe it's different by region/hospital, though.

 

And about the wig, I'm not going to get one, but from a Macmillan booklet I found out about the Toni&Guy "Strength in Style" service, and you can get an appointment with one of their specialists to talk about hair treatment, wig styling, etc. The first one is free and doesn't force you to continue.

I'm going to check it out on Monday.

Member
Posts: 22
Registered: ‎02-06-2016

Re: Top tips to help get you through Chemotherapy

I need an idiots guide to top tips too SCarletBea , heart scan next week should be starting chemo 1st or 2nd week of August . Trying to do a list  and not succeeding , make wig appt, make headstrong appt ... Rest is vague , sun screen, moisturiser, boiled sweets ? When I get actual date might organise me more . Note book for chemo brain I have already as I am already fuzzy headed. 

Member
Posts: 30
Registered: ‎04-06-2016

Re: Top tips to help get you through Chemotherapy

Hi, I'm meeting the consultant oncologist for the first time later this week to discuss my oncoming chemo, probably to start early August.

 

I read the other tip thread completely, a bit of this one, and I'm so confused. There's just so much information, and my brain is still a bit fuzzy from 2 general anaesthetics...

 

Could some kind soul make me a list of the *truly essential and basic* things I need to get before I start?

There's just so much, I don't know what I can leave to worry about/sort out later or what I should really have on the hour zero...

T
Member
Posts: 21
Registered: ‎22-06-2016

Re: Top tips to help get you through Chemotherapy

Fab thx Sue x

Community Champion
Posts: 1,562
Registered: ‎31-03-2016

Re: Top tips to help get you through Chemotherapy

Hi T - 

just pop into Boots and get a digital thermomenter

 

 http://www.boots.com/en/Boots-Digital-Thermometer_1125289/

 

Sue xx