Bevrax, you are allowed to cry, and scream and shout if that’s how you feel. Once is bad enough, but twice seems 😱. Unfortunately it does happen more often than you would think. I’ve got secondaries in my lungs, and quite honestly they don’t bother me. I’m on a double whammy of Letrozole and Palbociclib and they are doing a great job. I was diagnosed almost three years ago, and there are even better drugs available since then.
I think you need a proper discussion with your main consultant. Preferably with someone to support you and write everything down for you. I’m sure that knowing how you feel will be helpful in formulating a treatment pathway for you. Emotional resilience is part of that treatment. Push for psychological services support, holistic treatments and ask what else?? Always a good question to end a meeting with. 💐😘
Very sorry you have had such rubbish news - the ladies in the secondary section of the forum will give you lots of advice and support when you are ready to go there - some are living their lives to the full years after this diagnosis - hopefully you will be the same 🤞.Jill x. https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/ct-p/secondary_breast_cancer
Bevrax sending ❤️Please use the ask the nurse and someone like me option and also jump onto chemo thread on here, there is a September 2019 chemo starters and if you are starting in October there will be a October 2019 chemo starters one starting. 👭👭chemo is easier when you can share with others who understand and are going through chemo too ❤️ Do speak to your teams too there are reflexology classes and things that you could look at and book your look good feel better session through Macmillan at your unit, 💕💕✨✨Shi xx
So sorry Bevrex, having it once is bad enough but for it to return, that's just awful.
Do chat with the McMillan nurses at the hospital and breast care nurse specialists as you need to and the team on the helpline here also.
Sending you feeling calmer days.
Big luv n Hugs
Thankyou for replying,unfortunately my C T scan showed secondaries in my lung and top of spine!
I am devastated,I now have to have chemo which I am dreading and can’t stop crying,I am such a coward.
You may well have done so already but I would definitely discuss how you are feeling with your support team. Not sure if you have a dedicated breast cancer nurse? If so they can either help or point you in the right direction to get the support you need.
Alternatively call the charities helpline as that's partly what they are there for...to support you and others going through this challenging time.
I am now waiting for a CT scan to check if there’s any secondary’s anywhere else then if that’s ok I am to have a mastectomy.
i had Breast cancer in 2002,had partial Breast removal with lymph nodes excised and radiotherapy,then tamoxifen for five years,all fine until now.
I seem to be having terrible panic attacks,I feel weak,giddy and faint,my hearts beating so loud and fast.I don’t know what to do?