11-12-2017 05:13 AM
i am 49 female just been through the wars with breast cancer 2 surgeries li cap reconstruction not healing well i had many arguments with my surgeon who blames it on my diabetics now taking herceptin and taxifen for 5 years
after 6 weeks and 2 infusions of herceptin my ankles and feet swollen and hands are very sore as well i am totally over doctors and specialists forcing me to do radiotheraphy and take these drugs i want to work can anyone give some advise
05-10-2017 06:06 PM
I am delighted to say that your weight does come back to normal when you finish Herceptin!
I went to see my oncologist after all my treatment was over (had the last of 18 Herceptin injections at the end of August). My weight increased by 6 kilos from the time I first saw him to this last time - well I am not quite discharged but I do not have to go back for a whole year.
I have lost 2 kilos in as many weeks and I have not been trying. I am not bloated and my tummy is flatter. I think it is water weight because I had horrendous water retention on the chemo and the Heceptin seemed to prevent me from losing it.
08-08-2017 04:48 PM
Hi, I too gained weight, 30 pounds to be exact. I was on Herceptin for 18 months. My last treatment was last March, 2016. My bone and joint pain is crippling. I used to be very active and now I have a hard time climbing the stairs. I am prone to injury and have sustained a partial rotator cuff tear and a partial miniscus tear, from basically doing nothing. I can't lose the weight I gained, although I am eating healthier than ever. I am also losing my hair. Herceptin did wonders for my 8 cm tumor, but it has destroyed so much. I have no energy and am always tired. I don't think they know enough about the side effects of Herceptin, but it definitely beats the cancer.
20-05-2017 07:25 AM
How well did the green coffee work for you?
I lost 25 lbs during the first 6 months of chemo. I finished Herceptin in January and have gained 25 plus. Same diet and exercise.
Not thrilled about going from size 8 to 14 in that short of time.
27-03-2017 09:36 PM
i have my final herceptin on 10th April ( yay!)
i am a keen runner and have run through the whole thing with no weight gain UNTIL......
the past few weeks! I have just found everything has just got harder, and I haven't felt so well. I assume it is a cumulative thing. I haven't put loads on but I feel bloated and fat where I'm not normally.
my echo s have remained very good
i am on tamoxifen.
27-03-2017 12:48 PM
I was trying many diets, exercises for weight loss, but I'm kinda lazy
2 months ago i found green coffee plus (producer website - igreencoffee.pl) and that really helped me
Now when i'm slim I feel more confident too
26-03-2012 03:33 AM
re swimming and fitness. Prior to DX I swam a kilometre every morning before work. Onc wouldn't let me swim during chemo or radiotherapy. I returned to swimming 4 weeks after radio finished. First time managed 12 lengths (nearly killed me) but by third visit was back to a kilometre YIPPEE ! my problem is lack of motivation, spent months desperate to go back to my regular daily exercise, but now find I make excuses not to go!!
25-03-2012 03:10 PM
i have been readin that some ladies do go swimming while on chemo, i mention swimming to my chemo nurse about swimming, saunas and things like this and she said not to because if infection, but i am gutted because i love swimming.
03-02-2012 10:04 AM
Thats the sort of message I like to see. I am hoping that because I am doing my Slimming World to the letter, 3 times gym and spin classes now, that over the next few months the weight will go in the right direction, once I have less drugs in my system to affect it.
Out of interest are you on Tamoxifen or one of the AIs now or nothing at all.
03-02-2012 01:41 AM
Hi All ,
I put on altogether 15 kgs from the time of my diagnosis , combination of chemo , herceptin , inactivity , menopause , stress , etc . Anyway , over the last 12 months I am doing daily walks , 3 times a week circuit and weight watchers ... and I am glad to see myself back to my very normal weight :-)
02-02-2012 12:21 PM
Just to add, i am not on Tamoxifen and went throught the menopause years ago, so in my case it can only be a combination of chemo ( FEC T ) which I finished in Dec 2010 and Herceptin March 2010 to date.
02-02-2012 09:04 AM
I started Herceptin yesterday (for one year) after 3 FEC's (start Docetaxel today), I have put on good three kg since I started FEC two months ago. I'm not working since Dec (had a physical job, but worked only part time, dog grooming) and so exercise less. I just walk my dogs now for exercise. This is really frustrating as I don't eat a lot of bad food. I've never been overweight all my life, but if I put another kg on I just tipped the scales into being overweight, really don't want this. At the chemo unit they tell me it's probably the hormonal changes going on (although I still have a period after three FEC's albeit a bit weaker and by two days delayed, I'm 42) and the less exercsie that I put on weight, as I don't eat any different from before.
I cut down my portion sizes and increase more fruit and veg in my diet and hope this will help. As soon as I'm rid of this PICC line I might take up aqua aerobic at the local swimming pool.
01-02-2012 11:40 PM
Can we accurately blame Herceptin, or is it the effects of treatment-induced menopause? I suspect the other treatments we have that have messed with our hormones have the biggest effect. Whether or not you also have Tamoxifen, if you're pre-men before diagnosis the chances are you'll get hit with a treatment-induced menopause.
Just take a look at menopausal women who haven't had any cancer treatment and it's clear that after menopause any weight that goes on tends to go on around the middle.
While it would be nice to say "it's the fault of the Herceptin", I suspect it's more to do with the induced menopause. The problem for us is that we've been thrown headlong into this, so we haven't been able to gradually adapt our way of doing things to maintain our weight as we may have done if left to our own devices (without the influence of BC and its treatment). The Herceptin-induced tiredness doesn't help with increasing activity levels either, so it does have some effect.
It's going to be an uphill walk for most of us, I suspect. But I'm not going to give up and pile on any more weight without a fight. (Says she, who today had a very nice jam doughnut warmed in the oven to make it particularly delicious as an elevenses snack...)
(Just in case you think I'm being judgemental. Or holier-than-thou - at a BMI that puts me in overweight, I don't think so!)
Hugs to all.
01-02-2012 10:19 PM
The docs tend to say that Herceptin causes no problems and no weight gain. I have had the same mantra from my consultant more than once. I know that my weight gain is due to Herceptin, as from my starting weight I lost a stone on chemo, then started back at the gym three times a week plus spin classes after my surgery whilst having rads and have continued the same since going back to work so am back to my fomer fitness, it's just that I now have excess round the middle.
I took Tamoxifen for a month but the side effects were that bad I stopped taking it and have not taken any since October. Not a popular decision but can't cope with that and Heceptin. May give it another go in a few months but am quite comfortable not.
01-02-2012 05:44 PM
I've been on herceptin since dx back in march 2011 and because of secondaries will probably be on it for as long as it works. I have also put on weight again same as you around my middle, although my weight has yoyo'd a bit over the past year I did'nt think that hercpetin was the weight gain culprit I thought it was the tamoxifen, are you ladies also on tamoxifen?
love and light
01-02-2012 05:03 PM
Speaking simply, it IS about the difference between what you put in your mouth and what you use up, but with the treatments we have undergone our bodies use up the calorific input differently, and the treatments often mean we are too knackered to be as physically active as we would have been otherwise. So there's two reasons why it's NOT as simple as it sounds.
I'm going to a Masters swimming club this evening, in the vain attempt to get back to some degree of activity. I've been saying for ages (yes, a couple of years!) that I needed to get back to some regular exercise, so I'm hoping this will kick-start an increase in activity levels, as I've slowed down a great deal since March last year when I started chemo. Still have 8 Herceptin to go so there's additional hope that the stone I've been carrying will disappear.
01-02-2012 01:39 PM
Glad its not just me then. Looks like it will be Spanx all the way for a few weeks at least.
What is it about Herceptin that makes all oncs say there are no side effects. Mine is the same. It is not about just what you put in your mouth. I have followed a Slimming World eating plan for the last 4 years to the letter since I lost a stone then and always stayed the same until about 2 months ago. And like you ladies all the weight is around my middle with a bit around the tops of thighs.
Apparently from what I have been reading it takes up to 6 months to wash out of your system because at each treatment you have half left from the previous one (if that makes sense) so at the end of 12 months you have 6 months left in your body.
I know we are still grateful to be here and on the road to recovery but roll on June I say!!!
01-02-2012 01:29 PM
I finished 18 herceptin 3 weeks ago and i gained a stone since diagnosis and thats all around my middle although its not just with herceptin as most of it went on with chemo. 4 weeks ago i broke my wrist so have been quite inactive but am hoping the weight will go. My onc says its just about what you put in your mouth. Im not so sure, i admit ive eaten more crap since the treatment but am getting back to normal now. Once i can get active again and some warm weather to help im sure it will go.