06-08-2017 09:55 PM
If you read through this thread, you will see that my tumour shrunk taking letrozole, and was able to have a lumpectomy. I totally get that you want to avoid invasive treatment - I was against chemo from the start, and although advised, I refused. You have to do what is right for you - you may still need a lumpectomy some time in the future, but it really is not a big deal and I am the biggest coward out.
My tumour was grade 1 and I had 1 positive lymph node.
I did have radiotherapy, was really tempted not to - it's the long term effects that are concerning.
02-08-2017 02:32 PM
23-01-2017 05:37 PM
no - I was supposed to start the chemo in January but my oncologist has said I will be on letrozole for the foreseeable future and if it stops working, he will change to another hormone thereapy. The tumours are shrinking and it is just such a relief.
23-01-2017 05:34 PM
Thanks ever so much - had another check up on 10th January and am now to be on letrozole for the foreseeable future - it is fantastic news and the side effects are minimal - can cope quite easily - what a difference it makes feeling well again
29-11-2016 10:37 AM
I was diagnosed with stage IV breast cancer with secondary tumours in my lungs last month - my oncologist put off the chemo till after a big life event (wedding) early in December - when I went yesterday for my check up and bear in mind I have only been on Letrozole since 20 October, he was very pleased to see the tumour had shrunk quite considerably and then when he looked at the new xray of my lungs, these tumours were much smaller too. I am over the moon and so grateful for such a wonderful doctor. I see him again in 6 weeks and will have another CAT scan then but the relief i feel is amazing - chemo had been planned to start on 12 December. I do realise that i will be on therapy of some description for the rest of my days but i feel so much more piositive now.
31-08-2015 07:46 PM
well, the oncologist could not categorically say that the tumour could not grow or spread while taking the hormones, although it would be 'very unlikely'. I got her to actually say that she would recommend surgery, so I followed the surgical route. However, this hasn't been without its problems. I first had a mammoplasty but didn't get clear margins as the tumour was a lot bigger than had shown on the MRI scan, so I had a completion mastectomy, 4 weeks later. Am slowly getting over it. Luckily it had not spread to my lymph glands, now waiting for final results and treatment plan. I think I made the right decision.
31-08-2015 01:30 PM
What did you decide? I've only just seen your questions. I think you answered yourself with points A and B.
My decision would be mastectomy, total node clearance and hormones. My primary was picked up way too late and found in 11 of 16 nodes.
No-one wants to make a decision for you so you have to get as clued up as possible and do everything you can to limit your risk of recurrence. If it recurs you'll be totally in the soup and there's no going back. As women with secondaries/metastatic breast cancer, we're told we're 'incurable' and any hope we once had of ever getting our lives back to some sort of normal are totally dashed.
You may be xxxx-scared but you have hope. We are xxxx-scared wishing for a cure so we could feel hope.
04-07-2015 12:19 PM
So glad to find this thread. This is the exact dilemma I have at the moment. I have been offered full or partial mastectomy or homone treatment to shrink tomour (currently 23mm) followed by lumpectomy and radiotherapy. I'm seeing oncologist on Friday to discuss the hormone treatment but I have 2 worries. A) is the delay in surgery 'dangerous'? If it doesn't shrink might it grow and spread to my lumph nodes/elsewhere? and B) Can I cope with this cancer in my body for up to 9 months. Would be good to hear of more poelple's experiences/outcomes. Thanks for reading.
16-02-2015 11:08 PM
Delighted to report that after taking letrozole for just over a year, I have been able to have a lumpectomy last week. Back for results today, and 16mm of grade 1 disease removed with clear margins. Although had 1 positive node, will not consider chemo, and declined total node clearance. Next to decide on radiotherapy
15-05-2014 10:38 PM
Realise this is an old thread -womdered if many others have taken letrozole to shrink the tumour? I have been taking letrozole for 6 months now and little change. Consultant has told me to carry on.
Have seen reports that there can be a response up to 1 year+ and optimum duration is 8 - 10 months.
My tumour is measured as 3cm, grade 1 but high in breast and close to chest wall.
09-09-2010 11:47 PM
I had Letrozole for almost 6 months prior to surgery, it shrank my tumour from 5 cm to 2.5 cm. I also had palpable lymph nodes which had become much reduced. Because I had cancer in my lymph nodes I needed chemotherapy. I am still taking letrozole, hopefully it will prevent it returning.
Best wishes to all,
08-09-2010 01:00 PM
Similar to Rachel who "had letrozole prior to surgery, chemotherapy and radiotherapy to shrink my tumour to enable breast conserving surgery rather than mastectomy", I also want to avoid a mastectomy. But I don't really want to have months of hormones and then still need chemo before surgery.
Rachel - Did you find the letrozole shrunk the tumour enough or did you also need chemo prior to surgery? How long did it take to shrink before you could have surgery?
06-09-2010 12:31 AM
I had letrozole prior to surgery, chemotherapy and radiotherapy to shrink my tumour to enable breast conserving surgery rather than mastectomy. It was a clinical trial and I was also concerned about having to wait whilst having the hormone therapy prior to to the commencment of the conventional treatment. In hindsight now I am very pleased with the outcome I still have two breasts although one is smaller I look normal in clothes! It is difficult take a tablet when all you want is to get rid of the cancer but I am pleased with the outcome I have had so far. You should be closely monitored whilst you are on the tablets anyway.
Best wishes to all,
05-09-2010 02:39 PM
I think one possible advantage of having the hormone therapy first is you find out whether it works for you or not. Must of us have had an op and chemo first, then many years on hormone therapy afterwards (Tamoxifen or AI's for the post menopausal)- but we could be taking it for a long time without knowing whether it is affective, during which time the cancer could be spreading. Cromercrab found out it didn't work, so now will be offered a different treatment at the end of her chemo - and hasn't wasted too much time finding out. Maybe this is something you could ask your onc about.
It's confusing to be offered different options, but things often aren't clear cut with breast cancer - it's a complex disease, and thankfully there is more than one way to tackle it. Maybe when your onc gets more results form the biopsy it will make the decision easier.
05-09-2010 01:44 PM
Hormones did not work for me I am afraid and I shall be going down the chemo route Sept 13th. Hopefully that should sort things. Feel a bit like back to square one,. Everyone is different, so hormones might be a kinder option for you.
Thanks for asking