24-12-2017 10:14 PM
Hi Kim and everyone else on this thread. I've really suffered with terrible joint aches since the start of the Herceptin injections. Initially my oncologist denied that it was anything to do with Herceptin but I went to see him for a review in November and he confessed that several other patients have also had very similar symptoms so he now thinks it is related to Herceptin. To cut a long story short, I was prescribed steroid tablets which were just brilliant - dexamethasone. Within 3 days the pain had gone and I had been suffering for 3 months! I have just had my 14th dose of Herceptin so only 4 to go. I have started to reduce the steroid dose and I'm now taking 0.5mg/day (started on 2mg/day) which only just holds the pain at bay. My gut feeling is that the joint pain won't go until the injections finish so I'm really counting them down. My advice would be don't suffer in silence, I was exhausted from the lack of sleep as my whole body ached everytime I turned over in bed. Good luck and Happy Christmas.
19-12-2017 01:24 PM
19-12-2017 09:18 AM
hello Pam, and like you I am well into the herceptin treatment every three weeks and finding the side effects hard to live with - I am trying out anthistamines, more to find any relief, and will see my GP today .. at the hospital it is about the therapy and anything regarded as serious not about acute discomfort, but I have not had a decent sleep for ages and am taking too many paunkillers which dont work anyway... I am sorry that others are experiencing the same thing and will keep you posted!
15-11-2017 04:23 PM
15-11-2017 02:19 PM - edited 15-11-2017 02:26 PM
Hello, I had Herceptin number 18 in August so am finished now. I can recommend claritin hay fever tablets to help with aches and pains. See here: http://myangrycancer.blogspot.co.uk/2013/02/claritin-is-worth-its-weight-in-gold.html and here if you what a better answer in terms of the science https://www.practicalpainmanagement.com/treatments/pharmacological/non-opioids/antihistamine-g-csf-i...
I discovered them as a help for the g-csf injections that brought about terrible bone pains. Since I get hay fever anyway I just switched to this brand (or Boots, Asda etc so long as the main ingredient is the same). I carried on with them and still take them but not every day now because there is little pollen around but I took them all through my chemo, rads and Herceptin and suffered far less than the other girls on here.
You should also make sure your Vitamin D levels are adequate
14-11-2017 02:55 PM