11-04-2014 12:57 PM
Hi, Look at my posts below. I was really struggling with tiredness, dizzyness and generally feeling unwell. I finished herceptin at the end of january and feel 99% better! The Herceptin was def. taking its toll.
10-04-2014 07:46 PM
I have had 8/18 herceptin and side effects so far:
Flaky fragile fingernails
Dry mouth and weird tongue
Fatigue, much worse for 24 hours after Herceptin
Itching to arms and legs
I know I shouldn't complain and I'm normally a very positive person, but there are the occassional days when I feel really down and fed up
I tell myself I'm nearly half way through now so I will soon be finished. The odd thing is that in a strange way I almost look forward to going to hospital every 3 weeks because I feel as though something is still being done which reassures me. Anyone else feel like that or is it just me?
10-04-2014 06:21 PM
08-04-2014 09:10 PM
08-04-2014 10:26 AM
Thank you so much I have been asking lots of people about the taste as they said they were ok that has made me much more relaxed i have also lost 3 finger nails and 1 toe nail and my nails were my pride and joy so it make me feel a bit like a freek . I am also on Exemestane I am going for a MRI scan today because they found a small bit in my spine so she is hoping the Herseptin will do its job i won't get results till 24th April and it the waiting all the time thank you and keep well xx
07-04-2014 09:44 PM
Yes taste was affected and certain things like lemon juice or vinegar,salad cream things like that, but that is now a lot better! I have been given herceptin for 12 months 2 more to go,in my leg now not into the vein which is much better! I am also on letrazole for 10 years!
07-04-2014 06:17 PM
Thank you for your reply do you mean you are having trouble with your taste I am having Herceptin for as long as it takes that is what the ong says how long have you been on Herceptin are you on any hormone tablets aswell. xx
07-04-2014 04:12 PM
06-04-2014 08:39 PM
I hav e been having Herceptin since the end of january I am 64 still get tired and I am also on a hormone tablet because i am Her2 positive and this makes all my bones ache especially in the morning but once i am up and moving its no so bad. What i wanted to ask I have a funny taste in my mouth nothing seems to taste the same anymore and there are lots of things i can't eat when I ask the chemo nurse she just says its the chemo still in your body is there anyone else having this problem.xx
06-04-2014 04:54 PM
05-04-2014 07:23 AM
05-04-2014 07:21 AM
I have had partial mastectomy on right breast. HER2+
3 rounds of FEC
3 rounds of Docetaxyl
20 Radiation treatments
I started Herceptin at the same time as the Docetaxyl
I DO NOT take tamoxifen
Each of the different chemo drugs caused various unpleasant symptoms to the point where I was bedridden for 70% of every day.
Most of the symptoms wore off by the time I had my radiation.
However I have now had 10 treatments of Herceptin and my bone and joint pain has built up so I am in pain all the time.
I have another 8 treatments to go.
I am 68 and know the feeling of mild arthritis but now I feel like I am 98.
I have pain 24/7 accross the back and through both shoulders, down both arrms and in both hands, and my finger joints look like knobs of ginger root.
The leg pain which used to be severe at night has eased somewhat along with my ankle pain.
Maybe we all have diiferent parts of our bodies which are affected the worst.
I am praying that the affected joints are only temporary.
I do, on the positive side, have an aquaintance, similar age, same operation, same doctor and same treatment who is now 4 years out and fine.
I wish you all well
29-03-2014 11:37 AM
I just wanted to add to this thread for anyone going through herceptin at the moment. I had my last dose at the end of January and am now feeling much much better. I still have odd aches but they don't consume me quite as much as before probably because I feel much better in myself: not as tired or dizzy or just generally unwell. In fact I feel great (bone pain aside-now blaming Tamoxifen for that). So hold onto that.
15-03-2014 11:24 PM
07-01-2014 08:25 PM
07-01-2014 08:03 PM