Community Champion
Posts: 6,129
Registered: ‎29-05-2015

Re: HER2 Negative

Hi Chocolate ,are you looking for the chemo therapy monthly threads ? Go to the going through treatment section , then chemotherapy then chemotherapy monthly threads and introduce yourself .If you have questions you could post on any of the current threads where ladies are already going through treatment .When do you start your chemo ?
Member
Posts: 8
Registered: ‎14-12-2017

Re: HER2 Negative

Don’t know my way around this site how do I find that please
Member
Posts: 8
Registered: ‎14-12-2017

Re: HER2 Negative

I thought all along I was just having radio and nobody mentioned chemo and because
Lump had has been removed felt it would just be radiobug apparently I’m her2 positive all
A
Bit of a shock now as hadn’t got myself ready for this is it a long course of chemo just never hear anything nice about chemo so feel a bit scared
Highlighted
Community Champion
Posts: 2,183
Registered: ‎17-03-2016

Re: HER2 Negative

[ Edited ]

Hi England1966,

Sorry to hear you’re joining our club, getting diagnosed is always such a shock.

Do go along to the ‘recently diagnosed’ thread, where you will be able to chat to others at the same stage as yourself. Also do go along to the ‘going through treatment’ board, where you’ll see the chemo threads & the relevant monthly thread you can join for advice, support & the odd rant when needed.

There is loads of support here, so glad you found us. 

ann x

Member
Posts: 1
Registered: ‎15-11-2017

Re: HER2 Negative

Hi Guys,

live just found out I have lubuor cancer her2 neg stage 2 to say I’m scared is an understatement I fly for a living and as you now it’s a glamorous job the one thing I’m worried about is loosing my hair and side affects of the chemo.

Member
Posts: 5
Registered: ‎20-07-2014

Re: HER2 Negative

It's definitely a good thing to be HER2 negative.  HER2 positive cancers are much more aggressive.  Mine is HER2+ve and I'm on Herceptin for a year after chemo, just had 7th out of 18 doses - seems to be never ending!. 

best wishes x

Community Champion
Posts: 3,016
Registered: ‎07-03-2014

Re: HER2 Negative

Jo, you will get through it, I have become friends with a lady of 29 who I met having radiotherapy, she found out she had BC 2 weeks before her wedding, our surgeon rushed her op through and a week before her wedding she had surgery and surgeon asked for details of her dress so her scar could be hidden ! You will find you have hidden strengths you didn't know you had, my eldest son got married a few weeks before my diagnosis- I am 52 with 2 sons, I look at the wedding photos and now think that my cancer was probably there then !! I have met many younger ladies at chemo clinic etc and they are all recovering very well- try and keep your life as normal as possible, I found that really helped me, must say though life really is crap the way it turns out- so sorry you have to face all this when you just married and things going so well- will be thinking of you. Wendy x
Member
Posts: 39
Registered: ‎05-11-2014

Re: HER2 Negative

Thanks lovewine that is a great help. I just wanna see and feel the progress. Im scared stiff itd spread as ive still got xray, mri and ct scan to go. I feel like my life has been taken away from me.
Im 36, newly married (i found out i had breast cancer the day after my wedding)3 children 3, 6 and 13 years old.
i was at the happiest point in my life and now it feels like its all crumbled. I just cant believe what is happening!
Community Champion
Posts: 3,016
Registered: ‎07-03-2014

Re: HER2 Negative

I felt exactly the same, but once chemo starts you will feel much more settled- I promise you!, you will feel more pro active as there is something being done and hopefully you will feel your lump shrinking! My tumour at beginning was estimated at about 16mls and at the end it was 16mls of scar tissue, you will soon get into the routine of treatment and it's not as bad as you are probably thinking it will be, the nurses are fantastic, please don't put up with side effects as you really don't need to! The anti sickness meds are very effective- ask for Emend if not given to you at first, it stops any sickness, same with mouth problems, there are very effective mouth washes that help!! Also try and do look good feel better course that's available to all cancer patients and it's so uplifting, not to mention the large bag of expensive cosmetics you come away with, you are shown how to apply make up etc and it's very helpful 😄😄. Please ask me anything if I can help, I found it really comforting talking to ladies a little further down the line when I started chemo! All the very best.
Member
Posts: 39
Registered: ‎05-11-2014

Re: HER2 Negative

Ah thanks lovewine for that reassurance. Thats fantastic results for you. Im going to see the onc on wednesday where i think i'll be told what a d how exactly i will be treated. I just want this thing out of me. Can i ask you how big was your lump?

Jo x
Community Champion
Posts: 3,016
Registered: ‎07-03-2014

Re: HER2 Negative

Hi there, just popping in from April thread to offer some reassurance- I also had surgery after chemo, felt the odd one out as everyone else seemed to be surgery then chemo, I had sentinel node biopsy and scans, no node involvement thankfully- I then had a coil marker put in tumour before chemo started and 6 sessions of Fec-T , after the first two blasts my lump shrank significantly and by the time they operated they couldn't find tumour on scan, this is why they put in a marker, chemo was very effective, it isn't pleasant but not as bad as you fear, I worked throughout and still had a normal life mostly( even going to the local pub!) it is doable! I have just finished 15 blasts of radiotherapy last week. Good luck with your treatment.😄
Member
Posts: 39
Registered: ‎05-11-2014

Re: HER2 Negative

Hi all
i just got results today from a node that showed up in my mammogram and it was clear. Just reacting to whats going on.
I also found out im HER2 negative. Starting chemo in 2 weeks to shrink the lump having the treatment for 6 months, then surgery to remove the lump.
i still have a ct scan, mri and sentinial node test to go.
This all still scares the life out of me but i feel a bit more at ease knowing what it is i have and how its going to be treated and targeted.
Member
Posts: 440
Registered: ‎01-05-2012

Re: HER2 Negative

ah right, well im happy that it's good news to be negative & im also happy that Herceptin is available to zap the blighters when u are HER2 positive. SGL i can remember u saying u needed chemo etc & u were devastated, i guess thankfully Herception is a gold standard drug available to everyone now. I still have to have chemo due to me being young (49!!) & have microscopic node involvement even though i was told the same as u at the start with just surgery & rads x

buttons500, some consultants give u no info do they, mine is quite good but when she says 'any questions' i just go blank. I really need to write stuff down, i will be taking a list with me when i see the oncologist!x

Member
Posts: 4,480
Registered: ‎01-05-2012

Re: HER2 Negative

I'm with SGL .

Member
Posts: 630
Registered: ‎01-05-2012

Re: HER2 Negative

Hi there being negative for her 2 is good. Because I had no lymth node or vascular invasion I was supposed to be having surgery, rads and tamoxifen. Once they found me to be her2 pos that all changed and am now having chemo and herceptin. I was told that the early stage, the size, grade and hormone positive bits were the "good" parts of my cancer, but the her2 pos was the bad bit as cancers with this are more aggressive. Thank god for Herceptin which gives the her2 cells a good bashing (hopefully) x

Member
Posts: 413
Registered: ‎01-05-2012

Re: HER2 Negative

I was HER2 Negative as well, so no herceptin as it wouldnt work..no receptors for the herceptin to stick to for it to do its job. I dont know much about it. All i had from my consultant was: you will get mastectomy, chemo, rads, tamoxifen, arimidex and herceptin...then after results came through that changed to..mastectomy, chemo, rads, tamoxifen & armidex..i asked about the herceptin and he said that as i was negative i didnt need it. So still none the wiser, but it was nice to be told exactly why i couldnt have it..so i could tell other people that it wouldnt do the job it was designed for as to why i wouldnt get it.

Member
Posts: 440
Registered: ‎01-05-2012

HER2 Negative

This may be a daft question but i just got my results today & at my previous appt my consultant talked about Herceptin so i thought i must be HER2+. Today they told me im HER2 negative. Is this a good thing or a bad thing as i don't really know anything about it? x