17-12-2017 08:47 AM
14-12-2017 08:59 AM
16-11-2017 10:58 PM - edited 16-11-2017 10:58 PM
Sorry to hear you’re joining our club, getting diagnosed is always such a shock.
Do go along to the ‘recently diagnosed’ thread, where you will be able to chat to others at the same stage as yourself. Also do go along to the ‘going through treatment’ board, where you’ll see the chemo threads & the relevant monthly thread you can join for advice, support & the odd rant when needed.
There is loads of support here, so glad you found us.
15-11-2017 07:42 AM
live just found out I have lubuor cancer her2 neg stage 2 to say I’m scared is an understatement I fly for a living and as you now it’s a glamorous job the one thing I’m worried about is loosing my hair and side affects of the chemo.
22-02-2015 10:43 PM
It's definitely a good thing to be HER2 negative. HER2 positive cancers are much more aggressive. Mine is HER2+ve and I'm on Herceptin for a year after chemo, just had 7th out of 18 doses - seems to be never ending!.
best wishes x
09-11-2014 09:02 PM
09-11-2014 08:34 PM
09-11-2014 06:16 PM
09-11-2014 04:45 PM
09-11-2014 04:40 PM
06-11-2014 05:34 PM
19-08-2011 09:44 AM
ah right, well im happy that it's good news to be negative & im also happy that Herceptin is available to zap the blighters when u are HER2 positive. SGL i can remember u saying u needed chemo etc & u were devastated, i guess thankfully Herception is a gold standard drug available to everyone now. I still have to have chemo due to me being young (49!!) & have microscopic node involvement even though i was told the same as u at the start with just surgery & rads x
buttons500, some consultants give u no info do they, mine is quite good but when she says 'any questions' i just go blank. I really need to write stuff down, i will be taking a list with me when i see the oncologist!x
19-08-2011 01:45 AM
Hi there being negative for her 2 is good. Because I had no lymth node or vascular invasion I was supposed to be having surgery, rads and tamoxifen. Once they found me to be her2 pos that all changed and am now having chemo and herceptin. I was told that the early stage, the size, grade and hormone positive bits were the "good" parts of my cancer, but the her2 pos was the bad bit as cancers with this are more aggressive. Thank god for Herceptin which gives the her2 cells a good bashing (hopefully) x
18-08-2011 11:40 PM
I was HER2 Negative as well, so no herceptin as it wouldnt work..no receptors for the herceptin to stick to for it to do its job. I dont know much about it. All i had from my consultant was: you will get mastectomy, chemo, rads, tamoxifen, arimidex and herceptin...then after results came through that changed to..mastectomy, chemo, rads, tamoxifen & armidex..i asked about the herceptin and he said that as i was negative i didnt need it. So still none the wiser, but it was nice to be told exactly why i couldnt have it..so i could tell other people that it wouldnt do the job it was designed for as to why i wouldnt get it.
18-08-2011 10:22 PM
This may be a daft question but i just got my results today & at my previous appt my consultant talked about Herceptin so i thought i must be HER2+. Today they told me im HER2 negative. Is this a good thing or a bad thing as i don't really know anything about it? x