Member
Posts: 1,890
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hey Pauly flower,

Yeh, ain't having that drain tube out a weird dragging feeling?! Please don't worry about lymphoedema at this point, but has to always be a consideration for the future, ref bloods, cannulas, blood pressure cuffs, bites, grazes, cuts, sunburn. BTW - Always wear sleeves when your gardening. I had it all drummed into me, following both masts with ANC's. And just don't ever let any less "wary" medic try to talk you into anything otherwise! Stand your ground, because you'll probably come across them, as I have.You'll no doubt have been given all this info, so I'm sorry if repeating. But can't stress it enough, and you'll get used to it being second nature, protective. But as I said, don't worry.  

Have you not got a dressing/plaster over your drain entry/exit wound? If you have - don't worry about leakage. If you haven't, get one on.

Yeh, had a smattering of snow here too last two days. Been out and about in the beautiful Derbyshire hills on the doorstep today. Great to escape the house and get some invigorating crisp fresh air into the bod.

And Yeh, waiting on results is the pits!!! I'm loving your positivity and hope you can maintain it. But, at the same time, don't be surprised if you have wobbles and some major sobs. Some of it will be possibly after effects of general anaesthetic, but most of it will be the wham blam, thank you NOT man - upset and major trauma of what you're going through. So please do just let it out and flow. It's important. You're going through a massive mental and physical "smash" and "grieving". And please make it known how you feel to Alan and all your other loved ones, family friends. Don't try and put a brave face on. You need all the support you can get, so reach out and "take and receive" for a change. They love you, so they want to know what you're feeling and want to be a support to you. Tears are for the "brave". Stuff what anyone else thinks or says.

 

You're doing bl**dy great woman. Keep exercising!! and don't let slip. Take a couple of Para's and an ant-acid (Bisodol/Rennie perhaps) before you go to sleep, even if your not paining, to prevent waking yourself up when unconsciously moving your arm in your sleep, till your more generally comfey.

Loadsa love to you Pauly, a huge warm hug and a bit of stick exercise wise

Dellywelly xxxxx

Member
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Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly
How are you doing? Have been having technical probs, so haven't been able to log on the last 3 days. You're probably feeling more comfey now the drains are out are you? you doin your exercises missus!! xxx
Member
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Re: Surgery to take away lymph nodes and clear margins

Yeh, got what you meant on the margins, just that it was good they felt they'd taken enough. Glad you've managed to eat and being strict with the exercises. Have to send out your Alan to stock up on tasty temptations for your return. Pleased you're so positive. Hope you get a good nights rest tonight, but nothing like your own bed.
Yep, fingers all crossed for no more nasty chemo xxxxxx
Member
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Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hi Pauly

 

Well, I hope you've been having a very relaxing day and that was great to know on the clear margins. Sorry you're so sore and feeling sickly (not surprised you didn't fancy the black puddin then Smiley Tongue). I couldn't believe how many tabs you had to take, before the op - 15 !! almost a meal in themselves. That was good of him to say "be optimistic". Sounds like you're going to need some feeding up when your tums more settled. Extra sos tomorrow then. 

Hope the house survey went well (that's an extra lot on!) and hope your positivity keeps steaming forwards, girl. Keep doing your exercises. Lots of love xxx

Love to everyone else too

Delly xxxxxxx

 

 

 

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Re: Surgery to take away lymph nodes and clear margins

Ooooo Pauly, just missed you by a couple of mins. I'm sending a wave. You get my hug and kiss from Alan? Well done flower. should imagine you're feeling cream crackered, but relieved at that bit being over. Hope you get a good nights sleep, without too much ward noise. That's the worst part of hospitals. I'll get the frying pan out again in the morning shall I? Do you like black pudding? it's from Bury - the best. Lots of iron. Note the pan's one of these ceramic ultra non-stick ones, very little oil needed, so they're a healthy fry up, I'll have you know. I'm not into greasy spoons xxxx
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Re: Surgery to take away lymph nodes and clear margins

[ Edited ]

Hi BizzyLizzy (lovely name)
You've got me mixed up with Pauly. Crikey, a whole back Tattoo. Would have thought that would have cured your needle fear That's dreadful you passing out for your scan. I think anaesthetists are the best medics for cannulas.
I hope you're op goes well next week and fingers crossed for clear margins for you too. Keep us informed with how you're doing, if and when you can.

Lots of love to everyone

Delly xxxxxxx

Member
Posts: 61
Registered: ‎17-01-2018

Re: Surgery to take away lymph nodes and clear margins

Hi Delly 

i share your fear of needles and canulas ! Blood tests too

crazy as I have a whole back TATOO ! 

 

I am due to have surgery next week and also having to have a wire 

have stage 2 -17mm mucoid / collloid cancer which is quite rare 

then Radiotherapy 

 

i passed out in the CT scan as they couldn't get the cannula in so even more nervous now 

 

I am also worried they won't get the full margin 

finding keeping busy seeing friends and doing things helps distract me 

do hope it all goes well for you good luck 

sounds like we have similar fears ! 

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Re: Surgery to take away lymph nodes and clear margins

Awwwww, thanks for letting us know Alan. Just hope everything's clear. Give her a gentle hug and kiss from Delly will you please. Have one yourself too, but not so gentle for you, 'ey xxxxxx
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Re: Surgery to take away lymph nodes and clear margins

Go tell that BC where to go!!!!
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Member
Posts: 1,890
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Re: Surgery to take away lymph nodes and clear margins

Now where's that stapler gun gone????!!! xxxx
Member
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Re: Surgery to take away lymph nodes and clear margins

Nope. Still awake, just for you Smiley WinkHeart 

I used to purposely stay awake before an op, why not. I'd I'd enjoy the G A sleep that much more!!! What better time to sell your house?!! I'm so sorry about your brother Pauly.

Yeh, I said, ops are easy, results are the pits!!!!!

I'll be thinking of you later this morning.

If I were religious, I'd say god bless. but I'm not, so just trust in the delicate hands of your surgeon, and all else that IS, up there in the Delly universe - You will be okay. Deal with the results later.

Nitey nitey sweetiepie

Dellypoos xxxxxxx 

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Re: Surgery to take away lymph nodes and clear margins

Oooo, just missed your post, answering another. General Anaesthetic - love it. Gives me the most wonderful sleep ever.

so, I'm not knowing where Caulderdale H A would be under town wise? Why do people feel they have to get a grip - Yeh, Cancer. So no one expects you to get a grip.

I'm laughing, cos you're goin on about your house survey. What a time!!! Yes, you can do this. The annoying thing is, that we have to do this to someone elses time frame, not our own. My only brother sadly wasn't part of my BC experience, he was very ill mentally at the time, and sadly took his own life, shortly after my Mums death, so hang onto those you have left, family wise. Umph, not what you want to hear about, night before.

Yeh - Ops are simps. It's the waiting on results thats the bu**er!!!!

Wait to hear from you

Dellywellydingdong xxxxxxx

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Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

[ Edited ]

So you live in my neck of the woods? Especially my "old" neck, the N M/C area, Middleton, Rochdale, Bury, Bolton??
Awwww, I'm not surprised you're stressing darlin girl. How was your lunch? Good? I may even know where you went!!

So are you being seen at N M G ?? If so, is Imelda still there, BCN wise? She's probably of a higher ranking now. I do hope you can get some sleep tonight. If not, just stay up all night and chat to me chummy. I keep the weirdest hours.Noted you were up early hours this morning.

Lotsa love to you xxxxxxx

Member
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Re: Surgery to take away lymph nodes and clear margins

No, I don't do facebook. Enjoy your lunch today.
What you say ref margins makes a lot of sense ref clear ones. I'm glad they're doing it all on the Wednesday. I had visions of you having to cope with sticky out wires for a few days before. Might have put paid to some husband hugs!! My masts and full ANCs, and treatments then, were from such a long time ago, things have changed dramatically.
If I don't see you before - Hope everything goes well for Wed and you're well on the recovery road soon afterwards.

Lots of love to everybody xxxxxxx
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Re: Surgery to take away lymph nodes and clear margins

[ Edited ]

Hi CK - How did your op go on the 22nd? I'm hoping you're okay, and 'it' all went well, as you haven't been on here since. I hope you're managing to keep comfey and managing to sleep with the post op wounds. Did they give you results immediately or are you now having to wait?? Sorry for all the questions lovey xxxxx

Pauly - You'rewelcome. Good breakfast, hey? I've got a bit confused with it all. Have you already had the wires installed in the breast area now? It was with you mentioning more needles on Monday at you pre-op. And yeh, of course you're getting stressed, anyone would. It's only natural. But I'm sooo glad your out in good company tonight, and for another feed on Tuesday. Great your Sis-in-law's being extra supportive. I hope you have lots of other support too for Wed.

Lots of love to everyone, Delly xxxxxxxx

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Re: Surgery to take away lymph nodes and clear margins

Good Morning Pauly

 

How are you today darlin ??? Are you doing okay?? If not, shall I send in the "Sympathy Squad", armed with your favourite alcy beverage? Perhaps a little later, considering it's 9.24am! Tell me what and we'll have it ready on ice. Praps a nice humongous cooked brekkie then?  3 x rashers of bacon, 2 x sos, strangled eggs, toms, mushies, and beans? Corr, think I might join you - scootch up. No not that much, I'm only a little bum. Can we have some tea pleeease. Oh, and some brown sauce? Taaaa muchly. Yum num num num!! 

Well umph, thats s'all a bit bu**ery bo**ox innit!!!! I would think and feel you may be feeling somewhat deflated, hey? Sorry to ask nitty gritty questions, that you may not want to be bovved to ask. Is the "wire" to do with the ROSCO procedures for positioning of the lymph nodes? If so, I thought all of them were to be removed. Or is that to be discussed at the Friday meet?

 

Don't know about you, but I'm now thoroughly stuffed. Mmmm, gonna be a bit of a squeeze fitting in your pocket tomorrow. I'll just have to take a big deep breath in, just like you're going to have to do. Will they be contacting you by phone or do you have to go in for the results Pauly?

Am thinking of you. I'm hoping you're having a really restful day today. You need a bit of a treat, before the apperatives are served later. Stay strong girl.

Loadsa love

Dellywellydingdong xxxxxx 

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Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

I'm presuming or thinking that maybe because of the type you have perhaps.
Good luck for the scan results flower. And if your weathers anything like here, I don't envy you going out either.
xxx
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Re: Surgery to take away lymph nodes and clear margins

Hi Pauly
Did she tell you the reason for removing them all??
Hope all goes well from the meeting on the 26th
Delly xxx
Member
Posts: 5
Registered: ‎09-09-2017

Re: Surgery to take away lymph nodes and clear margins

Hi Pauline,
Me again! Sorry forgot to add that usually with lymph node removal on the ROSCO trial, they remove two lymph nodes and test these. If these prove to be clear of cancer cells, then no more are removed. If cancer cells are detected, then you have to have the procedure again and this time two or more can be removed to be tested.
Member
Posts: 5
Registered: ‎09-09-2017

Re: Surgery to take away lymph nodes and clear margins

Hi Pauline,
Firstly I would like to say well done for getting this far and I know exactly how you feel as I have just been through what you have described!
I too am on the ROSCO trial, and the hope is always that we will only need the 4 initial chemo sessions and that will be the end of it. However, we have to bear in mind that there is no guarantee and we are told that at the beginning. Also the whole reason why we are putting ourselves through this gruelling treatment is to save our lives in the long term and prevent ,as much as is possible , the cancer returning.
However, the best approach to take is that you will cross that bridge when you come to it. For now, you need to concentrate on getting your body ready for this important lumpectomy and lymph node removal, and having a good recovery from the surgery. Please see my reply below to CK for some suggestions. I wish you all the best for your surgery and the report outcome.