Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hi again Pauline, flower

 

Oooooo, I'm so glad your daughters doing well.

Am also pleased you got your cording sorted and are also now letting your own hair down! or show without wig. How lovely for you to be so recognised, regarded on your sons 30th. You must have felt so touched and chuffed.

One of my arms, the underside of the upper form armpit, has remained permanently numb from 1st mast and ANC 2006, but only slightly, just a bit weird. Thumb and two next fingers to, have reduced touch sensation, but not much of a prob though.

Awww, your poor friend. Stll she's nearly there, and is lucky to have you supporting and cheering her on. Glad you've had support elsewhere. Didn't know if you'd tried a few other threads on here.

Good luck on the viewing tomorrow

 

Lotsa love Pauly xxxx

Love to everyone else too xxxx

 

Member
Posts: 13
Registered: ‎12-04-2018

Re: Surgery to take away lymph nodes and clear margins

Hi

I forgot to say I rang the bell 2 weeks ago after I finished my radiotherapy. Hodp said I had to ring it to mark end of my cancer treatment although herceptin now end October, I'm there 1pm today in Halifax.

My daughter is 26 and doing ok thanks.

I've not been on here for ages as I found I wasn't getting much back when I came on so I stayed off for a while. I've been chatted on Breasr Care Buddies on Facebook its a closed group.

Went to my son's surprise 30th Birthday on 23rd March and took my wig off halfway through the night and everybody cheered was so uplifting. I dint wear my wig anymore... 💪 I'm going having my hair coloured at teatime 😁

Cording eventually got sorted by my amazing physiotherapy guy.. Jesus that was awful & very painful, you put yourself through so much stuff to get cording afterwards 😡😠

Sue my friend has 1 chemo left and she's been so very poorly all the way through her treatment. She's been on morphine for pain and spent most of time in hospital. She doesn't want her last chemo but I've told her can't risk one dot of cancer cell being left in her body and she's put over 2 atone in weight on due to steroids... She's not happy. She doesn't have to have radiotherapy lucky for her.

My rads have left me with tight chest and I've got a darker boob than the other. My arm underneath is still numb and I have a dull heavy ache in my lumpectomy area but I deal. Doing gym help and swimming really helps.

2 offers in house but not sold their own or other buyers need to sell. We have another viewer lined up tomorrow.

Oncologist told me out of ROSCO Trial 2 ladies passed the full trial with full pathological response and little old ME was the 2nd person 💪💪💪

I'm hapoy knowing that at some in the future somebody similar to me will get targeted treatment like mine.

Busy today we've just got another viewing request so 2 people coming tomorrow 🤞

Love & hugs
Pauline xx
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hey You, 

 

No wonder I had trouble recognising you - longer hair, and running or swimming out of the posts!! Corr, I know you've loads more s**it to go through yet Pauly, but jeez, how far you've come!! Just since my last visit here. You're 1/2 way to the "Wonderwoman" award!! Plus back to work Smiley Surprised, Another corr, what?!! Heart 

Btw - Did your cording eventually get sorted?

Aww ffffflip, on the house biz. Perhaps the house you lost out on wasn't actually right for you?! I'm a great believer in fate, I'm afraid. Believe certain things happen for a reason - not BC though! Which tips the whole fate biz A over T really, dunnit?! Hope you're own sale "holds" until you find another. Fingers crossed for you and hubs, darlin.

You tried Aloe Vera gel for your sore boob? 

More FFFFFlips - Your daughter? What? Crikey. Is she doing okay? I hope so. How old would she be?

 

Yeh, missed you too. Am not great, but thank you sooo much for asking. Seldom come on here at the mo, which is pretty alien for me, considering it used to be one of my sanctuaries, and solaces. Has always helped ground me, keep me in reality with what others are having to go through. "Giving" also helps me. 

 

Am madly impressed with yer. Much luvvo xxx

 

Where's everyone else gone? Hope you're all doing okay too xxx 

  

Member
Posts: 13
Registered: ‎12-04-2018

Re: Surgery to take away lymph nodes and clear margins

Hi Delly

I'm doing ok thanks.

I've finished the horrible radiotherapy and my boob is looking ok but bit darker but soreness has eased off it had been awful.

Hair has grown loads 😁😁 I'm going back to work on phased return in Monday for some normality.

We've again sold our house but lost the lovely one we found.. . So upsetting.

Had oncology appt yesterday on more meds now to help prevent me ever getting bone cancer which is s joke. Letrozole side effects awful on my joints. I'm back at gym and now swimming.

I'm currently at my brothers just taking kids for a swim. My daughter has been in hospital emergency surgery on her ovaries pretty grim 😔

How you doing? Missed you.

Love
Pauline xx

Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hey Pauly

How goes it with/for you? You doing okay with everything?
Much luvvo xxx
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hey Pauline, and corrr, what a diff a few weeks of me not logging on can make with regards to your progress.

 

Can't believe you have to drive from Hali to Oldham for rads. Anyways, it's so good to hear you so upbeat, despite your chemo, treatment trecks and discomforts. Take my hat off to you, gal.

 

A very HAPPY BIRTHDAY to you for today Heart Heart, Heart. Hope you've had an extra special day.

Was your sons 30th last Fri or this coming Fri? Whichever, nice to glam up.

that's fffflippin brill on your Alan's (your hubby?) £1500 so far!!!!! - A m a z i n g in fact.

 

Much love to you and everyone else and thanks for your well wishes P

Dellywelly xxxxxx

Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

After brings my usual 3 weekly Herceptin in Halifax then a drive over to Oldham for my radiotherapy. After today's session I'll have 4 left as I finish on 28th March.

I've got one red boob which I've got to say has been painful and itchy and very swollen. Last night was awful I was in bed with a cold wet towel over my boob.. I now just want it over.

Hot flushes seem to have got worse nut can't see BCN till me t Thursday as she's on holiday.

So it my birthday on Sunday and option to wear wig or brave going out with my short Sinead O'Connor look. I go to the hospital without my hat on everybody knows me know so stuff if my head is on show.

Aiming to do phase return to work on 9th April and I'm going to try the gym from next week with just cycle and brisk walkkng initially. Made the mistake of trying to lift a tv last week, words can't describe the pain.. for a split second I just forgot.

During everything going on at the moment I'm in such a good head space, I'm definately not feeling sorry for myself and haven't for a few months. My mind is strong probably the strongest it's been since September. Alan's doing well on his donations for just giving for Mcr 10k run for Macmillan he's got just under £1500 I'm so proud of him.

Still on physio cording has more or less gone but RT has seized up under my arm and part of my shoulder, so it's helping plus I'm doing new exercises.

My son is 30 on Friday so I'm putting on my gladrags for a party 😁

The chat in her seems to have died off since I changed my details I dint seem to see as many posts as I did.

Hope your all well including you Delly.

Love
Pauline x

Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

Hi

Day 4 of radiotherapy I 've tired with banging headache & my boob had swollen. Hospital said swelling is tissue around boob.

The End of a naff day I arrive hime from hospital feeling like I need to sleep & my hubby tells me our buyers have pulled out of our sale. I'm devasted I've spent half the night in tears angry, we were moving back to be nearer my family which is what I wanted so much to finish my treatment and start afresh near my loved ones.

It's not meant to be I'm gutted, I'd packed up most if the house before I had my operation as we were expecting to move within the next few weeks. So it's back on market & I'm very miserable 😔😢

Roll on 28th March to finish radiotherapy.

Hope your all well

Pauline x
Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

The feeling of a cord pinging urggghhh 😏

Your birthday is day after mine! My friend was showing a friend of hers my photo on Facebook with my Sinead O'Connor hair, my friend was telling her my story & when she saw my photo she said that's Pauline my chemo friend it's a small world.

My hair feels like baby lamb hair but my hair is naturally curly and all the back at the bottom is curly now 😂

Not sure about my birthday hair yet it depends if it's cold. My daughter's birthday on 14th March & my son is 23rd March and neither were planned I was told I'd never have kids and then two come along in March.

I'm drinking loads water I'm thirsty all the time even waking up in the night guzzling water. I'm going to try go back to the gym next week.

X
Member
Posts: 145
Registered: ‎17-11-2016

Re: Surgery to take away lymph nodes and clear margins

BTW happy birthday.  Mine is 26/03 so we are almost astrological twins. I would go without your wig!  Celebrate your new hair.  Have you got the “chemo perm” yet?  After 12 months, my hair is just starting to grow through not curly.  Now it comes down to about the bottom of my ears.  A bob is not that far away.  Ah chemo, it gives you a different perspective on life!  Hope your pain goes soon (does your physio snap your cords - ping!?). Take care.  Xx 

Member
Posts: 1,409
Registered: ‎24-03-2017

Re: Surgery to take away lymph nodes and clear margins

Pauline - I see you've had a banging headache today - remember to keep up drinking water - between 1-2 litres a day plus your usual drinks - it really does help.  Also, continue with water after treatment finishes.  I started to ease off too much and wasn't feeling great so I've upped it to 1-1.5 litres a day and feeling so much better for it.

Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

Hi

I'll be ringing the bell with my mother in law on 28th March... although I've still got herceptin until September.

Cording what can I say I never want this again, it's been horrendous painful. You know you go through all this treatment to end up with cording... 😠😡👎

X
Member
Posts: 145
Registered: ‎17-11-2016

Re: Surgery to take away lymph nodes and clear margins

MLD is Manual Lymphatic Drainage ie a special type of massage that aims to move lymph fluid around your body and stimulate your lymphatic system to work properly. You can see videos of it on YouTube and learn to do it to yourself to some extent. Dry brushing to move lymph fluid also recommended. There are some useful lymphoedema sites with info about these types of techniques. My consultant says exercise is really important for preventing lymphoedema.
Sorry to those with cording - it is ****** painful. It should go away in time though.
If you are on radio you are on the home strait and the finish line is hoving into view!
Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

Hi Delly

I'm not bad thanks still on killer physio for cording it's getting better, my armpit is numb but sore at the same time 😡 physio has managed to breakdown some of the cords but as I'm on radiotherapy I'm carrying on with physio until I've finished.

I've done 3rd RT today came home with banging headache & I don't totally feel myself. Boob quote pink this evening, but it bound to ease off later.

My hair looking good I've got a Sinead O'Connor look at the moment 🤣 went to hospital on Friday night with no hat on I felt quite liberated.

Although it's my birthday on 25th I'm debating could I actually go out without my wig on..

So how you all doing?

Love
Pauline x
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

Hellooooo Ladies
How are you all doing? and I don't know what MLD means either, Annig.
Pauly - How you doing since your change of nam?. How are your rads going?? and have you yet had any respite from your "cording" pains and complications??
Lots of love to everyone
Delly xxxxxx
Member
Posts: 104
Registered: ‎06-10-2017

Re: Surgery to take away lymph nodes and clear margins

Hi

I've had bad nerve pain as I've had cording now for 4 weeks. I've been having physio which is great but painfull at sane time. Today I can actually raise my arm over my head but still have so.e pain. I've had bad burning pain from armpit to wrist.

I'm due to start radiotherapy at 5pm today but looks like the snow won't let that happen.. annoying as I was up till 4am unable to sleep and there wasn't any s ow then! Very thick at 6.30am.

Hope your ok and have you sorted your arm pain?

Pauline x
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: Surgery to take away lymph nodes and clear margins

[ Edited ]

Hi all
Bizzylizzy - How are you doing following your node op? I'm not an artist, but am passionate about art, so I'm particularly interested to know how things are going for you. I hope like mad, you're work isn't hampered by all this afterwards and settles down without any restriction to it.
Annig, Mrs Merton - Hope you're both well too
Much love to everyone
Dely xxxxxx

Member
Posts: 32
Registered: ‎29-12-2017

Re: Surgery to take away lymph nodes and clear margins

Hi all, 

Bizzylizzy - I had ANC on thursday after mastectomy 5 weeks ago, hope you are doing well.

Mrs Merton - I'm still getting used to abbreviations, what is MLD ?

Have learned so much from all you ladies, and still learning, hugs to all xxxx

Annig

 

Member
Posts: 145
Registered: ‎17-11-2016

Re: Surgery to take away lymph nodes and clear margins

Hi - sorry to hear you have to have this done.  It is worth it though because i know from experience that the chemo by itself isn’t enough to kill any tumours further up your lymph node system, so the op can save your life.  Ask your surgeon whether he is taking out up to level 1, 2 or 3.  Everyone has a different number of lymph nodes but the higher the level removed, the higher your risk of Lymphoedema.  After the operation you will have a lot of numbness and strange nerve sensations in your underarm and the back of your upper arm.  The back of my arm was numb for about 6 months but is ok now.  I also got, and sometimes still get, some strange sensations in my arm. After the operation i had cording which is like a string running down your arm - usually you can see the cord.  It is damaged lymph/venous vessel.  Sorry to tell you it is very painful but it usually goes after a few weeks/months and physio can help a lot.  Then you need to do all the exercises the hospital physio shows you to regain mobility.  Plus long-term you need to exercise your arm in the right way to reduce your risk of Lymphoedema.  I have a very slightly swollen patch above my elbow that I have had since the op and have also experienced slight swelling in my hand.  At the moment i use a sleeve when my arm is tired and for any risk activities such as flying and have MLD.  That seems to be keeping it all under control at the moment.  I know that all sounds scary but other than avoiding lifting heavy weights, i am using my arm completely normally and have a full range of movement and hopefully you will too.  But do stay on top of those exercises and ask for physio if you need it. 

Member
Posts: 64
Registered: ‎17-01-2018

Re: Surgery to take away lymph nodes and clear margins

I am due to have more nodes removed this Thursday 

Sentinal nodes showed cancer and they wish to take out more but I'm not sure how many.

i have a hood range of movement in my arm following a lumpectomy and there is a clear margin in the breast.

i am worried as I have nerve pain already in my arm pit and arm running down to my wrist - constant burning and stabbing pain and am concerned that if they take out more it will be unbearable.

I am left handed and an artist and the BC is in my left Breast and axillar and I can't even bear to think I may be limited by pain.

i have also got a form  of trigeminal nerve pain in my face on the right hand side which I have for 8years which is not treatable.

Dies anyone ekse have this nerve pain and what is it like to have more nodes removed ??? 

Thanks for any responses 

liz