13-03-2018 10:19 PM
12-03-2018 10:12 PM
12-03-2018 10:02 PM
BTW happy birthday. Mine is 26/03 so we are almost astrological twins. I would go without your wig! Celebrate your new hair. Have you got the “chemo perm” yet? After 12 months, my hair is just starting to grow through not curly. Now it comes down to about the bottom of my ears. A bob is not that far away. Ah chemo, it gives you a different perspective on life! Hope your pain goes soon (does your physio snap your cords - ping!?). Take care. Xx
12-03-2018 09:59 PM
Pauline - I see you've had a banging headache today - remember to keep up drinking water - between 1-2 litres a day plus your usual drinks - it really does help. Also, continue with water after treatment finishes. I started to ease off too much and wasn't feeling great so I've upped it to 1-1.5 litres a day and feeling so much better for it.
12-03-2018 09:26 PM
12-03-2018 09:22 PM
12-03-2018 09:11 PM
12-03-2018 07:57 PM
08-03-2018 08:30 AM
08-03-2018 05:48 AM - edited 09-03-2018 10:08 PM
Bizzylizzy - How are you doing following your node op? I'm not an artist, but am passionate about art, so I'm particularly interested to know how things are going for you. I hope like mad, you're work isn't hampered by all this afterwards and settles down without any restriction to it.
Annig, Mrs Merton - Hope you're both well too
Much love to everyone
24-02-2018 05:57 AM
Bizzylizzy - I had ANC on thursday after mastectomy 5 weeks ago, hope you are doing well.
Mrs Merton - I'm still getting used to abbreviations, what is MLD ?
Have learned so much from all you ladies, and still learning, hugs to all xxxx
21-02-2018 09:18 AM
Hi - sorry to hear you have to have this done. It is worth it though because i know from experience that the chemo by itself isn’t enough to kill any tumours further up your lymph node system, so the op can save your life. Ask your surgeon whether he is taking out up to level 1, 2 or 3. Everyone has a different number of lymph nodes but the higher the level removed, the higher your risk of Lymphoedema. After the operation you will have a lot of numbness and strange nerve sensations in your underarm and the back of your upper arm. The back of my arm was numb for about 6 months but is ok now. I also got, and sometimes still get, some strange sensations in my arm. After the operation i had cording which is like a string running down your arm - usually you can see the cord. It is damaged lymph/venous vessel. Sorry to tell you it is very painful but it usually goes after a few weeks/months and physio can help a lot. Then you need to do all the exercises the hospital physio shows you to regain mobility. Plus long-term you need to exercise your arm in the right way to reduce your risk of Lymphoedema. I have a very slightly swollen patch above my elbow that I have had since the op and have also experienced slight swelling in my hand. At the moment i use a sleeve when my arm is tired and for any risk activities such as flying and have MLD. That seems to be keeping it all under control at the moment. I know that all sounds scary but other than avoiding lifting heavy weights, i am using my arm completely normally and have a full range of movement and hopefully you will too. But do stay on top of those exercises and ask for physio if you need it.
21-02-2018 01:18 AM
I am due to have more nodes removed this Thursday
Sentinal nodes showed cancer and they wish to take out more but I'm not sure how many.
i have a hood range of movement in my arm following a lumpectomy and there is a clear margin in the breast.
i am worried as I have nerve pain already in my arm pit and arm running down to my wrist - constant burning and stabbing pain and am concerned that if they take out more it will be unbearable.
I am left handed and an artist and the BC is in my left Breast and axillar and I can't even bear to think I may be limited by pain.
i have also got a form of trigeminal nerve pain in my face on the right hand side which I have for 8years which is not treatable.
Dies anyone ekse have this nerve pain and what is it like to have more nodes removed ???
Thanks for any responses
20-02-2018 07:48 PM
20-02-2018 09:41 AM - edited 20-02-2018 09:45 AM
Pauline - just to reassure you - what you are feeling is perfectly "normal" - not pleasant at all and only those of us who have been through the same procedure can fully understand.
However, with gentle stroking of the "guitar strings" and the correct exercises - you will find relief - but for better relief it won't be for at least 6/8 weeks following surgery.
Even now, 6 months from finishing chemo (I still suffer side effects from), 5 months following surgery and 2 months following radiotheraphy my chest wall is so tight, the ribs under MX site are painful and my underarm is completely numb and if I do too much or not enough exercise - the "orange under the arm" feel returns.
However, I just feel thankful, bearing all this in mind, that I'm here. Just wish others, as well as myself, wouldn't expect me to be "back to normal"! xx
19-02-2018 02:52 PM
19-02-2018 01:12 PM
Oh dear Pauline you are in a right mess is there anyone that can help and give you advice you must be in tottal agony when is it going to get easier for you God only knows, I know you are doing correct exersizes but try very hard not to overdo them because thats as bad as doing none at all.
I hope you enjoyed your meal with Alan and seeing your friend
You must be so bored and fed up with everything thats going on, are you all packed for your move so where are you moving to?
where are yolu having your Radio T but if your arm dont get right surely you will have a problem with the Radio so you really do need extra help to get your arm right I so feel for you Pauline
Try to keep your chin up Big Hugs xx
17-02-2018 10:11 PM
17-02-2018 10:10 PM