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Surgery May 2018

Kip
Member

Re: Surgery May 2018

Thanks Feenix and Michelle you are fab at cheering me on. I have heard of mindful Ness, there are aps aren't there? Might give that a go. I agree that the demons come in waves, I was very happy n positive and then bamm. It takes over, but I think that seems par for the course. Just need to ride it out and believe my own hype.
India will be great Feenix flat or otherwise and I bet they wouldn't even notice
Thanks ladies
Member

Re: Surgery May 2018

Kip ... worries are heightened when focussed on the subject. I became obsessed looking at arm all the time, having weird sensations, watching size etc. The moving forward course helped me to re focus as I realised that things can be managed if they develop.. a little bit of info/reassurance is good. Then I had a fall and back to square one but improving on the mental side of things. My BCN told me about the Hope course, so I might do that later. Apparently it is different to the Moving Forward course in that it has a facilitator but no speakers attending. It sounds more participant led and is for men and women who have had a cancer diagnosis. Is that the same Hope course you are going to do? Although I have a proper foob I do tend to wear my softie but I do go flat a lot of the time.

I’ll be travelling in about 5 weeks. It’s different to going on a package holiday as I stay with family. Plus I just take hand luggage .. travel light which is good.  It’s certainly an interesting place to visit though. Keep it on your list Michelle. It’ll be good to catch up with everyone. I’m wondering if they’ll be taken aback if I wander around ‘flat’ 😳 I’ll just be taking a softie with me ... it’s easy to take out and shove in a pocket if need be...bit harder with the silicon one as it’s not so squashable and have to take care more care with it 😂  

I’ve never been one to book anything in advance. Much prefer doing it adhoc. Our flights were just booked a week ago I think. Here’s hoping you get answers to your questions at your lymph clinic appointment.

How long is it before you travel Michelle? 

Not so sunny here but need to get up and move.

Enjoy your walk in the sun Kip ... hope not so achey afterwards.

xx

 

 

Member

Re: Surgery May 2018

I hope you enjoyed your dog walk Kip, I’m sorry you are struggling with worries at the moment. I find it comes and goes, although never goes completely. I said a couple of days ago about believing my own hype and I think there is something to that. A friend of mine has rcommended a mindfulness book, I’ve never done it before but apparently there is scientific proof that you can change the neuro pathways by practicing it and therefore making your thoughts more positive. I’ve always thought of it as ‘the new in thing’ but it seems like it might actually help if done properly. I know the main problem is the fear of its return and no one can give us the guarantee we crave but if we can find ways of coping with that fear rather than it taking over our thoughts it has to be worth trying! Hope you are ok, big hug coming your way xx
Kip
Member

Re: Surgery May 2018

Hi Ladies,

Don't worry Michelle you didn't worry me more, I was just impressed with how well you are doing.  I have tried ot call my Onc Nurse but she is away on holiday until Monday, not sure who to call now.   Its so weird because I think I am thinking about the pain so much and poking around that its making it worse, I need to chill a bit and stop thinking about it and see what happens.  I am sure chemo and Tamoixfen don't help matters.  

Feenix - meant to reply about the bras you got, at least you like the George one, its difficult isn't it.  I still have to arrange to be fitted for my prosthetic but am waiting until I feel up to it as quite happy with the KK at the moment.   When are you going to India?  That is exciting and something nice to look forward to.   We've still got to arrange a summer holiday, I am finding it hard to book things in advance, another of the gremlins I'm dealign with at the moment, almost don't want to jinx things.   I have booked onto the Hope course but can't get on until Feb so hoping that will help with things.   Also have the lymph clinic on Friday so might ask some questions there to.. .anyone who will listen!!

Oh well another day, but nice and sunny here, going to walk the dog this afternoon and see how the legs fair then!  

Kip

xx

Member

Re: Surgery May 2018

Kip I hope I haven’t made you more worried. I was lucky in chemo that I didn’t get any aches but I know it is a common side effect. Also I am 2 months on from you where chemo is concerned. I know a few of them on my chemo thread had a lot of aches and I think still do. Speak to your onc but I’m sure this is just your body healing x
Wow India Jean! I’ve never been but it’s on my list! Everyone who I know that has been have lsaidnit is amazing. My in laws went last year and I think my parents are going this year (or maybe next) I can’t remember!
Forgot to say Claire I hope your daughter is doing ok too!
Member

Re: Surgery May 2018

Well done on your training Michelle. I’m going to sign up for the 12 week active programme available here... I need a kick start, esp after my fall. I’m travelling to India...I’ve been many times. I’ll be taking plenty of deet with me this time.

Kip ... those worry gremlins have a lot to answer for. Definitely phone your onc to put your mind at rest. My feet and knees have been acting up lately ... I put it down to age and letrozole. I’m guessing you still have the after affects of chemo plus youre on ‘the tablet’ now. Are you still using the Epsom salts ?

Clare ... hugs xx

 

Member

Re: Surgery May 2018

Thanks for the good wishes everyone. Only just started getting my hospital bag ready but at least I’ve o oh just started to get nervous!
Looking forward to it being over.
Linda I haven’t seen the meaasgae on Facebook- will see if find it.xxx

Kip
Member

Re: Surgery May 2018

Wow Michelle I'm. Impressed with your training.. I. Ant manage 2 mile walk without aches n pains playing up. Mighr have to bite the bullet and ring onc tomorrow for advice as getting myself. In state worrying about bones... Worry. Gremlin doing overtime..
Clare... All. The best for tomorrow... Will be thinking of you
KIP
Member

Re: Surgery May 2018

A quick note to wish you all the best for tomorrow Claire. I am sure all will go well, let us know how you are when you are up tonit. I will be thinking of you. X
Glad you are back on line Jean, thought you were a bit quiet! Pleased your ribs are feeling better. Going to see your OH’s family sounds really exciting? Where do they live? I assume you have been before?
Training is going well but tough! Did a 9.6 mile yesterday and 8.5 today so sheltered now! Time for a roast and an evening in front of the fire! Tomorrow I need to do several lists on what to buy/pack etc. Busy busy xx
Member

Re: Surgery May 2018

Clare forgot to say no other ideas yet re a holiday in sun. A friend is in Hurghada atm as its easy to get there from here as we can fly from Bristol. Hurghada isn't that nice but hot in Feb. 

Not sure if you saw my FB message on the post re dense breasts but anyway hope all goes well tomorrow! Everywhere else is expensive atm although it's only money! xxx

 

Ps Christine Rim had a diep at the Marsden.

Member

Re: Surgery May 2018

Kip ... forgot to say that I sent off for 2 Asda bras and 2 Nicola Jane ... sent the NJ ones back and kept Asda ones. NJ bras didn’t have cotton pockets, which I prefer, but I didn’t like the style/material of one of them. Sizing was ok. I’d much prefer to see them in a shop esp at the price. I’ll probably try Amoena next. Hope you’re doing ok. Im going to try hooping again next week 😊 

Michelle ... hope your training is going well.

xx

Kip
Member

Re: Surgery May 2018

Hello clare,. Oh what a shame for your daughter, hopefully she'll get to Wales and perhaps get given some special responsibilities on the activities which will help her feel involved.  I hadnt realised your op was Monday either, that came round quickky didnt it.  Your poor OH will feel torn between  being there for you and yiur little girl but good your mum can be there for you.  Ill be thinking of you and looking forward to hearung its all done.  Hope you get a restful weekend.

kip

Member

Re: Surgery May 2018

Aw Clare you daughters disappointment must have been immense but hopefully things will turn out ok for her. Children heal well and bounce back quickly.  The school sounds so good.

My goodness it’s your op Monday... I had the 16th in my mind. You’ve certainly had plenty of distraction although not what you would really have wanted. It’s good your mam is around and will be there on the Tuesday for you. Monday will feel like a long day for them all. I’ll certainly be thinking about you on Monday and look forward to hearing you are through it and recovering well.... and planning your shindig 💃🕺

sending love, hugs and positive vibes

Jean

xx

Member

Re: Surgery May 2018

Glad to have you back online Jean.  Do take care- moving heavy furniture? Definitely sounds like you’ve over done things,  Hope the exercises are helping.  

 

Unfortunately the hospital rang my OH out of the blue this afternoon,  A bone specialist decided to review my daughter’s x-ray images taken on Wednesday and he believes she has two ‘small and subtle’ fractures on her third and fourth metatarsals - (the long bones in the foot).  No wonder she’s been in agony and can’t put any weight on it at all.  She’ll be on crutches for a while.  She’s so upset as it’s the school disco on Thursday and the following week her year are off on their long awaited week long residential to a farm in Wales.  She’s literally been looking forward to it for two years!!  We’ll let her go if the school and consultant say it’s safe for her to do so but she’s been in floods of tears tonight as she was looking forward to the hike by the sea activity more than anything else.  Her teacher and the school office manager who are both accompanying the class have been so lovely and have been reassuring her they’ll let her join in with as many of the activities as she can and will find special things for her to do if it’s not possible,  Hopefully she’ll be on the mend by then.  She will be reviewed in the fracture clinic next Tuesday.  Aaaghhh!  My OH was supposed to be coming to the Marsden that day to see me and get an update.  He can come with me to the theatre doors at 8.30am on Monday (14th) but there’s not much point hanging around as I’ll be in theatre till at least 6.30pm.  I’ll then be in critical care so they advised him it would probably be better if he waited till the next day to see me.  He’ll now be with our daughter in another hospital in the opposite direction!  Thankfully my Mum is around so will come instead.  

 

Im exhausted so off to bed,  At least all this drama is taking my mind off worrying about my surgery!!

 

Take Care everyone.

 

ps I’m definitely going to need a party after all this!! 

Member

Re: Surgery May 2018

Hi all ... just got the internet back on. It had gone walkabout with the phone line from Tuesday...openreach just got round to fixing the problem. Just having a quick read through posts.

Kip ... exercises sound good...pleased you’re doing ok on Tamoxifen although you still have your aches and pains. Not too long until your appointment and get your arm looked at. Great your friend is pleased with her diep. Research says that women who have delayed recon appreciate it a bit more (!?). You’ll have a fab time in York. Keep on hooping and resisting the biscuits...if you can. I’ve nearly finished the Stollen thank goodness.

Michelle ... the moving forward course is worth doing.. you’ll get something from it I’m sure although I realise it’s not for everyone. Six of us still meet up at least once a month.. coffee/lunch/natter.... it’s good support and we know what bc diagnosis is like plus going through treatment. I don’t know about telling people about bc but everyone in the cafe yesterday would known all about it 😂 I’ve seen the Bosh book but not delved into it. I’m definitely doing lists ... on a daily basis...keeps me focussed and it’s good to plan, even just the shopping. 

Clare ... hope your daughter is improving and pain is controlled. You’ve certainly got something to plan (once recovered) and to look forward to in August ... what a lovely thought and gesture.

Afternoon tea ... mmmm.... very nice. Not long to go ... op Wednesday I think !!?? Time is flying but it will be good to see you through it and recovering.

 

Im doing ok... much better mood than last week. Ribs much improved....twangs a bit when lying flat ... and I really should refrain from moving heavy furniture around. Keep getting a burning sensation in my hand... think it’s carpal tunnel syndrome. It’s a side effect of letrozole plus I already have mild nerve compression in that wrist from nerve conduction studies. I’m doing dedicated exercises as I don’t want it to progress. I had severe carpal tunnel syndrome in my other wrist which needed surgery...instant relief though. I think I set it off this time by over stretching my arm when doing cording massage..unless it’s a coincidence. OH off to see family later this month and I’m going over next month ... my first long haul flight for nearly one and a half years. 

Have a good night

xx

 

Kip
Member

Re: Surgery May 2018

Hi,  I want a party too... look what you've started Clare Smiley Wink   We all deserve a party I think... Michelle.. a summer party sounds fab.. probably be in my garden too but something to think about. 

Your poor little one Clare, makes my aches and pains fade into the distance just thinking about it.   No doubt she'll get lots of attention at school and make her feel special, I remember always wanting a go on crutches when I was little.. am sure I wouldn't once I had them though.  I always wanted to have a plastercast too... crazy child.

Had another restless night with the achy joints... tried to explain exactly how they feel to my OH this morning but he couldn't understand, its difficult to explain.  He did say that he wishes he could experience it for 10 minutes to fully understand... only 10 minutes mind!!   I think I need to sleep standing up as its so much better then... not sure that would work though Smiley LOL

Kip

xx

Member

Re: Surgery May 2018

Kip I’m pleased your healthy eating plan is going well, I really need to get into ‘the zone’ I didn’t put any weight on in chemo and was really pleased but after surgery it crept up and December the Cadbury’s Hero’s just got the better of me! I would like to lose a stone, I will keep trying!
Cdc your daughters Leige sounds painful. My daughter tore lots of her ligaments in her ankle a couple of years ago when doing hurdles in athletics training. I’ve never seen so much swelling, it’s horrible to see them in pain isn’t it? I hope she feels a bit better now, it’s good school are helping out too.
Afternoon tea sounds lovely and worth putting healthy eating on hold for! I’m pleased your party sounds doable, how nice of the hotel to say you can postpone if need be. I find now it’s little things like that that really mean something to me. I also think you should get excited about it! Start a list of who to invite! I’m getting excited for you, in fact it has made me think maybe I’d like a party in the summer although we’d probably just have it at home! But still something to look forward to!
Jean how are you doing? Hope all is well and the lists are serving their purpose! X
Member

Re: Surgery May 2018

Ah so pleased for your friend Kip and it’s also encouraging for me to hear. It’s a huge op so not surprised she’s on morphine but it sounds as though she’s doing well all th8mhs considered. Hope she recovers well. Haven’t had time to think of op today though as this morning was all about helping my daughter - think we’d totally underestimated how long she’ll be on crutches for and how much pain she’d be in poor thing. Thankfully school have been great and she managed to go in today with some help to get around from a ‘buddy’ and being given extra time to get anywhere. I had a lovely pm tho and was treated to afternoon tea by my dear friend who organised it for my birthday last November. Oh well it was worth the wait- healthy eating plan on hold for the moment!

Michelle I rang the venue just to test the water and it looks like our thank you and celebratory night away for everyone will be doable. Even have a possible date at the end of August. The lady I spoke to also said because of the situation if we had to cancel for any reason we could just rebook for another available date. I’m trying not to get too excited as my OH and I have other things to think about at the moment but hoping we can start organising things once I’m suitably recovered.
Xxx
Kip
Member

Re: Surgery May 2018

CDC - just wanted to tell you, just had a message from my friend, she had her tummy DIEP procedure yesterday and is sooo happy with the results already.... feeling bit tired and woozy from morphine and a little bit sore but otherwise she's fine and so happy to have a flat tummy and 2 boobies again!  

Kip

xx

Kip
Member

Re: Surgery May 2018

Oh dear Clare, your poor girl, hope she's feeling ok today and not in too much pain.   Your party celebration sounds like a fabulous idea.  My OH and I have been invited to a wedding in York in February so decided to take up the offer and go for a couple of days (just the two of us), so found us a nice hotel and really looking forward to just spending some time away from everything.  

Going back to Michelle's post about what to say to people... I just bumped into a lady in our village, she's very nice etc but always comes up with a sheepish look and says "well how are you....is everything (long pause)...ok?   So I always say "oh yes everything fine" and then she goes merrily on her way.. when I really want to say "yes I feel ok, I ache from head to toe, have hot sweats that wake me up everynight and spend the good part of the day wondering will it come back"  but you don't say those things do you... you just smile, and let them go on their way.  Perhaps next time I will say it... just for the look on her face!   She also always says "love your hair bet your pleased its grown now"... also want to say "no not really much preferred being a mousy blonde with locks passed my shoulders instead of a grey Philip Schofield lookalike" but I don't.   Bless em!!!

Enough of my moaning.... its day 4 of my healthy eating plan and going ok, did some more hula hooping this morning, didn't help with the hot flush I had at the same time but hey ho.   Determined to shed some of this blubber and feel a bit fitter ready for the summer.. oh and have to squeeze into something suitable for a wedding in Feb... eek!!

Kip

xx