Good to hear everyone is starting to make inroads into the next stages of this journey, whether training for a trek, preparing for next surgery or making those lists... it all matters...its the next step forward! I've started a healthy eating plan this week (well yesterday actually)... trying not to listen to the biscuit tin calling me. I really need to shift this extra weight, can't be helping my achy joints. I have been using the hopsital exercise DVD doing a couple of sections a day, its really quite good, very gentle and now I have my pilates ball I can do all the exercises. Its basically just for shoulders, chest and neck, to loosen, stretch and release the tightness, but seems to help. Some of the exercisees are similar to the ones I was given after surgery, like walking the finger tips up the wall but they have been pushed further by facing the wall with the pilates ball under your outstretched palm and then you roll the ball up so that it moves down your arm and you do this up and also out to the side at an angle and it really gives it another dimesion... sorry not explained very well but seems to help. Lots of other little exercises to do which only take a few minutes at a time. I have even managed to hula hoop and do some arm exercises at the same time! One is called "painting the wall" and reminds me of the film Karate Kid (not sure any of you remember it)... where you extend your arm out in front and basically move it like you are painting up and down, flexing the hands... really helps my tight forearm!
Feenix you were right I have my lyphomdeam appt on 18th Jan so still another 10 days, will be glad for an expert to take a look and tell we whats what. Its still sore when I reach forward and I get a funny twanging feeling around my elbow, although I don't this its very swollen. How are you doing? Hows the ribs?
I also managed to get the same brand of Tamoxifen this month so will see if that helps sticking to the same one...so far its not too bad, just the aches (not sure if its that though) and hot sweats during the night but am sleeping pretty well I think, well not any worse than before anyway.
Hope everyone is getting back into the swing after xmas.
Thanks Clare. Sounds like you’ve found a good group to get info and support about Diep. I’m in the Flat friends closed group which I find really supportive, informative and I know Im not alone in my attitude. There was an interesting interview on woman’s hour today about mastectomy although I didn’t catch the beginning. I might have to catch up with it. I do hope you got as much info as you could at your appointment today and feel informed and confident with your team.
Kip... hope you’re doing ok. You’ve still got a wait for your appointment with lymph nurse if I remember correctly. Hope work is going ok.
Michelle .. hope your training is going ok. How are you doing in general ... just came to mind you were having counselling. If you’ve continued with it I do hope it is helping. Keep on walking, running and anything else you can do to help as well.
Weather has been rubbish today so I’ve been rather lazy, apart from being round the shops.... I’ve done some ironing !!! 😂 .... Lists rule ok. Got myself a diary with a yearly planner and large enough (a5) to write my lists 😊
Belated birthday greetings Jean! I think the lists and daily activities are a really good idea. It has helped me to have a bit of a routine when I’ve felt low. I’d love to get in to Tai Chi at some point too, Sorry you’re side is still sore- I can imagine you must have to be extremely supple for some of the yoga moves on the DVD. Not sure I could have attempted some of the positions I’ve heard of even before surgery!
Michelle fantastic you managed 7 miles and so glad you found someone to Chat with, Its so wonderful that you’re raising money too.
Linda- I spent a day in Cairo on a mini-cruise from Cyprus some years ago and absolutely loved it but we did have to have an armed guard at one point due to issues with security, Have you had any other ideas of places to go? I’m going to be looking for inspiration as I also intend. To have an amazing holiday once all the treatment is over.
Kip how are you getting on? Hope you’ve had a good weekend.
I came across a closed group for people on Facebook who have had or are going to have DIEP surgery. I’m now feeling slightly less nervous having read their experiences. Also feel better informed about what to expect. Hopefully my apppont,ent with the surgeon tomorrow will also help.
Sending best wishes to everyone sxx
Linda .. my niece has just been to Egypt and loved it. I was there 1990 ... I’d always wanted to go.
Michelle .. I use the wii fit yoga as a warm up. My side isn’t 100% yet but the stretching helps... at the same time as making it more sore 😂. We were looking at some yoga dvds my OH got when he did some training in India ... I’d have to be uber flexible to do some of the moves. The follow on team here have various things on offer and there’s weekly yoga which I may consider. Pilates is supposed to be good too. Going to get back to tai chi at some point. My mood has improved but think I’m still on a low level at times hence I’m making to do lists on a daily basis and going to incorporate different activities eg. House stuff, me stuff, creative stuff, OH stuff etc. I may then be more focussed, motivated, productive and balanced. Sometimes I just can’t be bothered and I know it’s a mental thing. Maybe I’m in hibernation mode !! Sounds as though you’re doing good...getting out with your trekking group and doing 7 miles ... well done. Good to be able to chat about both your experiences with the lady trekker.
Kip .. hows the exercise dvd going ?
Clare ... hope your appointment goes ok tomorrow.
CDC 12 down 8 to go! Not sure where we will go yet. Was thinking of Hurghada Egypt but there was a bomb at the pyramids although not been to the pyramids but did think about going to the pyramids this time. We are thinking about a night away to celebrate the end of treatment first. Am thinking about you!
I mentioned I was thinking about an op in May on my other boob last week at my rad's review and they said to ask re a mammogram in October a year after my op as you have to leave it a while after surgery. I last had a mammogram in March on my good boob so that will be a year and 7 months from diagnosis. The surgeon said he would see me in April which is actually my wedding anniversary to discuss the op for symmetry as am lopsided at the mo.
Hope that Pilates ball does the trick Kip. Await your feedback.....
Ive been out for a walk this morning ... this afternoon will be wii fit. OH would like a rowing machine ... where to put it though. I’ve seen some wood ones online, which use water for the resistance. A bit expensive but stored upright and look like a contemporary piece of furniture.
Hope you all have a good day.
Kip ... being back to a work routine must be satisfying. I’ve yet to get a diary for this year but still have last years planner ... it certainly tells a story. Hope you’re ploughing your way through the chocolate at a steady pace. Your exercise dvd sounds really good and I hope you get back to swimming...I just keep on thinking about it. I’ve got some exercise bands but haven’t used them much although physio said they would be good for stretching. I may try a 5 week exercise prog through nhs site .. picked it up looking through Becca app. It’s on the same site as the couch to 5k. I’ll have to wait until my ribs are pain free and by that time I’ll probably have forgotten all about it 😂 . Hope your chemo se’s keep on improving... Michelle and Clare also.
Clare ... I was super anxious before my last op but more about decision making. I really didn’t want a mx as I’d got used to my ever shrinking boob, and it was ‘another surgery’. It’s natural to be anxious before major surgery, or any surgery. It’s the mental preparation, knowing there’s going to be a ‘change’ which will need to be embraced and a recovery period to get through. Although the length of your surgery must be daunting there are so many women who have gone through Diep and been ok .. that is so positive... keep that in mind. Your team will be very experienced doing Diep’s... they will reassure you on Monday and answer your questions. How are your pre op preparations going? Sounds good to have a couple of days away with your OH.
Michelle ... my goodness .. next month is your trek !! I have to take my hat off to you...I can only get up to walking pace. Mind you I’ve never been a runner. And you’ve signed up for more !!! They’ll keep you going. Keep on believing your own hype but take it easy if/when you have an off day ... go with the flow. My birthday was yesterday..chill out day. I never feel I have to do ‘anything or something’ and there’s so many other days in the year to chose from...warmer days 😂 Today is the day to start off on the right foot for me... definitely into lists again and will get a 2019 diary/ planner tomorrow. Gosh...I was doing that this time last year and it all went out of the window .. hey ho. Hope you get some good 💤
Jane .. pleased you are doing so good.... getting near to ringing that bell 🔔 🔔 🔔
Ive felt very tired and grumpy the past few days. Decided to take myself in hand .... started doing half hour wii fit today .. the yoga part was good for stretching.. and I have had a walk. My ribs are twanging but I need to keep on going. My mood has improved today probably because I don’t feel so cream crackered and I haven’t nodded off ... results. Hoping I can keep motivated.
Deciding whether to do long haul flight this month or next ... 🤔
I was told having an Epsom salt soak is good for crampy legs !?
Its been really chilly today. Hoping it’s going to be a bit ‘warmer’ tomorrow.
CDC - thats really interesting because I find if I haven't done too much walking my legs, feet and knees don't suffer at nighttimes as much.. but otherwise they are so restless and achey, my feet sometimes feel like I've walked 40,0000 steps and I haven't done a single one.. perhaps it is neuropathy from the chemo... whatever it is I hope it slings its hook soon!!
Hi Michelle and Kip
Thank you for your good wishes. Tenth radiotherapy today so two thirds done! I am counting down the days to that bell!
Wow Jane.. thats great that the nurse will come to your work for you... wonderful! Glad to hear you are fairing well too, its good to be back at work isn't it. After I finished my Rads (19th Dec) I haven't really found I have been too tired, not got sore either although I do have a couple of red patches but they don't hurt.
Michelle - glad the Tamoxifen is suiting you fairly well. Those sweats are awful though aren't they. I'm not convinced its the Tamox only causing my aches as it seems to be a SE of the docetaxol chemo for some people too. Perhaps its a bit of both. Last night I had restless right leg all night long and achy feet.. perhaps its some sort of neuropathy thing.. who knows.. just hope it passes. I have been looking up swimming timetables to see if I can get myself motivated to go swimming, thinkign I need to stretch all these muscles. After my work out yesterday with the DVD I am a bit stiff today, so still stretching.
I am doing well, thank you! I have just had nine of my fifteen radiotherapy sessions. No ill effects still. I had tried to bring it forward as I wanted to be finished by the time I went back to work today. However, it was not too bad having the sessions over the Christmas period. We had the children home from Uni and family down, so I had plenty of offers of lifts, and we combined it with a nice coffee after!
Work was so good today. I was absolutely thrilled to get back to it. I have been off from 26th June. I am doing mornings only til the radiotherapy has finished ( 10th January)The radiotherapy nurse told me the tiredness may kick in about nine days after my last radiotherapy. I hope not! I am away for a friend's 50th, then the following week I will be back to work full-time.
I will be having three weekly Herceptin injections til June but they are happy to come into work to do that, then sit in the waiting room for two hours to make sure there are no side effects. ( I am a dentist).
Best wishes to all of you
Morning all, well back at the desk and getting on with work. Funny how you soon get back into the stride.
CDC - I can well imagine the worries are creeping in for your operation but you'll get there and this is the final piece of the jigsaw and you can heal up and move forward knowing you've done all you can. Good to hear you have the weight gain for you operation too, I have plenty around my hips, tummy, bottom well everywhere really and am going to try to take that into control now the new year is here... although I still have a shed load of chocolate to get through too.
Fab you are getting on well with Tamoxifen too, just the knees. It will be intersting to see if it improves when you are off them for a couple of weeks.. let me know. My stiff limbs are still a nuisance but slightly less so now, just the lower back which aches (see below for possible reason though) and I get the sweating during the night.
I finally got to watch and participate in the Breast Exercise DVD given to me by my hospital. Its really quite good, it was made by Ipswich Hospital Macmillan unit and is aimed at getting movement and flexibiiity back. I did most of it today, its very slow to begin with and you build up as you go but had some great exercises that really feel like they will get my arms and shoulders moving. Made me realise that my hip and back pain is probably down to posture as they point out that once you have had breast surgery you naturally arch forward to protect that area and you shoulders dip and hunch causing stiffness. I need to work on the video and to buy a small pilates ball as some exercises use those. SOme use the resistance bands and that seems like a good thing too.
Michelle - I like your thinking that if you say your fine enough you may just believe it.. Im trying that too, not always successfully and I too spend times awake with wandering mind. I would love a whole nights sleep for once, but hot sweats and aches don't allow that any more. But mustn't moan as on the whole I sleep ok.
Pleased you’re getting to the end of your hospital treatment Linda. I started out in March also. Have found the support to be exceptional. Enjoy your break away in the sun ...all the best for 2019.
I second the rollercoaster year. Good riddens. Thanks to all for helping me through from March until now. Hopefully my treatment will end on 16th January. I am hoping to go away to get some sun soon. Happy new year.xx
Kip ... I’ve got everything crossed for more ups.
Jane ... how are you doing? I think you’re having radiotherapy? 2018 was certainly a rollercoaster, physically as well as psychologically. Wishing you all the best for 2019.
I put my good foot forward this morning and got out for a walk ... I know I need to do more, help my endorphins and increase my feel good factor. I’m making a list already, looking at things I need to do, things I’d like to do/try but nothing is ‘resolute’ as I know being flexible is the key ... go with the flow.
I think about the ladies who are just being diagnosed, having to make difficult decisions, going through treatment and know that there is always support on here.
Happy New Year, Kip, and all you lovely ladies. You have shared my highs, when I have had good path reports, and my lows, like my trauma over my mastectomy, and have got me through this. I have never met any of you, but our shared experiences make me feel like you are friends! I wish you all well. Jane xx
Hi all, just wanted to wish you all a Happy New Year!! Heres to a muxh better 2019 for us all. I would also like to say a big thanks to uou all foe being there feom the early dsys, through surgery, chemo and every up and down... You are all truly amazing...
Fingers crossed for more ups than downs this year
Hi Michelle ... pleased to hear your break away has been beneficial. You’re right about thoughts though ... you take them with you wherever you may go but distractions, being in a new place, are good. Superstitions, prayers etc can give comfort, reassurance and hope. I’m always saying ‘touch wood’ and ‘crossing fingers’. Throwing coins, ringing bells ... well, you just have to do such things. It’s definitely a must when on your jollies.
Hope the last of your chemo nails can be trimmed off soon. My friend reminded me that fatigue can be around for some time post hospital treatments ... and you are having Herceptin as well. Steady away Michelle, plan out your day, make a list ... and when you’re tired you just have to down tools and take it easy. Let someone else ‘take the load’ or just say ‘to heck with it’. Enjoy your time with your parents. Happy Birthday to your mam ... another Capricorn ♑️
I do hope you get back into your running and it helps.
You’ve all been so supportive ... listening , advising, sharing ...... very much appreciated.
All the Very Best for 2019. 🎇 Fingers crossed for a good year 🌈
Turkey is very versatile Kip. Wizard of Oz is a classic ... it’s some time since I watched it.
I didn’t go into the main shopping centre yesterday but planning to this morning. My intention was to be out by 9 but I’m still in the pit, with a cuppa !!! It was quieter out and about yesterday than the weekend. Out for a walk yesterday and actually picked up a bit of speed. I’ve definitely gone a bit backwards in terms of stamina as I was fair cream crackered afterwards ... started to nod off when I got back and sat down and even OH said I looked really tired. So, canny on the mental side of things but physically rubbish. Ive so got to be more active. My chest area/side is still sore but in general I’m still improving....it hurts just in certain positions and I still can’t put pressure on certain areas when massaging along scar. I started some cording massage last night ...just had to grit my teeth when lying flatter.... but I think lying down on my back, with a couple of pillows though, helped ‘stretch me out’ which is good.
Clare... just thinking it’s a little over 2 weeks until your surgery. I know you will be prepared, in the practical sense, for your recovery period. Have you got your post op bra and support pants yet ... will pick something up in the sales if you can stand to get out into the crowds although footfall around the shops is supposed to be less this year.
Michelle ... hope the week has been really super and just what you needed. We have yet to book our flights. I certainly need to be a bit more comfortable in the rib/chest area before getting on a long haul flight. Just remembered I’ve not sorted insurance out either and I need some Deet.
Sally ... how are you doing? I expect you’ve had your radiotherapy planning appointment and getting ready to start in the New Year. Have you seen any improvement in your hair fall? I hope you had a good Christmas.
Ive really got to get up 😂
have a good day ladies
Enjoy the shops Feenix! Just watxhed Wizard of Oz...an oldie but a goodie.. reminded me of watching it with my dad and hiding behind the sofa afraid of the witches' monkeys!
Turkey soup made, turkey curry for tea ..🤤
Pleased you had a lovely Christmas. Those leaky eyes will spring to life now and then I’m sure but good you managed to put your demons to rest for some time during the festiveness. Hope your aches abate some more and get kicked into touch although you may get them now and then being on the old hormone treatment. I’ve got old legs for real 😂 Pleased your fingers aren’t painful...a bonus !!! Don’t envy you the night sweats. Enjoy your day. I’m off out to the shops soon...well, as soon as OH gets ready!!!
Morning everyone, well thats Christmas been and gone already. Hope you all had a lovely break. i had a lovely time, even managed to put the old demons away at times although had a few tears tn Christmas Eve,. Just the usual old worries. I still have my aches and pains although not so bad, just a muscle ache in buttock and the usual old lady legs.. having mega hot sweats at night though. And for good measure i lost 3 finger nails Christmas morning (thankfully not whilst cooking). The dead white end halves just snapped clean away but there is nail underneath and they dont hurt so not all bad.
OH back at work today so im having a chilled day with the children, if and when they decide to surface.
Hope you’ve all had a good Christmas, here and away.
Relatively quiet when out and about today....girding myself for a proper look around the shops tomorrow.
Feeling ok... yay
Definitely got to exercise more due to having seasonal treats 😂
Great to hear that you did manage to get away.
Have a wonderful Christmas and all very best wishes for a happy and healthy 2019 xxxx
Michelle ... enjoy your tranquil sounding break. It’ll be good to be away from the mad bustle over here..especially when there’s turkey rage happening in supermarkets the length and breadth of the land 😂
Thanks .. I’m going with the flow, telling myself to ‘get a grip’ (there are those worse off than me kinda mode) and tweaking my thyroxine .... and I’m feeling a tad more myself.
Wishing you all Peace and Happiness this Christmas 🎄🎄🎄
Michelle ... pleased the emotions are stabilising somewhat. Mine have destabilised a bit, more so since I twanged my chest falling and feel I’ve taken a step backwards when I was doing so well. It’s made me feel angry, and hypersensitive, at times ... I would have just bounced back pre bc but of course I’ve a bit of a surgical area across the old chest now 😨... hey ho.... I am much better though. Have to be a bit careful laughing still. Pleased you got your lump seen and put your mind at rest. We have to get used to the new us when self examining, and of course we are always changing. Being able to access the Breast clinic service anytime is a good thing and definitely reassuring.
I do hope you made it away from Gatwick on time...enjoy your holiday.
Kip ... hope you continue to feel ‘ok’ . It’s great not having any appointments over Christmas . We went to a Wassailing last night and there was a moment I felt the leaky eyes kicking off but luckily I controlled it ... and I enjoyed the evening 😊 I’m definitely more emotional lately, a bit off kilter, but hoping I’ll get a bit more balance once Christmas is over... get into next year. You’ve definitely got a wait for your cording appointment. I hope it keeps on improving til then. OH does my cording massage a lot as he can put more pressure on but I can’t comfortably lie down and extend my arm back just yet so I’m doing it when Im upright doing stretches.
Been out round the shops this morning ... lots of folks food shopping but I expect tomorrow will be even busier.
Happy holidays Michelle hope you get away on time! Its good to know im not alone with how i feel too. Im feeling a bit brighter today i think. Just going to enjoy Christmas appointment free! Got an appt for lymphodema clinic forr 18th jan so bit of a wait to get cording sorted but it ok.
Hi CDC, the Add Aspirin trial sounds like something I would like to do. I have to read up a bit first, but you get given a low dose of Aspirin for about 8 weeks to see if you are compatible with it and have no problems, if thats ok then you get randomised for either 100mg 200mg or placebo. You have to have 12 extra appointmnents at the hospital over the next 5 years I think, they like to monitor urine, bloods and if it is stored, a piece of the original tumour. They have done some research by using a group of over 70 year olds and monitored them but they were not previoius cancer patients so they are now looking to see how the effects of aspirin could reduce the possible reoccurrence or delay it so they need hormone positive breast, bowel, prostrate and oesophagus patients. The listed side effects are those of taking aspiring, so bruising, blood thinning, indigestion.. so not too many. I will do some more research and let you know what I find.
After the exuberance of finishing active treatment on Wednesday its been a funny old time. Not sure how to feel. Had a quite restless night with the achey hips and back and kept worrying about bones... made the mistake of googling yesterday... never good and I should know by now not to. Its hard when everyone around me is saying "oh you must be so pleased its over with".. and inside I'm thinking.... its never over with though. Just hope time will make it easier.. that and some relief from these aches and pains. How are you knees now CDC? Enjoy those biscuits, chocs and tunnocks... musn't let that tummy go to waste!
Feenix - glad you are feeling a bit better now and getting the exercises going agaiin.
Clare, pleased you’re on the home stretch, have your surgery date and know what you’re having done. And you have to make decisions on going on the trial...always something..yikes. Enjoy the tunnocks and biscuits 😊
Kip ... see you have been asked to participate in a trial too 🤔 Hope you’re feeling somewhat better this evening. It’s an odd feeling at first after finishing hospital treatment but it does get better. Hope you can keep those gremlin thoughts at bay.
I saw my bcn today and she mentioned the Hope course so I might sign up for that too. I’ve got open access through the follow up team/breast unit, can access other support if needed, talking therapies,yoga etc and will have a yearly mammogram.
Im improving after my dive out of the car last week. Finding para/brufen help me get through exercises/stretching.
Have a good night