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Surgery May 2018

Kip
Member

Re: Surgery May 2018

Hi Ktk, glad to hear surgery went well and you are recovering, I think the drains are the thing I'm most worried about.  Keep on resting xxx

Member

Re: Surgery May 2018

Hi Linda 

 

Just read your post about tumour size. 

I have bilateral BC - right side tumour is thought to be 4.4 cm and left is 2.2 cm - both Er+ and HER-. I asked if they could do what they could to preserve my breasts when it was thought I only had one small tumour.  I was originally expecting to have a WLE but when my MRI showed the tumour was bigger than originally thought I was told I’d need to have a quarter of the tissue removed in each side and my team said it was no longer an option.  My surgeon is a specialist in oncoplastic surgery which is why she’s prepared to try a therapeutic mammoplasty.  I was told it’s not a procedure available in all hospitals. 

 

May I ask if you are pre  or post surgery?

 

cdc

Member

Re: Surgery May 2018

My initial genetic counselling is on 23rd May ktk. It’s also my wedding anniversary and my Mum’s birthday! I’ll be thinking of you.  Xx

ktk
Member

Re: Surgery May 2018

Thanks Jem. Funny you should mention big knicks. I went and bought a pack of M&S ones last week. Sooo comfy and you wear your own knicks to surgery!!
Member

Re: Surgery May 2018

Hi lovely brave May ladies. Just popped over from April surgery. I had mx and ld flap reconstruction on 13th April. Just read your threads and stories- you are all amazing. April thread has been a lifeline for many of us, support and listening ears from those going through with the same thoughts and fears, as well as making each other smile.
For those waiting for surgery take one step at a time, ask all the questions you need here and to medical teams. Many of us have sadly walked the same path and come out the other side realising we are stronger, braver and more loved than we knew- you will too. Ask Helena for big knickers!!
For those post surgery- as many have said one step at a time. Accept help, meals, cups of tea, gentle hugs. Drains were my biggest nightmare with constant pain - however they were necessary and did their job well- they do go. I’m now 3 1/2 weeks post surgery and out and about, feeling stronger both physically and emotionally. Don’t try and overdo it but rest, rest, rest.
Gentle hugs to you all, Jem xxx
ktk
Member

Re: Surgery May 2018

I got my pillow from Amazon. My sister still uses the one she had when she had babies. I wish I had used one! Know what you mean about the follow up appt. mine is on the 23rd. Xx
ktk
Member

Re: Surgery May 2018

Good luck for tomorrow CDC1811. I was anxious going in but it all went smoothly and my boobs look like they did 30 years ago!! Just need to work on the rest of the body now!! Let us know when you are out the other side and we can compare our follow up. Bigs hugs xxx
Member

Re: Surgery May 2018

To all of you ladies wondering ‘what next?’ I hear you!  I also have to wait for a genetics test and to see what they find when they remove both tumours before my treatment plan is finalised.  More scared of that appointment than the surgery.  Been told to expect chemo as my team don’t want to do radio in case I need further surgery and they think the chemo will be a way of ‘buying time’.  Have wondered if I’m making the right decision to go for a therapeutic mammoplasty if I’ll ultimately need a mastectomy but surgeon thinks it’s initially worth giving it a go.  Good luck for everyone undergoing surgery or waiting for results over the n3xt few days.  Xxx

Member

Re: Surgery May 2018

Glad surgery went well ktk.  Hoping I’ll feel this way tomorrow evening!  The v shaped pillow sounds like a great idea.  Where did you purchase yours?  Hope District nurse turns up soon.  Sending big hugs back.  Xx

ktk
Member

Re: Surgery May 2018

Thanks for all your lovely messages. It was such a relief to finally be having treatment as I feel as if I have been in limbo for the last month. Surgery went well. Nice new boobs! Just coping with the tubes and bags now. I have found a v shaped pillow a great help to enable me to sleep sitting up. Spent the day dozing and drinking tea. District nurse was due to call but I have just rung the surgery and they had no info. Hopefully they will be here soon to check all is well. Good luck and big hugs to all of you xx
Kip
Member

Re: Surgery May 2018

Hello KTK - hope surgery went well and you are recovering nicely!  Thinking of you.  Kip x

Kip
Member

Re: Surgery May 2018

Rosie, the bubble is exactly it!!  Hope I can eventually be on the outside of it!  Xxxx

Kip
Member

Re: Surgery May 2018

Hi jazza, I had meltdown yesterday too and keep thinking... This time next week!!!  I don't know what treatment is next, still waiting for Her,2 results, had to have my biopsy redone as not enough tissue, I do know I am ER,+ so hormones, the not knowing is dreadful isn't it.  Initial biopsy showed 30,mm grade ,1 ductal tumour and a few spots so boob going as only A cup and not much left behind. I keep looking at the bad boob and either hating it or feeling sad.  One step at a time is good advice but not easy to do all the time.

 

Good luck to surgery ladies for today, 

Member

Re: Surgery May 2018

Thanks Kip. I just don't have the time or energy at the moment to even think about being single again.....at least, though, I get to choose what I want to watch on TV!!!!!
Seriously, though, reality regarding my op has finally started to kick in. Had a mini melt down at the hospital yesterday and again yesterday evening. I have one more day at work and then I am off tomorrow before op on Friday. Still struggling to come to terms with why I have to go through this when I am fit and healthy. I also worry a lot about the next stages of treatment..... Even though Bcn has told me to take things one stage at a time.
Do you know what other treatment you will have after your op?? It's so good to chat to people who really understand.
Welcome Rosie. It must be a relief to have got chemo out of the way and be a huge leap forward with treatment. Initially I was told I would have chemo first to shrink my lump but after a lot more biopsys they decided it would not have the desired benefit so I am having wle with LICAP flap reconstruction on Friday. Results will then decide if chemo is required..... Oddly I am told it's my age that will play a part in that discussion (apparently I am "young").
Linda - My lump is 27mm.
Good luck today cdc.
Have a good day all xx
I am pleased to see the sun is still out here this morning despite the forecasted thunderstorms we were supposed to have last night..... Which never came.
Member

Re: Surgery May 2018

Hi,

Can I ask the size of your lump? I have been told they don't do plastic surgery after a lumpectomy my local hospital. Many thanks.

Linda

Member

Re: Surgery May 2018

Hi Ladies

Im from the January Chemo thread and I finished my Chemo (thank god) 4 weeks ago. Im due for surgery on Monday 14th Double Mx with one side Lymph nodes and reconstruction...I keep think that these are the last days I will spend with my boobs!! Its so weird...I am nervous but more of the lenght of surgery and being under anathestic for 7 to 8 hours.

Kip...as Im 6 months diagnosis I can asure you that those feelings of jelousy are normal and do fade a bit as this crazy world becomes your new normal. I do still find when Im out and about that I look for people that look like theyre having Chemo to feel less alone...I also had some real anger feelings at the start too. I got my diagnosis two weeks before Christmas and it was like being shoved in a bubble where the whole world was carrying on and you could see it you just wasnt part of it..very strange times indeed.

It does get better as you get going and the monthly chemo threads are a life saver xxx

Kip
Member

Re: Surgery May 2018

Hi Jazza, good luck with the appointment and so sorry to hear about your partner, you sound like you still have some lovely support around you though and we are all here, waiting to hear about your surgery and the next steps ahead.  Sadly nobody really knows how this feels unless you dealing with it, my husband, kids family and friends are truly wonderful but unless you are on this road its hard to comprehend the wide range of emotions you feel and how quickly they change.  Thinking of you...

Member

Re: Surgery May 2018

Good luck today ktk. I do hope you managed to enjoy the weather this weekend.
Kip - nerves have yet to get to me....finally got my pre-assessment on Saturday - it's today. Op is om Friday.
Good luck to you cdc 1811 for Thursday.
Thank you to the lovely ladies that have stopped by from the April thread - your posts ate very much appreciated. Gill - I hope your appointment on Wednesday goes well.
A couple of weeks before surgery/start of treatment has anyone gone into 'nesting' mode??? I have spent the last few weekends cleaning and sorting put my garden. Everything looks lovey. My Partner was not impressed I wasn't spending any time with him so decided to drop my things off on Saturday (we live in separate houses)!!
So looks like I will be facing this without him and am single again..... Oh well. I am fortunate to have the support of my lovely 20 year old Son and my Sisters. My mum lives 'up North' but is going to come down every few weeks to help.
Right....Sorry to pour that all out on you all. Its "Hi Ho" time for me.....off to work I go and hospital this afternoon.
I will catch up with you all soon.
Justine x
Member

Re: Surgery May 2018

Thanks daisiemoo. Hope you are well. Yes Wednesday is the day and what will be will be. Been busy all weekend so kept my mind from wandering. Had a long chat with my neighbour today who was in same situ as me 16 years ago and yes I will get through this and we all will. Xx will keep you posted. Have a good week everybody and take the week one day at a time.
Kip
Member

Re: Surgery May 2018

Thanks to all of you for replying and for your support.  Been out with friends this afternoon and was great to feel normal for a while, home now anxiety kicking in again.   Telling myself to be strong ... we can do this.