I’m envious of your weight loss too Kip ... as I’m sitting here with a cuppa and digestives. Dare not confess how many I’ve eaten ... 😈
Thanks Feenix - yes hoping for some bargains.. Good news about the hooping... me too.. I lost 3.5lbs last week so thats a plus.
I was thinking about Clare too, hope shes ok.
News such as you’ve had about your friend Kip, will always hit home. It’s a natural reaction. Being there for her, sending a virtual hug, a message of support is something you can do ... just being there. You’re right, there are many ladies living long lives with mets and there is plenty of support on here which she would find beneficial. There is also the younger persons group.
I don’t find this subject doom and gloom...it’s just how things are for some. We hope such things will bypass us..... we are definitely all different. Get yourself out shopping ... really good distraction and you might find a bargain 😊. I started hooping yesterday.
Hope things have gone ok for Clare.
Michelle .. hope physio helped
sunny here, washing out, have done wiifit, going for a walk and enjoying the weak rays while they are there.
Thanks for all the tips and kind words. Unfortunately yesterday I had some bad news which didn't help things, I have befriended a lady locally who has been going through treatment (we have never met but chat regularly on line), she is only 41 and had finished treatment but found out yesterday that she has lung mets. She did have some issues on scan before beginning treatment so it wasn't something out of the blue but still.. it really shocked me and didn't help with the demons at all. I am going to encourage her to get on this forum and I did some research yesterday and there are lots of chats going on with ladies in the same boat and I think it would be good for her. Haven't heard from her at all today and don't know how on earth to help apart from just be here I guess. Having to remind myself we are all different and it doesn't mean it will be me next... sorry for being so doom and gloom lately... perhaps thats another SE of the Tamoxifen.. it does wreck your hormones... going shopping later.. that will help
Just wanted to send you a big hug. We all have those demons, but just think what our bodies have been through last year. How could we not be having some side effects from it all? Everyone is different so try not to worry that others aren't experiencing the same symptoms. Try to focus on how far you have come. I get scared too, but then I think, I have had so much treatment, surely those cancer cells don't stand a chance!!! Being back at work helps too, as there are hours at a time that I am focusing on my work.
Love Jane xxx
That looks really good Kip. It’ll be the same one here. There’ll probably one where you are Michelle. It’ll compliment the moving forward course. I’ll be putting my name forward ... do everything that’s available. My bcn said that ladies who have attended found it very beneficial.
Just saw your post Michelle....takes me so long to get a message on here using one finger typing on an iPad 😂 Just brought to mind reading an article about craftfulness... some find it more beneficial as you’re doing/making things and can be in a group. I’ve got a few small projects to do, such as knit a hat ( probably get it done for next winter !! ), finish a tapestry, do tie dyeing etc. Hope the physio works for your hip. Yikes... not long before you’re trekking. Staying with family is definitely different ...you experience all the power and water cuts 😂 I’ve travelled with them in India, we are in the south, and it’s really interesting.
Kip .. the Hope course sounds as though it will be very good. I’ll be seeing one of the follow on team in the next couple of weeks for my pre yoga/referral to activities/gym programme so I’ll ask her about it. I have tried an free app called Headspace. You may find it helpful. It’s bloody awful when the demons hit but you’re right that’s it’s par for the course. As with everything time will improve things but being proactive about such things is a positive thing as a little help and cushioning along the way can only be a good thing. Doing courses, using apps, talking on here, accessing counselling, being active, working, quiet time .... so many things that can help. And accepting there will be those ‘off’ days along the way. We are here for you Kip. We understand.
sending a big hug xx
Kip ... worries are heightened when focussed on the subject. I became obsessed looking at arm all the time, having weird sensations, watching size etc. The moving forward course helped me to re focus as I realised that things can be managed if they develop.. a little bit of info/reassurance is good. Then I had a fall and back to square one but improving on the mental side of things. My BCN told me about the Hope course, so I might do that later. Apparently it is different to the Moving Forward course in that it has a facilitator but no speakers attending. It sounds more participant led and is for men and women who have had a cancer diagnosis. Is that the same Hope course you are going to do? Although I have a proper foob I do tend to wear my softie but I do go flat a lot of the time.
I’ll be travelling in about 5 weeks. It’s different to going on a package holiday as I stay with family. Plus I just take hand luggage .. travel light which is good. It’s certainly an interesting place to visit though. Keep it on your list Michelle. It’ll be good to catch up with everyone. I’m wondering if they’ll be taken aback if I wander around ‘flat’ 😳 I’ll just be taking a softie with me ... it’s easy to take out and shove in a pocket if need be...bit harder with the silicon one as it’s not so squashable and have to take care more care with it 😂
I’ve never been one to book anything in advance. Much prefer doing it adhoc. Our flights were just booked a week ago I think. Here’s hoping you get answers to your questions at your lymph clinic appointment.
How long is it before you travel Michelle?
Not so sunny here but need to get up and move.
Enjoy your walk in the sun Kip ... hope not so achey afterwards.
Don't worry Michelle you didn't worry me more, I was just impressed with how well you are doing. I have tried ot call my Onc Nurse but she is away on holiday until Monday, not sure who to call now. Its so weird because I think I am thinking about the pain so much and poking around that its making it worse, I need to chill a bit and stop thinking about it and see what happens. I am sure chemo and Tamoixfen don't help matters.
Feenix - meant to reply about the bras you got, at least you like the George one, its difficult isn't it. I still have to arrange to be fitted for my prosthetic but am waiting until I feel up to it as quite happy with the KK at the moment. When are you going to India? That is exciting and something nice to look forward to. We've still got to arrange a summer holiday, I am finding it hard to book things in advance, another of the gremlins I'm dealign with at the moment, almost don't want to jinx things. I have booked onto the Hope course but can't get on until Feb so hoping that will help with things. Also have the lymph clinic on Friday so might ask some questions there to.. .anyone who will listen!!
Oh well another day, but nice and sunny here, going to walk the dog this afternoon and see how the legs fair then!
Well done on your training Michelle. I’m going to sign up for the 12 week active programme available here... I need a kick start, esp after my fall. I’m travelling to India...I’ve been many times. I’ll be taking plenty of deet with me this time.
Kip ... those worry gremlins have a lot to answer for. Definitely phone your onc to put your mind at rest. My feet and knees have been acting up lately ... I put it down to age and letrozole. I’m guessing you still have the after affects of chemo plus youre on ‘the tablet’ now. Are you still using the Epsom salts ?
Clare ... hugs xx
Clare forgot to say no other ideas yet re a holiday in sun. A friend is in Hurghada atm as its easy to get there from here as we can fly from Bristol. Hurghada isn't that nice but hot in Feb.
Not sure if you saw my FB message on the post re dense breasts but anyway hope all goes well tomorrow! Everywhere else is expensive atm although it's only money! xxx
Ps Christine Rim had a diep at the Marsden.
Kip ... forgot to say that I sent off for 2 Asda bras and 2 Nicola Jane ... sent the NJ ones back and kept Asda ones. NJ bras didn’t have cotton pockets, which I prefer, but I didn’t like the style/material of one of them. Sizing was ok. I’d much prefer to see them in a shop esp at the price. I’ll probably try Amoena next. Hope you’re doing ok. Im going to try hooping again next week 😊
Michelle ... hope your training is going well.
Hello clare,. Oh what a shame for your daughter, hopefully she'll get to Wales and perhaps get given some special responsibilities on the activities which will help her feel involved. I hadnt realised your op was Monday either, that came round quickky didnt it. Your poor OH will feel torn between being there for you and yiur little girl but good your mum can be there for you. Ill be thinking of you and looking forward to hearung its all done. Hope you get a restful weekend.
Aw Clare you daughters disappointment must have been immense but hopefully things will turn out ok for her. Children heal well and bounce back quickly. The school sounds so good.
My goodness it’s your op Monday... I had the 16th in my mind. You’ve certainly had plenty of distraction although not what you would really have wanted. It’s good your mam is around and will be there on the Tuesday for you. Monday will feel like a long day for them all. I’ll certainly be thinking about you on Monday and look forward to hearing you are through it and recovering well.... and planning your shindig 💃🕺
sending love, hugs and positive vibes
Glad to have you back online Jean. Do take care- moving heavy furniture? Definitely sounds like you’ve over done things, Hope the exercises are helping.
Unfortunately the hospital rang my OH out of the blue this afternoon, A bone specialist decided to review my daughter’s x-ray images taken on Wednesday and he believes she has two ‘small and subtle’ fractures on her third and fourth metatarsals - (the long bones in the foot). No wonder she’s been in agony and can’t put any weight on it at all. She’ll be on crutches for a while. She’s so upset as it’s the school disco on Thursday and the following week her year are off on their long awaited week long residential to a farm in Wales. She’s literally been looking forward to it for two years!! We’ll let her go if the school and consultant say it’s safe for her to do so but she’s been in floods of tears tonight as she was looking forward to the hike by the sea activity more than anything else. Her teacher and the school office manager who are both accompanying the class have been so lovely and have been reassuring her they’ll let her join in with as many of the activities as she can and will find special things for her to do if it’s not possible, Hopefully she’ll be on the mend by then. She will be reviewed in the fracture clinic next Tuesday. Aaaghhh! My OH was supposed to be coming to the Marsden that day to see me and get an update. He can come with me to the theatre doors at 8.30am on Monday (14th) but there’s not much point hanging around as I’ll be in theatre till at least 6.30pm. I’ll then be in critical care so they advised him it would probably be better if he waited till the next day to see me. He’ll now be with our daughter in another hospital in the opposite direction! Thankfully my Mum is around so will come instead.
Im exhausted so off to bed, At least all this drama is taking my mind off worrying about my surgery!!
Take Care everyone.
ps I’m definitely going to need a party after all this!!
Hi all ... just got the internet back on. It had gone walkabout with the phone line from Tuesday...openreach just got round to fixing the problem. Just having a quick read through posts.
Kip ... exercises sound good...pleased you’re doing ok on Tamoxifen although you still have your aches and pains. Not too long until your appointment and get your arm looked at. Great your friend is pleased with her diep. Research says that women who have delayed recon appreciate it a bit more (!?). You’ll have a fab time in York. Keep on hooping and resisting the biscuits...if you can. I’ve nearly finished the Stollen thank goodness.
Michelle ... the moving forward course is worth doing.. you’ll get something from it I’m sure although I realise it’s not for everyone. Six of us still meet up at least once a month.. coffee/lunch/natter.... it’s good support and we know what bc diagnosis is like plus going through treatment. I don’t know about telling people about bc but everyone in the cafe yesterday would known all about it 😂 I’ve seen the Bosh book but not delved into it. I’m definitely doing lists ... on a daily basis...keeps me focussed and it’s good to plan, even just the shopping.
Clare ... hope your daughter is improving and pain is controlled. You’ve certainly got something to plan (once recovered) and to look forward to in August ... what a lovely thought and gesture.
Afternoon tea ... mmmm.... very nice. Not long to go ... op Wednesday I think !!?? Time is flying but it will be good to see you through it and recovering.
Im doing ok... much better mood than last week. Ribs much improved....twangs a bit when lying flat ... and I really should refrain from moving heavy furniture around. Keep getting a burning sensation in my hand... think it’s carpal tunnel syndrome. It’s a side effect of letrozole plus I already have mild nerve compression in that wrist from nerve conduction studies. I’m doing dedicated exercises as I don’t want it to progress. I had severe carpal tunnel syndrome in my other wrist which needed surgery...instant relief though. I think I set it off this time by over stretching my arm when doing cording massage..unless it’s a coincidence. OH off to see family later this month and I’m going over next month ... my first long haul flight for nearly one and a half years.
Have a good night
Hi, I want a party too... look what you've started Clare We all deserve a party I think... Michelle.. a summer party sounds fab.. probably be in my garden too but something to think about.
Your poor little one Clare, makes my aches and pains fade into the distance just thinking about it. No doubt she'll get lots of attention at school and make her feel special, I remember always wanting a go on crutches when I was little.. am sure I wouldn't once I had them though. I always wanted to have a plastercast too... crazy child.
Had another restless night with the achy joints... tried to explain exactly how they feel to my OH this morning but he couldn't understand, its difficult to explain. He did say that he wishes he could experience it for 10 minutes to fully understand... only 10 minutes mind!! I think I need to sleep standing up as its so much better then... not sure that would work though
CDC - just wanted to tell you, just had a message from my friend, she had her tummy DIEP procedure yesterday and is sooo happy with the results already.... feeling bit tired and woozy from morphine and a little bit sore but otherwise she's fine and so happy to have a flat tummy and 2 boobies again!
Oh dear Clare, your poor girl, hope she's feeling ok today and not in too much pain. Your party celebration sounds like a fabulous idea. My OH and I have been invited to a wedding in York in February so decided to take up the offer and go for a couple of days (just the two of us), so found us a nice hotel and really looking forward to just spending some time away from everything.
Going back to Michelle's post about what to say to people... I just bumped into a lady in our village, she's very nice etc but always comes up with a sheepish look and says "well how are you....is everything (long pause)...ok? So I always say "oh yes everything fine" and then she goes merrily on her way.. when I really want to say "yes I feel ok, I ache from head to toe, have hot sweats that wake me up everynight and spend the good part of the day wondering will it come back" but you don't say those things do you... you just smile, and let them go on their way. Perhaps next time I will say it... just for the look on her face! She also always says "love your hair bet your pleased its grown now"... also want to say "no not really much preferred being a mousy blonde with locks passed my shoulders instead of a grey Philip Schofield lookalike" but I don't. Bless em!!!
Enough of my moaning.... its day 4 of my healthy eating plan and going ok, did some more hula hooping this morning, didn't help with the hot flush I had at the same time but hey ho. Determined to shed some of this blubber and feel a bit fitter ready for the summer.. oh and have to squeeze into something suitable for a wedding in Feb... eek!!
Hi Michelle, don't worry I've been there and done that too! I think we probably all have. I was in our local bakers with a headscarf on and could see the ladies looking at me (side glances you get the picture) and I just blurted out .." oh I've got BC" and whipped off my scarf to reveal a bald head. Don't know why i did it, just had to do something, they didn't know what to say.. well one did. she then told me how her sister in law had died from it!! Cheered me up no end... I wouldn't worry, we never know whats going on in other peoples lives, who knows he may know someone who has just been diagnosed and was thinking... "wow she's been there and look at her now"... there's no guide book of how do deal with all of this is there.
Glad you got the Karate Kid reference too... always makes me smile... just need to catch a fly with chopsticks now.
CDC - how are you? Have you had the appt with the hosptial yet? My friend is having her tummy diep right now... she was very excited last night!!
I did write a message to you but it's disappeared! I also tried to PM you but also to no avail. By all means you can PM me. I seem to be having probs with computer so you may get this twice!!