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Surgery May 2018

Kip
Member

Re: Surgery May 2018

Hi Feenix, sounds like you had a nice day albeit a bit cold.  Its definately a bit milder down here today, no frost this morning and nice and bright.. roll on the summer hey.

Kip

x

Member

Re: Surgery May 2018

1/2 pound is better than nothing Kip. Sounds as though you’ve twanged something... so easily done. Hope it settles.

I had the thermals on yesterday ... had a nice train journey for a look out with OH. Only round the shops this morning.

 I was up at 5 am but it was overcast here for seeing the blood moon. Saw one years ago when I was on nights.

Hope everyone has had a good weekend

xx

 

Kip
Member

Re: Surgery May 2018

Welcome Home Clare ... I saw you lovely photo on FB relaxing in your chair... you look great!

Optimisticmz - my arm is 9% bigger to so as you say its only minor but best to keep on top of it before it gets bigger.  I am wearing my sleeve whilst at home working and its ok, keeps my arm warm this weather.

Feenix - Only lost 1/2 llb this week.. haven't been out walking much though as its been cold and my stiff butt was playing up.. I decided to rest it a bit and I think its helped.  It feels like I have pulled a tendon (perhaps the hamstring looking online) and its pulling in my butt cheek, it doesn't hurt when resting but after walking or bending with straight legs.. boy it hurts.   Ive done some hooping this morning and that doesn't hurt it though, so hoping the rest will be sending it on its way.  Still having stiff kneews and ankles in the night though but that seems to be par for the course for some on Tamoxifen... its bearable though so Ill carry on in the hope it fades with time.

Did anyone see the blood moon last night?  Beautiful pink glow this morning..

Kip

xx

Member

Re: Surgery May 2018

Great you’re home Clare. Here’s to an uneventful recovery ... rest, steady away.

hugs

jean xx

Member

Re: Surgery May 2018

Just a quickie to say I’m finally home- exhausted but happy! Will catch up properly once i’m More with it xxx
Member

Re: Surgery May 2018

CDC I am glad that it went well now you are on the ward. The TV is fab isn't it? I was offered a dressing gown too but took my own new one. I have a cold so am taking it easy now my treatment has finished. I think I relaxed as reached the light at the end of the tunnel so was more prone to germs at work.x
Member

Re: Surgery May 2018

Michelle .. wise to take antibiotics with you , just in case. If I need anything A/b’s can be bought over the pharmacy counter. OH always has a BNF with him..medic... so he’d just get me the most appropriate. Hope you’ve got your 50% deet and travel socks.

Flying ... I was told to avoid having affected side on the aisle as people can knock you lots... and fall on you 😂.  If you sit next to the window, with affected arm next to it, keep a cover over to keep arm warm. Do  exercises regularly ... can’t remember how often but I’ll do them at least hourly. She told me  the following.... 1. with your arm down, make a fist and then relax it, slowly, and repeat a number of times 2. as before, make a fist and flex your arm up, slowly... as though you’re doing bicep curls... then down and repeat. They can easily be done while sitting.. half hourly comes to mind !!??  You can easily do some of the BC exercises as well if you’re up and about... keep your shoulders loose and do some stretches. I’m usually up and down like a yo-yo, drink lots of water and keep off alcohol as it dehydrates. I guess these exercises apply to long train/car journeys ... anywhere you’re static for hours. Enjoy your fund raiser evening. 

Kip .... how are you this evening? How’s the weight loss going? I think mine will be going up the way I’m dipping into the kitkats.  I picked up a few more Asda bras for £6, total.

Clare .. see you’ve escaped CCU ... home will be beckoning soon.

xx

Member

Re: Surgery May 2018

Hi Kip. Your dominant arm could be up to 5% bigger than the other naturally. Mine is 9% so quite light. The manual lymphatic drainage involves encouraging the fluid to drain away. I can feel the fluid sitting at my elbow and I use kinesiology tape on this area. My therapist starts by clearing the lymph nodes in my neck then working on my arm and breast and finally moving down to my groin. It's quite an intense massage but I can feel the benefits straight away. Michele

Member

Re: Surgery May 2018

Kip I thought the same as you re massage. Every day I do it starting at the wrist and working up! So I’ll have to change that then! I have a friend who is a reflexologist and apparently there is a lot of evidence throwing that can help with lymphodema. Even it it doesn’t help it’s nice having someone massage your feet for an hour!
I’ve been like you Jean, obsessing about my arm at various times. I’m taking antibiotics to Nepal, just in case. What exercises have you been told to do on long haul flights? I’m stopping Tamoxifen a week before I fly because of the DT risk. I’m sure I’d be fine but it’s just something else to panic about! I’m glad your cording is better I’m sorry that it too you taking a tumble for it to improve!
I am out tonight at a fundraiser organised by my husbands work. It should be a good night but I feel so tired from my cold and life!
I hope everyone has a good weekend. Claire I hope you are feeling a little better every day. Xx
Member

Re: Surgery May 2018

Thanks so much for your advice Kip.  I will get stroking!  I would have done if from the wrist too which is how I do my moisturiser.  Maybe I should start at the top with that too.  Glad they've caught it early so hopefully you will not suffer too much x

Member

Re: Surgery May 2018

Kip ... I do the stroking and always when I shower, same way for moisturising. I sometimes think my arm is slightly bigger than the other but was it that way before ... can’t remember 😂 I’m sure I’ll be having someone eyeballing it one day soon , just to make sure it’s just my normal flab but also to catch things early if it’s lymphoedema. My thick cording seems improved since I head dived out of the car and whacked my ribs/chest. Im wear a wrist splint at night now as thought I’d kicked off carpal tunnel syndrome falling on my hand !!! Seems to have helped. If it’s not one thing it’s another. It would seem Tamoxifen has a lot to answer for. Keep on with the exercises ... reminds me I need to do some.... and a bit of hooping. 

xx

Kip
Member

Re: Surgery May 2018

Thanks Optimisticmz... that sounds interesting.. what does that involve?   I don't have much swelling at the moment so hopefully things will stay that way. 

Kip

x

Kip
Member

Re: Surgery May 2018

Hi all,

DaisyDi - thanks for the message and glad you've been following my progress.  Don't panic the lymphodema is nothing much.  I had some cording after my ANC clearance which was why i was referred to the clinic, to get their advise.  I have been massaging that and its pretty much gone.   But the nurse took measurements of my arm and the affected side is on 8% bigger than the other, you can't really tell but she wanted to get on top of it before it got worse (if it does at all).   Its not painful or anything.  I have a sleeve to wear as and when and exercises to do.  Best thing to do is to keep up the exercises everyday..I know after surgery it can be painful, but take it easy and do them religiously.   She said exercise is the best thing.  I have good movement as I have been doing them all the time.  Gentle stroking starting at the top of you arm and stroking upwards, then moving down a little bit and stroking upwards and slowly work your way down to the wrist.  Don't start at the wrist and work upwards (which is what I thought you had to do).  You should do it gently just enough that the skin creases.  Look after your arm, sun cream, wear gloves in the garden and washing up and if in doubt ask the nurses.   I am sure you will be fine Daisy, its just another thing to worry about but, actually I'm glad they are sorting it now and keeping and eye on it.  I have a friend who wears a sleeve every day and she is fine, compared to cancer and chemo a sleeve is nothing much.

Feenix - wow I didn't know you could get covers... how cool is that.  Thankfully I only need to wear it when I exercise or go for a walk.  I've been wearing it for a few hours today to see how it feels and actually its fine.  I'll make sure I keep up the exercises and hopefully it will keep it at bay.  At least its taken my mind off the aches and pains, the lymph nurse reckoned they are caused by the Tamoxifen!

Kip

xx

Member

Re: Surgery May 2018

Hi Kip. I have followed your story too. I am ahead of you as I had surgery October 2017. I have lymphoedema in my hand, arm and breast and was fitted with a sleeve in May 2018. I am currently receiving manual lymphatic drainage from a McMillan trained nurse (6 sessions being paid for by a charity) and find I benefit greatly from this. I also find kinesio tape useful. So far the swelling is all under control. If you would like to know more than just message me. Michele

Member

Re: Surgery May 2018

Hi Kip. Good your cording has gone. Well done on your range of movement. Sorry about the lymphoedema though.  Good to ‘catch it’ in its early stage. I like that you try to find something positive out of this. You can get bonny  sleeve covers, some which will make it look as though you’ve got a full sleeve tattoo. Hope you join your OH and son doing yoga. 

I was always worrying about my arm, and was quite obsessed at one time, as I was thinking I would be more prone to developing it having had cording and 3 surgeries, even though none of them was ANC. I did feel more at ease after the lymph nurse spoke to us just realising how manageable it is. If I develop it then I’ll just manage it. I’m pleased I now know the correct way to apply moisturiser and she did tell me exercises to do when on long haul. 

Hugs

jean xx

Member

Re: Surgery May 2018

Hi Kip I have been following your story and was so pleased for you when you finished your treatment.  The pic of you and your children brough tears to my eyes and I now find myself teary eyed again having just read that you have lymphodema.  I am a week post op anc and that was my worst nightmare although I dont have all my results yet so no treatment plan and things may get worse for me.  I also had a 3rd reexcision to get one more clear margin but my journey has been going on since October.  Did you have swelling to your arm?  I am keen to do as much as I can to avoid lymphodema but dont really know what to do for the best.  I am still sore and numb at the moment so finding exercises a bit difficult.

Kip
Member

Re: Surgery May 2018

Hi Michelle, apparently when exercising that it when your blood and lymph is flowing more so its important to wear the sleeve to stop it building up.   I would imagine that if you don't have lymphodema there its good to exercise to keep it flowing but the sleeve just helps stop a build up... I think!!  She did say exercise is very good, especially yoga.

Member

Re: Surgery May 2018

Oh Kip I’m so sorry to hear you have developed Lymphodema , but it is good that they have caught it early and you now know what to do to help it. I’m intrigued why you wear it when exercising, I thought exercise was good for it? I love that you're looking for the silver lining with no bingo wings! Xx
Kip
Member

Re: Surgery May 2018

Hi everyone,

Just been to lymphodema clinic... good news is my cording is gone... bad news is.... I have mild lymphodema... now sporting a lovely support sleeve.  I don't have to wear it all the time just when exercising, walking or housework/gardening.   She wants to stop it progressing so has told me some more exercises to do and dos and don'ts and have to go back in 3 months.  She was impressed with the movement i have though.  Actually felt quite teary when I left the clinic, seems I always go in positive and come out with something else but in teh scheme of things.. a sleeve is nothing... and another positive... no bingo wing on that side when wearing it.. lovely toned arm!  Might wear the spare on the other side...Smiley Very Happy

Member

Re: Surgery May 2018

Claire so lovely to hear from you, what a shame about your low bp but as Kip says it’s hopefully just a blip and you get home soon. I hope you are feeling ok in yourself and I’m looking forward to your next update x