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Surgery May 2018

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Re: Surgery May 2018

Enjoy celebrating your OH’s Birthday Michelle.

Remember we need to use insect repellent at home too.

I got munched on by mossies  at a garden party one year, right through my clothes too. Left me with a lump on my neck which my friend noticed and I had to have it biopsied  but it was an enlarged lymph node.

Clare .. hope your recovery is going to plan. You’re back waiting for results which we know isn’t easy... this will be the last lot though .. 😊 

I imagine you’ve been hooping already Kip.

Washing in, having cuppa and dare I mention a choc digestive... or more. However, I have planned a healthy main meal ... spicy cabbage, dhal and rice with mango to follow.

jean xx

 

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Re: Surgery May 2018

Thank you both so much for your replies, wise words to set me back on the right course. Yes we are still early on with all of this and I’m sure you are right Jean as time goes by we will be less wobbled by things. Kip your husband sounds like he has a good perspective on things which is exactly what is needed at times like these. I also read that article recently, it’s so accurate with many things and yes I like the speeding bus analogy and also the rollercoaster analogy for diagnosis.
Well it’s my OH ‘s ‘big day’ today and he’s just woken up so I’d better get on with things! Thanks for the insect repellent recommendation Jean xx
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Re: Surgery May 2018

 
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Re: Surgery May 2018

Drat ... upside down ... hey ho

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Re: Surgery May 2018

F756027E-354A-46FC-A66B-E4A717DDB196.jpeg

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Re: Surgery May 2018

Well done on your fund raising night Michelle ... keep that in mind.

It’s sad Michelle, and scary at the same time, hearing about others who are going through BC but we are all different. One of the volunteers on the moving forward course was in her 30’s when diagnosed, the other not much older but they are doing so great. They say volunteering has helped.

There are always reminders around aren’t there. The other night I switched tv to watch the programme about the Liverpool women’s hospital and a young woman with stage 4 bc was in the hospital and pregnant but still having adjusted chemo ...she had a lovely little girl. The night before that I watched Dr Kevin Fong’s programme. I found both programmes interesting. Must be the ex nurse in me but I’ve also experienced family/relatives with different cancers and also friends. As a nurse it was inevitable in my working life. There are many women out there who have had treatment for BC, even living with BC, and are still going strong after many years, decades even.

Remember we are still early days really, not even had our first mammogram so we are hypersensitive to everything. We will probably have those crap days in the future but hopefully less frequently as time goes by. As Kip says, we will pick ourselves up, mentally dust ourselves off and get on with life. Sometimes it’s easier said than done. 

Kip ... your hubby sounds a gem... I like him and his wise words because that is my and my hubbys approach. I remember you posting somewhere that he said “life is terminal” ... got to confess I use that phrase of his. 😂  Yes, I have a glitchy time now and then but that’s par for the course, a work in progress. That article is good .. must read it again.

Positive vibes ladies

ps... got Deet 50% Jungle formula 

 

Kip
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Re: Surgery May 2018

Hi Michelle,  I feel for you.  As you know a lady I know found out she has lung mets now and she is only 41.. it really throws you doesn't it.  You feel like you are bobbing along nicely and then wham.. something happens or you see something on the news and it can set you back.   Hope you daughter is ok too.  Like you say you don't know the whole picture, best not to sometimes.  This new world is a scary one... my husband always tells me to remember that before this whole thing happened we never knew what was around the corner and everyone else never knows what may happen either... but it still doesn't stop you panicking when you've been in this place does it.   I read the "After the treatment ends" article the other day and he hit it on the head, he said..."when people say I may get hit by a bus" its different for somebody who has had a cancer diagnosis.. as we've seen the bus coming and don't know whether it will stop"... I thought that was so apt.  All we can do is try to take it a day at a time and pick ourselves up when we get down and keep on trucking!   Oh if only I believed my own hype somedays!!  

Take care

Big hugs... focus on the fab evening you had..

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Re: Surgery May 2018

Life’s ups and downs are so tough nownarent they? We had the fundraiser last night and it was brilliant. There were 160’people there and so many people said how great that we are doing this. I woke up feeling so supported and optimistic for the future. Fast forward 5 hours my youngest daughter who is home for the weekend tells me about one of her flat mates mum has breast cancer, I asked how she’s doing and she tells me she has stage 4 in her spine. This has really upset me. I didn’t show it in front of my daughter but I wonder what affect it has had on her too. Not to mention the poor lady who is going through all of this. I try to keep perspective, I don’t know what stage it was found at or whether she was HER2 + etc. Life has changed for us now hasn’t it and that is really hard to live with sometimes.
I hope your husband arrived safely and you got to your tai chi Jean. I also keep thinking about starting yoga but thinking about it as far as I’ve got! Interesting that it can help with lymphodema Kio. X
Ps Jean what brand of Insect repellent do you use? X
Kip
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Re: Surgery May 2018

No clean knickers Feenix... what a dilema Smiley Very Happy

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Re: Surgery May 2018

Tai Chi is good Kip ... gentle stretching and movement. I didn’t get this morning as discovered the outside drain was blocked ...Dyno  Rod to the rescue. We might have tree roots again. Anyway ... I should be lucky now so will get a lottery ticket tonight 😂. After doing hubbys washing this week I totally forgot about mine so found I was without clean knickers this morning. After washing and drying all is now present and correct. I need to get more as I’ve not been replacing the ones I’ve thrown out ... too much focus on bras !!! Yoga is supposed to be good. I’m looking forward to giving it a go. I’ve got a swimming KK.... just havent got swimming gear. I’ll go to Tai Chi beginning of next week as it’s on different days at various venues. I really need to increase my weight bearing activities as well just to give my bones a ‘leg up’. Hubby arrived ok, good flight and enjoying better temperatures .. and sun. I’ll have to get myself sorted for travelling.

Well, going to hoof it round the shops and get out for a walk afterwards

Jean xx

Kip
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Re: Surgery May 2018

Ooh After Eights... I love them.  Feenix you always make me want chocolate!   Sounds like you are very busy at the moment, how is Tai Chi?  Never tried that?   I am hoping to start Yoga though, the lymphodeam nurse said there is a lot of research into how much Yoga helps with lymphodema reduction and prevention, just don't want to stretch the butt muscles too much at present so waiting a while (thats my excuse anyway!!).   I also want to try swimming too, just got to get my self in gear to actually go!   Also need a swimming knocker.. must get on to mother.   Hope you hubby arrived ok, its exciting that you get to go too soon... very exciting.

Kip

xx

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Re: Surgery May 2018

Michelle ... pleased you got through your scan, eventually, and have been checked over by your onc. All helps with putting your mind at rest. We all want things to be straightforward but when there’s a glitch, and of course back at the hospital, it is understandable that emotions will be triggered. My goodness, you’re certainly putting the miles in. I’m happy with 3, if I’m lucky.... I’m going to play the age card 😂 Hope your final fundraiser goes well and you have a Fab celebration for your OH 50th.  Two and a half weeks will fly by ... you’ll have a great time, a good experience,  I’m sure... steady away. I’m looking forward to some pics. 

Kip ... sounds like a plan to ask about your achey butt and leg at your next appointment... put your mind at rest. Sounds ‘muscular’ as you get relief from a heat pad. You and Michelle are starting a new trend in diets I feel 🍫 🥚 

Im not so bad... feet up at the mo sampling after 8 mints !!!! OH on his way to see family ... I’ll catch up with him next month, hopefully with a bit of weight loss to show.... no more choc boxes after today and an increase in activity from tomorrow (I’ll be too busy tracking his flight today .... I feel better when I know he’s arrived ). I will go out for a short walk to village pharmacy this afternoon. Thinking Tai Chi tomorrow. Still awaiting yoga assessment and referral to local leisure centre exercise/activity programme. See it’s going to be quite balmy for a couple of days from tomorrow ... lovely.

xx

 

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Re: Surgery May 2018

Oooo I love chocolate orange! Definitely one of your 5 a day! Chocolate orange and mini egg diet! Xxx
Kip
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Re: Surgery May 2018

Thanks Michelle, I had a bone scan and CT scan before chemo in June and was all clear, so hanging on to that too.  I think it may be a problem with my hamstring tendon as I have the classic symptoms (from Dr Google anyway) so will keep that in my head for now.  I have an appt with radiotherapy team on 5 Feb so will mention to them what I need to do next. I know I need to bite the bullet and get scanned probably for peace of mind.   Sitting on a heating pad relieves it so perched on one now.   I think you have so done the right thing by giving yourself something concrete to focus on, I definatley need to set some goals and face forwards.  I am liking the sound of the mini egg diet.. well they say eggs are good for us don't they!!  My health eating is going ok, slow progress but trying hard, difficult when not doing much exercise though but anything has to help I guess.  I was wondering if a chocolate orange counted as one of my five a day!Smiley Tongue

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Re: Surgery May 2018

Thanks Kip. You’re right, sometimes rest is the best thing to do. When I was first diagnosed I had it in my head that my hip problem was down to ‘you know what’ but I stopped running during chemo and it went away and the second I ran again it started. During chemo I was terrified that I was riddled so my onc referred me for a CT scan, it was worrying waiting for results but all clear thank heavens. Have you had a scan? I realise things could have developed since then but I put those thoughts out of my mind. I’m sure you will be fine Kip, our bodies have been through so much in the last 10months it’s no surprise there are aches and pains. Rest up and if you are still worried speak to someone.
How’s the weight loss going? I’ve lost 2lbs now but feel I should have lost more with all the exercise, perhaps the mini egg diet isn’t helping! It’s my husbands 50th on Saturday so i won’t be dieting this weekend!!
Claire I hope you are getting plenty of rest and being looked after.
How are you doing Jean? X
Kip
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Re: Surgery May 2018

Hi Michelle, it is a new look isn't it,, quite confusing to be honest.

You sound like you are doing so well, wonderful mileage under your belt ready for the big one and lovely that the Onc checked you over for peace of mind.  Annoying about the scan, I've had a MUGA scan before with the injection and can understand why you felt emotional.. I always get emotional when back at hospital, it just opens old wounds I find.  I'm still having the achy butt cheek and legs but resting it and now walking seems to help so, although I hate not doing stuff, I am going to rest up for a while and see what happens.  If not I will have to brave the hospital for peace of mind I guess.

Hope everyone is doing ok and can find our threads on here!

Kip

xx

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Re: Surgery May 2018

Hi everyone
My! This is a new look!
Sorry you are nothing sufferingnwith joint pain. I’ve been lucky and don’t seem to be suffering physicallybthat much now. I have a running injury with my hip that means when I stand up I am stiff for the first few steps but I’ve had that for ages and it doesn’t stop me doing anything.
I’ve had a busy few days. At the weekend we walked 17.3 miles and 6.7 miles. I felt so pleased and happy, although very tired! It felt as if I’d achieved something, then on Monday I had my heart scan. It’s a MUGA scan so lucky me I get to have two injections with it. They’re not content with the amount of stuff they’ve put through my veins these last few months! You have to wait between injections and then a twenty minute scan. At the end they said the pictures weren’t clear so I had to wait half hour and do it again but for 40 minutes! It was frustrating, not the worst thing in the world but I got really upset about it. I don’t really know why when I think about it rationally.
On Tuesday I had an appt with my oncologist. She asked how I was doing on Tamoxifen, and since rads. I asked her to examine me aswell just for my piece of mind and all was good. I told her I’m scared of something reappearing and me not noticing so she said she’ll fit another appt in for me 6 months after my mammogram so I don’t feel totally left on my own.
I feel less emotional today, thankfully.
Thanks for the info on flight exercises Jean, I might have to start an exercise class up with all that I’ll be doing!!
Friday nights fundraiser went really well. Everyone seemed to enjoy the night and were very supportive of me and OH. We have our final big fundraiser on Thursday. OH wants me to say a few words but I’m still thinking on that! The trip is only 2 1/2 weeks away now, I’m getting nervous! Xxx
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Re: Surgery May 2018

The site has changed its look ...  🤔 

Kip .. sounds as though your exercise dvd is very helpful. I do my exercises at least twice a day. When Im cooking I do a few in the kitchen, just a few extra stretches. Halve the distance you walk ... do things little and often and gradually build up. It does appear that joint/muscle twanging are the norm.My right hip and knee were giving me a bit gyp a couple of days ago but seem ok today. It might have been because I was out in the cold for some hours at the weekend.... it is my dodgy hip though from walking over Great Shunner fell many years ago. I’ve noticed my joints are slightly sore in general .. a combination of age, letrozole and cold weather. However my joints, in general, have been on the blink for some years. 

Michelle and Clare  ... how are you doing?

I may put my best foot forward and go out ... 

xx

Kip
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Re: Surgery May 2018

Morning Feenix,

No snow here either, lovely and bright though but cold..

I still do my exercises too, I have now got some more for lymphodema, but similar things and also the DVD so trying to do a few from them each day.  The lymphodema ones are supposed to be done twice a day so I try to do them when I get up and before bed, they are quick and easy, very gentle and can be done sitting done.  I've just done a couple of sections from the DVD too and some hooping.  Still have this pain in my butt and back, its worrying me a lot but over the weekend it was ok without doing any walking then I went out for about 3 miles on Monday and its back again, might have to knock the walking on the head for while or cut down the distance and see what happens.  Glad you ribs are improving, its slow progress all this isn't it.

Kip

x

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Re: Surgery May 2018

Looking forward to warmer weather Kip. Apparently there’s been a bit of snow elsewhere in the area this evening .. none where I am but going to be a cold night. I’ve just been around the shops today, done a bit of housework and wii tennis and that’s it for exercise. Might go to Tai Chi on Friday .. the gentle stretching will be good. Just when I think my ribs are ok they twang just to keep me on my toes.... nearly there though. Pre fall I still had some tightness  which felt better after exercising.  I still do my post op exercises daily. Do you? How are you doing with your sleeve?

xx