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Surgery May 2018

Kip
Member

Re: Surgery May 2018

Ooh they sound interesting feenix
Member

Re: Surgery May 2018

Thanks ladies.

Hope that Pilates ball does the trick Kip. Await your feedback.....

Ive been out for a walk this morning ... this afternoon will be wii fit. OH would like a rowing machine ... where to put it though. I’ve seen some wood ones online, which use water for the resistance. A bit expensive but stored upright and look like a contemporary piece of furniture. 

Hope you all have a good day.

xx

Community Champion

Re: Surgery May 2018

Feenix

 

Belated happy birthday wishes for yesterday

 

 

Helena xxx

Kip
Member

Re: Surgery May 2018

Yes hope you had a wonderful birthday Feenix 🎂. Glad to read you are getting the list writing going again... And starting to feel less tired and getting the ribs sorted. I have a small pilates ball coming today as lots of the exercises on my dvd use one to assist with movement... Watch this space I'll report on its helpfullness
Member

Re: Surgery May 2018

Happy Birthday for yesterday Jean! 🎉🍰 Sending a big birthday hug and birthday wishes for a healthy future xx
Member

Re: Surgery May 2018

Hi Ladies

Kip ... being back to a work routine must be satisfying. I’ve yet to get a diary for this year but still have last years planner ... it certainly tells a story. Hope you’re ploughing your way through the chocolate at a steady pace. Your exercise dvd sounds really good and I hope you get back to swimming...I just keep on thinking about it.  I’ve got some exercise bands but haven’t used them much although physio said they would be good for stretching. I may try a 5 week exercise prog through nhs site .. picked it up looking through Becca app. It’s on the same site as the couch to 5k. I’ll have to wait until my ribs are pain free and by that time I’ll probably have forgotten all about it 😂 . Hope your chemo se’s keep on improving... Michelle and Clare also. 

 

Clare ... I was super anxious before my last op but more about decision making. I really didn’t want a mx as I’d got used to my ever shrinking boob, and it was ‘another surgery’.   It’s natural to be anxious before major surgery, or any surgery. It’s the mental preparation, knowing there’s going to be a ‘change’ which will need to be embraced and a recovery period to get through. Although the length of your surgery must be daunting there are so many women who have gone through Diep and been ok .. that is so positive... keep that in mind. Your team will be very experienced doing Diep’s... they will reassure you on Monday and answer your questions. How are your pre op preparations going?  Sounds good to have a couple of days away with your OH. 

 

Michelle ...  my goodness .. next month is your trek !! I have to take my hat off to you...I can only get up to walking pace. Mind you I’ve never been a runner. And you’ve signed up for more !!! They’ll keep you going. Keep on believing your own hype but take it easy if/when you have an off day ... go with the flow. My birthday was yesterday..chill out day. I never feel I have to do ‘anything or something’ and there’s so many other days in the year to chose from...warmer days 😂 Today is the day to start off on the right foot for me... definitely into lists again and will get a 2019 diary/ planner tomorrow. Gosh...I was doing that this time last year and it all went out of the window .. hey ho. Hope you get some good 💤

 

Jane .. pleased you are doing so good.... getting near to ringing that bell 🔔 🔔 🔔 

 

 

Ive felt very tired and grumpy the past few days. Decided to take myself in hand .... started doing half hour wii fit today .. the yoga part was good for stretching.. and I have had a walk. My ribs are twanging but I need to keep on going. My mood has improved today probably because I don’t feel so cream crackered and I haven’t nodded off ... results. Hoping I can keep motivated.

Deciding whether to do long haul flight this month or next ... 🤔 

I was told having an Epsom salt soak is good for crampy legs !?

Its been really chilly today. Hoping it’s going to be a bit ‘warmer’ tomorrow.

xx

 

 

 

Member

Re: Surgery May 2018

You both talking about neuropathy has made me think, yesterday my feet were really sore to walk on. I had been for a run but only a short one. I’ve been lucky I haven’t had many chemo related SE’s but do have a bit of neuropathy in my feet. Do you know if it is aggravated by exercise or helped? I know exercise helps most things but I’m wondering if the pounding of running might make it worse? I really hope not, I’m loving being back running. I guess I’ll have to just see how it goes. Chemo really is the gift that keep on giving! X
Kip
Member

Re: Surgery May 2018

CDC - thats really interesting because I find if I haven't done too much walking my legs, feet and knees don't suffer at nighttimes as much.. but otherwise they are so restless and achey, my feet sometimes feel like I've walked 40,0000 steps and I haven't done a single one.. perhaps it is neuropathy from the chemo... whatever it is I hope it slings its hook soon!!  

Kip

xx

Member

Re: Surgery May 2018

Hi everyone

Kip I get the restless feeling in my feet some nights- it’s definitely neuropathy related in my case. I’ve been referred to the pain specialist at the Marsden so it will be interesting to hear any suggestions. I find if I keep off my feet for a couple of days then I can walk pretty normally for the next day or two . I think I’m just going to have to plan my days carefully if I know there will be a lot of walking involved. Still hoping that over time the sensation will comeback properly.

Janie, I’m glad your transition back to work is going well. Only a few more days and you’ll have finished your rads! Great news.

Michelle it’s brilliant you’re getting on with your training. Thanks for your reassuring words with regards to surgery. I'm feeling somewhat calmer today and talking to the surgeon on Monday should also help.

Hi Linda not too long to go now. Hope you’re enjoying planning a holiday. Any ideas where you’d like to go!

How are you doing Jean? Have you managed any more walks? It’s a glorious day here and I managed a little walk around the grounds of the hotel where my OH and I spent the last 2 nights.

Hugs to everyone xxx
Kip
Member

Re: Surgery May 2018

Yes tick of the days Jane, soon be ringing loud and proud!

Member

Re: Surgery May 2018

Hi  Michelle and Kip

Thank you for your good wishes. Tenth radiotherapy today so two thirds done! I am counting down the days to that bell!

Jane xxx

Kip
Member

Re: Surgery May 2018

Wow Jane.. thats great that the nurse will come to your work for you... wonderful!   Glad to hear you are fairing well too, its good to be back at work isn't it.  After I finished my Rads (19th Dec) I haven't really found I have been too tired, not got sore either although I do have a couple of red patches but they don't hurt.

Michelle - glad the Tamoxifen is suiting you fairly well.  Those sweats are awful though aren't they.  I'm not convinced its the Tamox only causing my aches as it seems to be a SE of the docetaxol chemo for some people too.  Perhaps its a bit of both.  Last night I had restless right leg all night long and achy feet.. perhaps its some sort of neuropathy thing.. who knows.. just hope it passes.  I have been looking up swimming timetables to see if I can get myself motivated to go swimming, thinkign I need to stretch all these muscles.  After my work out yesterday with the DVD I am a bit stiff today, so still stretching.

Kip

x

Member

Re: Surgery May 2018

Your DVD sounds good Kip, I think I have quite good movement and flexibility inmy arm until I stretch it above my head, it really feels quite stiff then. I should make more of an effort to stretch it.
I seem fine on Tamoxifen too, no aches just lots of hot flushes.
Jane it sounds like you are doing well, I’m impressed your nurse will come to your work to give your herceptin, that must be really handy for you sonyou can keep working. I hope the remainder of your rads go well.
Mum and dad went home today, lovely to see them but good to have our home back! Hoping to get back in to a routine at last xx
Member

Re: Surgery May 2018

Hi Feenix,

I am doing well, thank you! I have just had nine of my fifteen radiotherapy sessions. No ill effects still. I had tried to bring it forward as I wanted to be finished by the time I went back to work today. However, it was not too bad having the sessions over the Christmas period. We had the children home from Uni and family down, so I had plenty of offers of lifts, and we combined it with a nice coffee after!

Work was so good today. I was absolutely thrilled to get back to it. I have been off from 26th June. I am doing mornings only til the radiotherapy has finished ( 10th January)The radiotherapy nurse told me the tiredness may kick in about nine days after my last radiotherapy. I hope not! I am away for a friend's 50th, then the following week I will be back to work full-time.

I will be having three weekly Herceptin injections til June but they are happy to come into work to do that, then sit in the waiting room for two hours to make sure there are no side effects. ( I am a dentist).

Best wishes to all of you

Jane xx

 

Kip
Member

Re: Surgery May 2018

Morning all, well back at the desk and getting on with work.   Funny how you soon get back into the stride.

CDC - I can well imagine the worries are creeping in for your operation but you'll get there and this is the final piece of the jigsaw and you can heal up and move forward knowing you've done all you can.  Good to hear you have the weight gain for you operation too, I have plenty around my hips, tummy, bottom well everywhere really and am going to try to take that into control now the new year is here... although I still have a shed load of chocolate to get through too.

Fab you are getting on well with Tamoxifen too, just the knees.  It will be intersting to see if it improves when you are off them for a couple of weeks.. let me know.  My stiff limbs are still a nuisance but slightly less so now, just the lower back which aches (see below for possible reason though) and I get the sweating during the night.

I finally got to watch and participate in the Breast Exercise DVD given to me by my hospital.  Its really quite good, it was made by Ipswich Hospital Macmillan unit and is aimed at getting movement and flexibiiity back.   I did most of it today, its very slow to begin with and you build up as you go but had some great exercises that really feel like they will get my arms and shoulders moving.  Made me realise that my hip and back pain is probably down to posture as they point out that once you have had breast surgery you naturally arch forward to protect that area and you shoulders dip and hunch causing stiffness.  I need to work on the video and to buy a small pilates ball as some exercises use those.  SOme use the resistance bands and that seems like a good thing too.  

Michelle - I like your thinking that if you say your fine enough you may just believe it.. Im trying that too, not always successfully and I too spend times awake with wandering mind.  I would love a whole nights sleep for once, but hot sweats and aches don't allow that any more.  But mustn't moan as on the whole I sleep ok.

Kip

xx

Member

Re: Surgery May 2018

I was also diagnosed in March, what a horrible time that was. I still find it difficult to think back to, the feelings are still very raw. However this is a new year, onwards and upwards with lots of up hopefully!
Writing diaries, calendars and planning ahead things we really want to do seems to be a theme. The saying dont’t put off till tomorrow what you can do today really chimes with me now! Just do it! I’ve set myself a few challenges for next year, you already know of the trek I’m doing in February but I have also signed up to 4 10k’s and 2 half marathons! Training started yesterday with a beautiful 5k along the seafront. I’ve also put on lbs so hopefully getting back to running will help with that aswell as giving me the feel good factor.
Claire I was terrified before my surgery but I think the apprehension is worse than the reality. Sending lots of positive vibes to you, after surgery you are closer to the end of this horrible process.
Thanks for your kind words Jean. We did have a good time for my mums birthday, are you a Capricorn too? When is your birthday and do you have something nice planned?
I know my mum will go home feeling like she has her daughter back and I am definitely in a much better place now however I do feel I have made a decision to project that I am back to ‘normal’ when in reality there are still so many worries. Perhaps if I carry on like this I will believe my own hype!! 😂
I used to be such a great sleeper but now find if I am often lying awake in the early hours. Not always worrying but just going over stuff in my head.
Kip good luck with work, I think getting back into some sort of routine can do wonders.
Have a good day all xx

Member

Re: Surgery May 2018

Jean I hope you’re not feeling as sore. Good you got out for a walk but definitely agree going with the flow is the right way to approach things. I was so down a couple of days ago but realised it was my body’s way of saying ‘’enough’s enough. You need to rest’. It’s been lovely catching up with my family over Christmas but it’s akso been exhausting. Not sleeping properly either which doesn’t help. On a positive note, apart from my dodgy knees and some hot flushes, I seem to be doing ok on the tamoxifen. I will be interested to see if the joint pain lessens over the next couple of weeks as I have to stop taking it before my op.

Take care everyone. Sending hugs to you all 🤗🤗🤗xxx
Member

Re: Surgery May 2018

Hello all you lovely ladies and here is hoping to many, many more ups this year. It was March last year when I had my fateful shower and felt the thickening which heralded the start of a tumultuous year. I’m sorry I’ve been a bit quiet but been struggling with my emotions. I didn’t feel nervous before my last two ops but there is just something so final about a mastectomy- However, you all give me hope and in many ways ‘final’ is good. Hopefully I’ll feel more relaxed knowing I’ve ensured my chances of getting BC again are minimal. Thank you so much for your honesty and openness in sharing your experiences.

Linda, so good to hear you’ll hopefully be finishing treatment very soon. Fingers crossed you’ll soon be holidaying in the sun! We all deserve a b***dy good holiday this year!!

Kip hope your return to work goes smoothly. You’ll have to share any weight loss tips- I’ve put on a stone over the holidays so my plastic surgeon will be happy I definitely have enough tummy for two reconstructions now!!!! Only trouble the weight has also gone too my hips. I’ll be a complete pear by the end of treatment. 🍐
Kip
Member

Re: Surgery May 2018

Just put up the new calendar and had a flick back through the 2018 one.... Full of horrendous reminders... Especially the one back in March... I'd marked it as `shopping' so that the children didn't know anything.. Seems a different lifetime and I guess it was... Oh well no looking backwards got to look to the futures.
Back to work tomorrow and time to shed this weight... Still go a shed load of chocolate though 😒
Member

Re: Surgery May 2018

Pleased you’re getting to the end of your hospital treatment Linda. I started out in March also. Have found the support to be exceptional. Enjoy your break away in the sun ...all the best for 2019.

xx