Hi Kip. Good your cording has gone. Well done on your range of movement. Sorry about the lymphoedema though. Good to ‘catch it’ in its early stage. I like that you try to find something positive out of this. You can get bonny sleeve covers, some which will make it look as though you’ve got a full sleeve tattoo. Hope you join your OH and son doing yoga.
I was always worrying about my arm, and was quite obsessed at one time, as I was thinking I would be more prone to developing it having had cording and 3 surgeries, even though none of them was ANC. I did feel more at ease after the lymph nurse spoke to us just realising how manageable it is. If I develop it then I’ll just manage it. I’m pleased I now know the correct way to apply moisturiser and she did tell me exercises to do when on long haul.
Hi Kip I have been following your story and was so pleased for you when you finished your treatment. The pic of you and your children brough tears to my eyes and I now find myself teary eyed again having just read that you have lymphodema. I am a week post op anc and that was my worst nightmare although I dont have all my results yet so no treatment plan and things may get worse for me. I also had a 3rd reexcision to get one more clear margin but my journey has been going on since October. Did you have swelling to your arm? I am keen to do as much as I can to avoid lymphodema but dont really know what to do for the best. I am still sore and numb at the moment so finding exercises a bit difficult.
Hi Michelle, apparently when exercising that it when your blood and lymph is flowing more so its important to wear the sleeve to stop it building up. I would imagine that if you don't have lymphodema there its good to exercise to keep it flowing but the sleeve just helps stop a build up... I think!! She did say exercise is very good, especially yoga.
Just been to lymphodema clinic... good news is my cording is gone... bad news is.... I have mild lymphodema... now sporting a lovely support sleeve. I don't have to wear it all the time just when exercising, walking or housework/gardening. She wants to stop it progressing so has told me some more exercises to do and dos and don'ts and have to go back in 3 months. She was impressed with the movement i have though. Actually felt quite teary when I left the clinic, seems I always go in positive and come out with something else but in teh scheme of things.. a sleeve is nothing... and another positive... no bingo wing on that side when wearing it.. lovely toned arm! Might wear the spare on the other side...
Ahhh CDC.. so good to hear from you. Glad all went well, just a minor blip with the old BP... you don't like to take things the easy route though do you.... I'm sure you'll be out of that unit pretty sharpish... sending love
I’m envious of your weight loss too Kip ... as I’m sitting here with a cuppa and digestives. Dare not confess how many I’ve eaten ... 😈
Thanks Feenix - yes hoping for some bargains.. Good news about the hooping... me too.. I lost 3.5lbs last week so thats a plus.
I was thinking about Clare too, hope shes ok.
News such as you’ve had about your friend Kip, will always hit home. It’s a natural reaction. Being there for her, sending a virtual hug, a message of support is something you can do ... just being there. You’re right, there are many ladies living long lives with mets and there is plenty of support on here which she would find beneficial. There is also the younger persons group.
I don’t find this subject doom and gloom...it’s just how things are for some. We hope such things will bypass us..... we are definitely all different. Get yourself out shopping ... really good distraction and you might find a bargain 😊. I started hooping yesterday.
Hope things have gone ok for Clare.
Michelle .. hope physio helped
sunny here, washing out, have done wiifit, going for a walk and enjoying the weak rays while they are there.
Thanks for all the tips and kind words. Unfortunately yesterday I had some bad news which didn't help things, I have befriended a lady locally who has been going through treatment (we have never met but chat regularly on line), she is only 41 and had finished treatment but found out yesterday that she has lung mets. She did have some issues on scan before beginning treatment so it wasn't something out of the blue but still.. it really shocked me and didn't help with the demons at all. I am going to encourage her to get on this forum and I did some research yesterday and there are lots of chats going on with ladies in the same boat and I think it would be good for her. Haven't heard from her at all today and don't know how on earth to help apart from just be here I guess. Having to remind myself we are all different and it doesn't mean it will be me next... sorry for being so doom and gloom lately... perhaps thats another SE of the Tamoxifen.. it does wreck your hormones... going shopping later.. that will help
Just wanted to send you a big hug. We all have those demons, but just think what our bodies have been through last year. How could we not be having some side effects from it all? Everyone is different so try not to worry that others aren't experiencing the same symptoms. Try to focus on how far you have come. I get scared too, but then I think, I have had so much treatment, surely those cancer cells don't stand a chance!!! Being back at work helps too, as there are hours at a time that I am focusing on my work.
Love Jane xxx
That looks really good Kip. It’ll be the same one here. There’ll probably one where you are Michelle. It’ll compliment the moving forward course. I’ll be putting my name forward ... do everything that’s available. My bcn said that ladies who have attended found it very beneficial.